Skip to content
Nonprofiteer
← All organizations

TATTON BROWN RAHMAN SYNDROME COMMUNITY INC

EIN 81-2216511 STANFORDVILLE, NY

Revenue 2025
$349,738
Expenses 2025
$329,642

Program services were 81.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G20
Classification
1000
Street
122 HUNNS LAKE RD

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2025

Mission

TBRS Community aims to support all families affected by TBRS and advance research toward interventions.

  • Research: TBRS-funded research led to potentially lifesaving clinical discoveries, improving monitoring for key health risks. Through our biorepository (45 patient samples) and funded TBRS models, we removed barriers for scientists by providing essential tools for biomarker discovery and treatment development. These efforts have made it easier and faster for researchers to step into TBRS studies, expanding research participation and increasing treatment development potential.

    Expenses $115,642 · Grants $84,000

  • Collaborative Research Network: Over the past year, the TBRS Community expanded its Collaborative Research Network (CRN) by fostering cross-disciplinary partnerships, centralizing data, and prioritizing patient-driven research goals. We increased the TBRS Patient Registry to over 200 participants, making it a vital resource for scientific discovery. Additionally, we developed a strategic research roadmap to guide efforts toward clinical outcomes and ensure open access to data, accelerating the path toward effective treatments.

    Expenses $95,845

  • Education: In the past year, the TBRS Community delivered critical education and advocacy programs, including: Raising awareness of seizures, cardiac concerns, and cancer risks through scientific publications and advocacy efforts. Launching a Future Planning Series with expert-led sessions on long-term care, financial planning, and adult services, supporting families in making informed decisions. Hosting family education webinars, social groups, and parent support networks, strengthening community connections and equipping families with research and clinical insights.

    Expenses $56,490 · Revenue $12,870

As filed on the 2025 return.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Jill Kiernan

    Executive Director

    Total calculated
    $78,280
    From this org
    $76,000
    From related orgs
    $0
    Other
    $2,280
    Hours/week
    40

  • Kacee Richter

    President

    Total calculated
    $0
    Hours/week
    10

  • Kerry Grens

    Vice President

    Total calculated
    $0
    Hours/week
    5

  • Erin Rooker

    Marketing Manager

    Total calculated
    $0
    Hours/week
    5

  • Robert Thibodeau

    Director

    Total calculated
    $0
    Hours/week
    1

  • Tim Bernier

    Treasurer

    Total calculated
    $0
    Hours/week
    5

  • Zoe Wisnoski

    Secretary

    Total calculated
    $0
    Hours/week
    1

  • Monic Bejano

    Director

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $349,738
    Expenses
    $329,642
    Contributions
    $314,482
    Grants paid
    $84,000
  • 2024
    Revenue
    $270,669
    Expenses
    $399,562
    Contributions
    $181,535
    Grants paid
    $110,000
  • 2023
    Revenue
    $309,002
    Expenses
    $333,744
    Contributions
    $279,571
    Grants paid
    $20,000
  • 2022
    Revenue
    $165,360
    Expenses
    $157,087
    Contributions
    $163,592
    Grants paid
    $10,000

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $337,246
    Expenses
    $62,026
    Assets (EOY)
    $422,765

  • 2020 · 990

    Revenue
    $97,655
    Expenses
    $24,397
    Assets (EOY)
    $140,714

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Form 990-N e-Postcard, tax year 2019

Tax period
1 January 2019 to 31 December 2019
Principal officer
Jill Rae Kiernan
Mailing address
122 Hunns Lake RoadStanfordville NY 12581
Website
tbrsyndrome.org

As filed, from the IRS e-Postcard file of 26 October 2026. The IRS publishes only each organization's most recent postcard, so earlier years are not shown. A 990-N carries no financial detail. The postcard also gives the principal officer's address, which is not shown here.

Grants made

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 1 November 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.