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MYOSITIS ASSOCIATION

EIN 54-1660976 COLUMBIA, MD

Revenue 2024
$2,012,099
Expenses 2024
$1,794,414

Program services were 70.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
P82Z
Classification
1000
Street
6950 COLUMBIA GATEWAY DR STE 370

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

The mission of The Myositis Association, or TMA, is: to improve the lives of persons affected by myositis, fund innovative research, and increase myositis awareness and advocacy. TMA is the premier international organization providing important resources, education and support to those in the myositis community. This community consists of children, adults, and their families who live with the daunting and life-changing physical, psychological and emotional effects of myositis. Nationwide, an estimated 75,000 Americans are affected by this collection of rare diseases. Symptoms of myositis include, but are not limited to: muscle weakness pain fatigue tripping or falling trouble swallowing difficulty breathing and irritations of the skin, joints, and eyes. Myositis is often difficult to diagnose, because many physicians are unfamiliar with the disease and its symptoms. Also, as a rare disease, it can be difficult to enroll enough patients to conduct adequate research of new treatments, an

  • Global Myositis Patient Conference: TMA has convened myositis patients, care partners, and clinicians for a multi-day conference focused on learning and community-building since 1995. TMA's International Annual Patient Conference (IAPC) is now an annual event with panels of medical experts, peer counseling, sessions on coping skills, exercise workshops, and time to meet other patients and their families. The 2024 IAPC took place in Baltimore, Maryland, US, from Sept. 4-7. The conference included our first off-site medical and sightseeing excursions; TMA's Heroes in the Fight Awards; and a virtual recordings package to extend the reach of our conference breakout sessions. Many of TMA's members cannot travel, due to the progressively debilitating nature of their form of myositis. TMA offers the conference recordings at a discounted price to share the learnings from TMA's IAPC as widely and inclusively as possible.

    Expenses $527,150 · Grants $15,084 · Revenue $433,403

  • Research Grants: TMA aims to identify the underlying causes and natural progression of myositis, develop better treatments and more effective therapies, and ultimately to arrive at cures for this collection of disabling diseases. Through our research program, we progress toward a world without myositis. Twelve TMA grants were active in 2024. We continued our research fellowship program to attract and encourage post-doctoral trainees (PhD and MD) and early-career physicians to pursue careers in the field of myositis research, and funded innovative pilot projects. From 2002 to 2024, TMA has awarded 68 research grants totaling nearly $8 million. Two new projects were approved in 2024: "Senolytic therapies in a novel patient-derived myoblast model of inclusion body myositis and Mitochondrial contribution to juvenile dermatomyositis." The grants portfolio is designed to advance our collective understanding of inclusion body myositis, dermatomyositis, necrotizing myopathy, polymyositis, and all forms of myositis. Scientists, practicing physicians, and other medical professionals have supported TMA through our active Medical Advisory Board. This group provides medical information to staff and patients, and guides the TMA research program.

    Expenses $407,313 · Grants $316,132

  • Other Program Services: TMA's other initiatives are focused on awareness, advocacy, and clinician outreach. We are continually updating approximately 13,000 members through monthly e-newsletters, quarterly magazines, videos on YouTube, social media channels, and the highly trafficked website myositis.org. Our efforts to elevate the understanding of myositis among the general public are very important. Because these diseases are very rare, advocacy on behalf of the families affected by myositis is a core component of our mission. In 2024, we organized Myositis Awareness Month from May 1-31, 2024 and we participated in World Myositis Day on September 21, 2024. TMA also provides resources for healthcare professionals, to ensure that they receive the latest information on treating myositis and communicating effectively with their patients. We publish various resources, including our "Myositis 101" physician booklets, disease overview brochures, and infographics. In 2024, we hosted a myositis research symposium for physicians and experts during our Global Myositis Patient Conference; we co-hosted an Externally-Led Patient-Focused Drug Development meeting with regulatory decision-makers and MSU; and we co-hosted a summit featuring "Recent Advances in Myositis Research and Treatment" with the Cure Juvenile Myositis (JM) Foundation.

    Expenses $186,301

  • Patient Support and Education: TMA's Support Groups offer members the chance to share their feelings and discuss their concerns with people in similar situations. These groups, which are offered in-person and virtually, encourage an atmosphere of communication and compassion. TMA also administers Affinity Groups with outreach targeted toward supporting and extending our organization's reach into new communities. Through Affinity Groups, TMA brings together of people who have commonality such as Military Veterans, Women with IBM, Women of Color, Care Partners, and more. TMA's 36 regional Support Groups and 8 virtual Affinity Groups welcomed nearly 4,000 patients and care partners to group meetings in 2024. TMA's educational efforts, especially those organized during Myositis Awareness Month and World Myositis Day, create broader community awareness, direct our members to TMA offerings and resources, educate around patient and disease advocacy, share clinical insights, and build a stronger and more connected myositis community. TMA resources share information on diagnosis, treatments, research news, and other relevant topics that help patients and care partners learn what they need to address their individual health care concerns. TMA additionally hosts webinars year-round, including our monthly Ask the Expert series as well as Research Insights, Empowerment Clinic, and Awareness Clinic offerings. 1,399 registrants participated in TMA's virtual programs in 2024.

    Expenses $137,790

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Paula Eichenbrenner

    Executive Dir.

    Total calculated
    $180,562
    From this org
    $180,562
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $180,562
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported
    Nontaxable benefits
    not reported
    Filer's total
    $180,562

  • Laurie Boyer Chair

    Director

    Total calculated
    $0
    Hours/week
    3

  • Rich DeAugustinis Vice Chair

    Director

    Total calculated
    $0
    Hours/week
    1.5

  • Martha Arnold Secretary

    Director

    Total calculated
    $0
    Hours/week
    1.5

  • Howard Gerrin Treasurer

    Director

    Total calculated
    $0
    Hours/week
    1.5

  • Jeff Autrey

    Director

    Total calculated
    $0
    Hours/week
    0.5

  • Iazsmin Bauer Ventura

    Director

    Total calculated
    $0
    Hours/week
    0.5

  • Richard Chip Galloway

    Director

    Total calculated
    $0
    Hours/week
    0.5

  • Holly Jones

    Director

    Total calculated
    $0
    Hours/week
    0.5

  • Frank Lipiecki

    Director

    Total calculated
    $0
    Hours/week
    0.5

  • Ricky Marks

    Director

    Total calculated
    $0
    Hours/week
    0.5

  • David Mochel

    Director

    Total calculated
    $0
    Hours/week
    1.5

  • Tahseen Mozaffar

    Director

    Total calculated
    $0
    Hours/week
    0.5

  • Jane Myles

    Director

    Total calculated
    $0
    Hours/week
    0.5

  • Rodger Oren

    Director

    Total calculated
    $0
    Hours/week
    0.5

  • Meriel Parker

    Director

    Total calculated
    $0
    Hours/week
    0.5

  • Mustafa Shameem

    Director

    Total calculated
    $0
    Hours/week
    0.5

  • Nita Sharma

    Director

    Total calculated
    $0
    Hours/week
    0.5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $2,012,099
    Expenses
    $1,794,414
    Contributions
    $1,576,936
    Grants paid
    $331,216
  • 2023
    Revenue
    $1,249,899
    Expenses
    $1,888,477
    Contributions
    $1,189,812
    Grants paid
    $228,536
  • 2022
    Revenue
    $1,317,262
    Expenses
    $1,654,469
    Contributions
    $1,435,059
    Grants paid
    $332,573

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2024 · 990-T

    Revenue
    not reported
    Expenses
    not reported
    Assets (EOY)
    not reported

  • 2023 · 990-T

    Revenue
    not reported
    Expenses
    not reported
    Assets (EOY)
    not reported

  • 2021 · 990

    Revenue
    $1,770,917
    Expenses
    $1,269,788
    Assets (EOY)
    $2,957,547

  • 2020 · 990

    Revenue
    $1,179,750
    Expenses
    $1,183,055
    Assets (EOY)
    $2,242,240

  • 2019 · 990

    Revenue
    $1,016,099
    Expenses
    $1,622,977
    Assets (EOY)
    $2,226,058

  • 2018 · 990

    Revenue
    $1,762,199
    Expenses
    $1,584,809
    Assets (EOY)
    $2,838,260

  • 2017 · 990

    Revenue
    $1,757,990
    Expenses
    $1,753,124
    Assets (EOY)
    $2,707,789

  • 2016 · 990

    Revenue
    $1,399,213
    Expenses
    $1,544,574
    Assets (EOY)
    $2,607,075

  • 2015 · 990

    Revenue
    $1,530,309
    Expenses
    $1,378,390
    Assets (EOY)
    $2,693,796

  • 2014 · 990

    Revenue
    $2,704,998
    Expenses
    $1,337,435
    Assets (EOY)
    $2,600,936

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 26 October 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.