AMYLOIDOSIS RESEARCH CONSORTIUM INC

As filed

Subsection

03

NTEE code

H80

Classification

2800

Street

320 NEVADA ST STE 210

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2025

• RESEARCH PROGRAMS:ARC HAS BEEN WORKING ON A NUMBER OF RESEARCH INITIATIVES INCLUDING DATASHARING, AND PATIENT EXPERIENCE STUDIES. ARC HAS ALSO DEVELOPED AN APPOINTMENT COMPANION TOOL THAT SUPPORTS PATIENTS THROUGHOUT THEIR TREATMENT JOURNEY. THE ANONYMIZED AGGREGATED DATA PROVIDES VALUABLE REAL WORLD INCITES. ARC IS DEVELOPING A PATIENT REPORTED OUTCOMES TOOL FOR USE IN CLINICAL PRACTICE.

  Expenses $589,943 · Revenue $52,140

• AWARENESS, EDUCATIONAL PROGRAMS AND ADVOCACY:ARC'S PATIENT AND HEALTHCARE PROFESSIONAL PROGRAMS EDUCATE PHYSICIANS AND TAILOR INFORMATION TO SUIT THE PATIENT'S NEEDS AND ARE SUCCESSFULLY MATCHING THEM TO BETTER TREATMENT CENTERS, CARE, AND CLINICAL TRIALS. ARC'S PATIENT ADVISORY BOARD ARE INSTRUMENTAL IN DEFINING AND PRIORITIZING ARC'S PATIENT PROGRAMS. ARC'S PATIENT SUPPORT SPECIALIST PROVIDES INFORMATION AND GUIDANCE FOR PATIENTS THROUGHOUT THEIR JOURNEY. ARC ALSO MAINTAINS A COMPREHENSIVE WEBSITE WITH THE LATEST INFORMATION AND NEWS ABOUT AMYLOIDOSIS. ARC'S UNIQUE AMYLOIDOSIS PATHFINDER TOOL SUPPORTS PATIENTS IN FINDING AND EVALUATING TREATMENT CENTERS AND MATCHING THEM WITH CLINICAL TRIALS. THIS TOOL HAS BEEN FURTHER ENHANCED TO SUPPORT PATIENTS WITH TELEHEALTH VISITS AND VIRTUAL CARE DURING THE PANDEMIC. ARC ALSO HOSTS ARC TALKS, A REGULAR PATIENT EDUCATIONAL WEBINAR SERIES COVERING A RANGE OF IMPORTANT TOPICS. ARC HAS DEVELOPED BOOKLETS, AND HANDOUTS TO PROVIDE PATIENTS WITH IN DEPTH INFORMATION ON AMYLOIDOSIS RELATED TOPICS.

  Expenses $714,179

• HEALTHCARE PROFESSIONAL EDUCATION:ARC HAS CARRIED OUT RESEARCH TO UNDERSTAND THE BARRIERS AND PATHWAYS TO EARLY DIAGNOSIS. FROM THIS RESEARCH, ARC DEVELOPED AND IMPLEMENT TARGETED SOLUTIONS. ARC RAISES AWARENESS AND PROVIDES PHYSICIAN EDUCATION ON THE SIGNS, SYMPTOMS, AND CARE OF AMYLOIDOSIS TO RAISE THE LEVEL OF SUSPICION, IMPROVE THE SPEED OF DIAGNOSIS, AND STANDARDS OF CARE. ARC HELD A MASTERCLASS FOR PHYSICIANS AND NURSES IN DALLAS, TX FOCUSED ON ADDRESSING THE CHALLENGES OF ACCURATE DIAGNOSIS AND MANAGING CARE. ARC HAS PUBLISHED PEER REVIEWED CONSENSUS GUIDELINES DEFINING PATHWAY FOR SUSPICION AND DIAGNOSIS WITH A FOCUS ON CARDIOLOGY AND GENERAL PRACTICE. ARC SPONSORED A SATELLITE SYMPOSIUM AT THE HFSA CONFERENCE ON THE DIAGNOSIS AND TREATMENT OF CARDIAC AMYLOIDOSIS.

  Expenses $570,861

• Expenses $987,595 · Grants $532,500

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

• 2025

  Revenue

  $3,777,620

  Expenses

  $3,808,975

  Contributions

  $3,548,365

  Grants paid

  $532,500

• 2024

  Revenue

  $3,366,811

  Expenses

  $3,016,006

  Contributions

  $3,177,624

  Grants paid

  $0

• 2023

  Revenue

  $2,888,025

  Expenses

  $2,415,059

  Contributions

  $2,702,741

  Grants paid

  $0

• 2022

  Revenue

  $2,260,256

  Expenses

  $2,129,932

  Contributions

  $2,219,649

  Grants paid

  $0

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

• 2021 · 990

  Revenue

  $1,647,972

  Expenses

  $1,682,131

  Assets (EOY)

  $2,350,923

• 2020 · 990

  Revenue

  $2,125,459

  Expenses

  $1,233,948

  Assets (EOY)

  $2,277,557

• 2019 · 990

  Revenue

  $1,697,298

  Expenses

  $1,328,269

  Assets (EOY)

  $1,394,467

• 2018 · 990

  Revenue

  $1,416,444

  Expenses

  $1,659,988

  Assets (EOY)

  $1,548,310

• 2017 · 990

  Revenue

  $1,278,010

  Expenses

  $905,160

  Assets (EOY)

  $1,077,608

• 2016 · 990

  Revenue

  $811,069

  Expenses

  $658,640

  Assets (EOY)

  $623,943

• 2015 · 990

  Revenue

  $750,022

  Expenses

  $305,982

  Assets (EOY)

  $467,346

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

• THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK

  $122,500

  2025 · RESEARCH

• BOSTON MEDICAL CENTER

  $90,000

  2025 · RESEARCH

• MASS GENERAL HOSPITAL

  $80,000

  2025 · RESEARCH

• NORTHWESTERN UNIVERSITY

  $80,000

  2025 · RESEARCH

• OREGON HEALTH AND SCIENCE UNIVERSITY

  $80,000

  2025 · RESEARCH

• THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER

  $80,000

  2025 · RESEARCH

Where these grants went next →

Grants received

• CHIP MILLER CHARITABLE FOUNDATION

  $50,000

  2024 · PROGRAM SPECIFIC SUPPORT

• CHIP MILLER CHARITABLE FOUNDATION

  $25,000

  2023 · PROGRAM SPECIFIC SUPPORT

• VANGUARD CHARITABLE ENDOWMENT PROGRAM

  $13,000

  2023 · FOR RECIPIENT'S EXEMPT PURPOSE

• DONOR ADVISED CHARITABLE GIVING

  $10,250

  2022 · HEALTH

• VANGUARD CHARITABLE ENDOWMENT PROGRAM

  $10,000

  2022 · FOR RECIPIENT'S EXEMPT PURPOSE

• AMERICAN ONLINE GIVING FOUNDATION INC

  $8,603

  2023 · GENERAL SUPPORT

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $7,700

  2024 · For grant recipient's exempt purposes

• AMERICAN ONLINE GIVING FOUNDATION INC

  $6,451

  2022 · GENERAL SUPPORT

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $6,450

  2023 · For grant recipient's exempt purposes

• CHIP MILLER CHARITABLE FOUNDATION

  $0

  2022 · PROGRAM SPECIFIC SUPPORT

The 10 largest by cash amount. The API serves every itemized grant.

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