- Revenue 2023
- $41,252
- Expenses 2023
- $2,179,121
Program services were 0.0% of total expenses calculated — Part III's total program service expenses over total expenses, both as filed.
As filed
- Subsection
- 03
- Street
- 30 W GUDE DRIVE 150
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2023
Primary exempt purpose
WE IMPROVE THE LIVES OF PEOPLE LIVING WITH ALS BY PROVIDING A WIDE RANGE OF FREE SERVICES. WE ALSO SUPPORT WORLDWIDE RESEARCH TO FIND A CURE FOR ALS AND SPONSOR EDUCATIONAL AND ADVOCACY PROGRAMS TO BENEFIT THE ALS COMMUNITY.
-
CARE SERVICES - THE CHAPTER WORKS TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE LIVING WITH ALS BY PROVIDING A HOST OF FREE SERVICES. THESE SERVICES INCLUDE HOME VISITS, THAT WERE ELIMINATED IN 2020 AS A RESULT OF THE CORONA VIRUS, AND SUBSTITUTED BY TELEHEALTH COMMUNICATION WITH COORDINATORS, WHO PROVIDE CASE MANAGEMENT AND ASSISTANCE WITH BENEFIT APPLICATIONS, ASSISTIVE TECHNOLOGY LABS THAT PROVIDE ACCESS TO SPEECH GENERATING AND ENVIRONMENTAL CONTROL DEVICES, MULTIDISCIPLINARY CLINICS THAT ALLOW PATIENTS TO SEE IN ONE VISIT, A VARIETY OF HEALTHCARE CLINICIANS, EQUIPMENT LOAN CLOSETS THAT PROVIDE ACCESS TO ITEMS SUCH AS WHEELCHAIRS, WALKERS AND BEDS, SUPPORT GROUPS FOR PEOPLE WITH ALS AND CAREGIVERS, AND MUCH-NEEDED TRANSPORTATION GRANTS. THE CHAPTER ALSO HOSTS SEVERAL EVENTS THAT BRING PEOPLE WITH ALS AND THEIR FAMILIES TOGETHER TO RAISE AWARENESS FOR ALS IN ALL COMMUNITIES.
As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.
Officers and directors · 2023
As listed in Part VII of the 2023 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Robert RosemanROBERT ROSEMAN
CHAIR
- Total calculated
- $0
- Hours/week
- 4
-
Jeff BrainardJEFF BRAINARD
VICE CHAIR
- Total calculated
- $0
- Hours/week
- 2
-
Thomas MohlerTHOMAS MOHLER
SECRETARY
- Total calculated
- $0
- Hours/week
- 2
-
Scott GoldenSCOTT GOLDEN
TREASURER
- Total calculated
- $0
- Hours/week
- 2
-
Paull IngholtPAULL INGHOLT
PAST PRESIDENT
- Total calculated
- $0
- Hours/week
- 2
-
Richard BodsonRICHARD BODSON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Scott Bowan EvansSCOTT BOWAN EVANS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Karen CottrellKAREN COTTRELL
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Andrea KelleherANDREA KELLEHER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Betsy LichtscheinBETSY LICHTSCHEIN
DIRECTOR UNTIL MARCH 2023
- Total calculated
- $0
- Hours/week
- 2
-
David LoweDAVID LOWE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Craig RiceCRAIG RICE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2023
- Revenue
- $41,252
- Expenses
- $2,179,121
- Contributions
- $8,790
- Grants paid
- not reported
-
2022
- Revenue
- $116,491
- Expenses
- $118,147
- Contributions
- $78,655
- Grants paid
- $0
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $2,861,706
- Expenses
- $3,087,624
- Assets (EOY)
- $2,372,268
-
2020 · 990
- Revenue
- $3,381,394
- Expenses
- $2,625,270
- Assets (EOY)
- $2,467,584
-
2019 · 990
- Revenue
- $2,478,854
- Expenses
- $2,745,445
- Assets (EOY)
- $1,707,024
-
2018 · 990
- Revenue
- $2,764,791
- Expenses
- $2,667,280
- Assets (EOY)
- $2,030,309
-
2017 · 990
- Revenue
- $2,969,709
- Expenses
- $2,835,146
- Assets (EOY)
- $1,827,498
-
2016 · 990
- Revenue
- $2,625,297
- Expenses
- $2,762,111
- Assets (EOY)
- $1,686,671
-
2015 · 990
- Revenue
- $2,393,054
- Expenses
- $2,653,894
- Assets (EOY)
- $1,834,743
-
2014 · 990
- Revenue
- $3,131,731
- Expenses
- $2,280,188
- Assets (EOY)
- $1,972,413
-
2013 · 990
- Revenue
- $2,363,011
- Expenses
- $2,435,151
- Assets (EOY)
- $1,059,716
-
2012 · 990
- Revenue
- not reported
- Expenses
- $2,541,823
- Assets (EOY)
- $1,183,569
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.
Grants made
No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.
Grants received
-
2022 General Support
-
2023 GENERAL SUPPORT
-
2023 For grant recipient's exempt purposes
-
2022 For grant recipient's exempt purposes
-
2022 GENERAL SUPPORT
-
DONOR ADVISED CHARITABLE GIVING
$22,164
2022 HEALTH
-
2022 RAMP PROJECT
-
$15,250
2024 HUMAN SERVICES
-
2022 RESEARCH/PUBLICEDUCATION
-
DONOR ADVISED CHARITABLE GIVING
$10,600
2023 HEALTH
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Not present in the most recent drop.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2023, the newest we have parsed for this organization.