- Revenue 2024
- $36,615,169
- Expenses 2024
- $49,532,382
Program services were 75.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- H410
- Classification
- 1000
- Street
- 6925 OAKLAND MILLS RD701
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Group exemption
The central organization of an IRS group exemption (group number 2408), covering 1 subordinate organization. matched by us
The IRS lists each organization's group exemption number; we match a subordinate to its central organization by that number and the affiliation code the IRS assigns.
-
MACULAR DEGENERATION INTERNATIONAL
FOUNDATION FIGHTING BLINDESS INC EIN 36-3923922 COLUMBIA, MD
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
ADRIENNE GRAVES PHD
DIRECTOR
- Total calculated
- $12,500
- From this org
- $0
- From related orgs
- $12,500
- Other
- $0
- Hours/week
- 1 + 1 related
-
KAREN PETROU
BOARD CHAIR
- Total calculated
- $0
- Hours/week
- 10 + 1 related
-
JASON MORRIS
EXECUTIVE VICE CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
HAYNES LEA
BOARD SECRETARY
- Total calculated
- $0
- Hours/week
- 1
-
STEVEN ALPER
CHAIR, DEVELOPMENT
- Total calculated
- $0
- Hours/week
- 1
-
JEFFREY FREED
CHAIR, AUDIT & RISK
- Total calculated
- $0
- Hours/week
- 1
-
DAVID NIXON
CHAIR, FINANCE & INVESTMENT; TREAS.
- Total calculated
- $0
- Hours/week
- 1
-
JONATHAN STEINBERG MD
CHAIR, SCIENCE
- Total calculated
- $0
- Hours/week
- 1 + 1 related
-
MARYROSE SYLVESTER
CHAIR, AT LARGE
- Total calculated
- $0
- Hours/week
- 1
-
WARREN THALER
CHAIR, NOMINATING & GOVERNANCE
- Total calculated
- $0
- Hours/week
- 1 + 1 related
-
GORDON GUND
DIRECTOR - CHAIRMAN EMERITUS
- Total calculated
- $0
- Hours/week
- 1
-
DAVID BRINT
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
SCOTT BURT
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
DARREN DEVOUE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
LAURA FIETTA
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
ROBERT HEIDENBERG
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
SUBER HUANG MD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
MARSHA LINK PHD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
LAURA MANFRE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
BRADFORD MANNING
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
JANINE MARKS NIXON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
EVAN MITTMAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
GEORGE PEINADO
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
MARTHA STEELE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
JOSHUA STEINBERG
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
The first 25 listed. Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $36,615,169
- Expenses
- $49,532,382
- Contributions
- $31,063,702
- Grants paid
- $22,880,201
-
2023
- Revenue
- $35,702,558
- Expenses
- $48,226,411
- Contributions
- $31,823,323
- Grants paid
- $21,112,113
-
2022
- Revenue
- $30,437,892
- Expenses
- $51,265,440
- Contributions
- $28,901,504
- Grants paid
- $27,872,429
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2022 · 990-T
- Revenue
- not reported
- Expenses
- not reported
- Assets (EOY)
- not reported
Nonprofiteer parses the Form 990 only. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.
Grants made
-
FOUNDATION FIGHTING BLINDNESS RD FUND
$14,920,274
2022 RESEARCH
-
FOUNDATION FIGHTING BLINDNESS RD FUND
$8,771,404
2024 RESEARCH
-
FOUNDATION FIGHTING BLINDNESS RD FUND
$8,307,442
2023 RESEARCH
-
$1,398,985
2024 RESEARCH
-
$1,093,565
2023 RESEARCH
-
OREGON HEALTH AND SCIENCE UNIVERSITY
$1,042,192
2022 RESEARCH
-
$1,023,689
2022 RESEARCH
-
UNIVERSITY OF CALIFORNIA IRVINE
$914,667
2024 RESEARCH
-
DUKE UNIVERSITY MEDICAL CENTER
$900,000
2024 RESEARCH
-
$896,691
2022 RESEARCH
The 10 largest by cash amount. The API serves every itemized grant.
Grants received
-
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$5,998,715
2024 For grant recipient's exempt purposes
-
$1,194,000
2024 PUBLIC, SOCIETAL BENEFIT
-
2023 UNRESTRICTED GENERAL SUPPORT
-
2022 For grant recipient's exempt purposes
-
2023 For grant recipient's exempt purposes
-
DONOR ADVISED CHARITABLE GIVING
$669,351
2023 HEALTH
-
2024 MEDICAL RESEARCH
-
DONOR ADVISED CHARITABLE GIVING
$420,364
2024 HEALTH
-
DONOR ADVISED CHARITABLE GIVING
$334,716
2022 HEALTH
-
$300,000
2022
The 10 largest by cash amount. The API serves every itemized grant.
Related organizations
From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.
Declared on its 2024 return
-
FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND
501(C)(3) · FUNDS RESEARCH AND CLINICAL TRIALS TO FIND TREATMENTS FOR RETINAL · DE · controlled entity
-
MACULAR DEGENERATION INTERNATIONAL INC
501(C)(3) · FUNDRAISING · IL · controlled entity
-
NATIONAL RETINITIS PIGMENTOSA FOUNDATION INC
501(C)(3) · FUNDRAISING · MD · controlled entity
Declared as related by
-
FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND
On its 2024 return
California fundraising campaigns
Campaigns run by paid fundraisers, commercial coventurers and thrift stores naming this organization, as California published them. Both figures are as filed, and what the first one counts depends on the campaign type — a coventurer or a thrift store files its own sales rather than money collected for the charity. The 990 reports this only as a yearly total, never per campaign.
-
THE HERITAGE COMPANY INC.
$2,235 raised
2019 Commercial Fundraiser
$1,286 to charity
Amounts are as filed and do not add up: a commercial coventurer reports one promotion's whole gross once for each charity that shared in it. A campaign may also name more than one registered charity, in which case it appears on each.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 10 September 2026, under deductibility GROUP.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.