- Revenue 2024
- $145,847
- Expenses 2024
- $185,997
Program services were 88.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- Classification
- 1000
- Street
- 830 GREENVIEW DR
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2024
Mission
OUR MISSION IS TO BUILD A BETTER AND BRIGHTER FUTURE FOR ALL THOSE IMPACTED BY SPINA BIFIDA
-
CAMPS, RETREATS, AND EVENTS TO STRENGTHEN, AND ENRICH THE LIVES OF THOSE WITH SPINA BIFIDA AND THOSE WHO LOVE THEM THROUGH ACTIVITIES AND FELLOWSHIP.
Expenses $120,651 · Revenue $26,059
-
EDUCATED INDIVIDUALS WITH SPINA BIFIDA, FAMILY MEMBERS, AND THE GENERAL PUBLIC ABOUT SPINA BIFIDA, SPINA BIFIDA RESEARCH, AND LIVING WITH SPINA BIFIDA.
Expenses $31,901 · Revenue $1,910
-
PROVIDE EDUCATIONAL SCHOLARSHIPS FOR INDIVIDUALS LIVING WITH SPINA BIFIDA
Expenses $8,963
-
PROVIDE EMERGENCY AND INCONTINENCE SUPPLIES TO ASSIST INDIVIDUALS AND FAMILIES LIVING WITH SPINA BIFIDA
Expenses $3,013
As filed on the 2024 return.
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Katie SheppardKATIE SHEPPARD
INTERN COORDINATOR
- Total calculated
- $0
- Hours/week
- 2
-
Megan WilliamsMEGAN WILLIAMS
ADULT GROUP CHAIR
- Total calculated
- $0
- Hours/week
- 2
-
Clarice SinnCLARICE SINN
SCHOLARSHIP CHAIR
- Total calculated
- $0
- Hours/week
- 2
-
Martha LopezMARTHA LOPEZ
HISPANIC GROUP CHAIR
- Total calculated
- $0
- Hours/week
- 2
-
Jessica BassJESSICA BASS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Julie CountsJULIE COUNTS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Lisa PennLISA PENN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Talia CollierTALIA COLLIER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Gretchen JohnsonGRETCHEN JOHNSON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Karla Palacios-ReagorKARLA PALACIOS-REAGOR
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Alejandra MedranoALEJANDRA MEDRANO
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Jackie Halpin-OsteenJACKIE HALPIN-OSTEEN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Jill WestJILL WEST
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Christina NasonCHRISTINA NASON
CHAIR
- Total calculated
- $0
- Hours/week
- 3
-
Amy HensarlingAMY HENSARLING
SECRETARY
- Total calculated
- $0
- Hours/week
- 3
-
Howard HongHOWARD HONG
TREASURER
- Total calculated
- $0
- Hours/week
- 3
-
Julie CarterJULIE CARTER
IMMEDIATE PAST CHAIR
- Total calculated
- $0
- Hours/week
- 3
-
Robin LeeROBIN LEE
EXECUTIVE DIRECTOR
- Total calculated
- $0
- Hours/week
- 25
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $145,847
- Expenses
- $185,997
- Contributions
- $117,049
- Grants paid
- $6,550
-
2023
- Revenue
- $202,572
- Expenses
- $172,551
- Contributions
- $196,114
- Grants paid
- $10,983
-
2022
- Revenue
- $122,995
- Expenses
- $118,534
- Contributions
- $122,693
- Grants paid
- $6,174
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $105,026
- Expenses
- $84,643
- Assets (EOY)
- $204,412
-
2020 · 990
- Revenue
- $78,273
- Expenses
- $78,927
- Assets (EOY)
- $182,788
-
2019 · 990
- Revenue
- $104,209
- Expenses
- $104,474
- Assets (EOY)
- $178,110
-
2018 · 990
- Revenue
- $108,342
- Expenses
- $89,347
- Assets (EOY)
- $177,665
-
2017 · 990
- Revenue
- $112,155
- Expenses
- $99,775
- Assets (EOY)
- $158,248
-
2016 · 990
- Revenue
- $111,667
- Expenses
- $108,754
- Assets (EOY)
- $147,143
-
2015 · 990
- Revenue
- $125,894
- Expenses
- $113,922
- Assets (EOY)
- $144,428
-
2014 · 990
- Revenue
- $132,457
- Expenses
- $112,117
- Assets (EOY)
- $133,995
-
2013 · 990
- Revenue
- $135,010
- Expenses
- $114,991
- Assets (EOY)
- $113,306
-
2012 · 990
- Revenue
- not reported
- Expenses
- $133,883
- Assets (EOY)
- $90,651
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.
Grants made
No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.
Grants received
-
2023 EQUIPMENT/SUPPLIES
-
2022 EQUIPMENT/SUPPLIES
-
2023 THIS GRANT IS DESIGNATED FOR GENERAL SUPPORT.
-
2024 EQUIPMENT/SUPPLIES
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 13 October 2026 and read 29 October 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.