- Revenue 2024
- $456,038
- Expenses 2024
- $308,083
Program services were 60.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- Classification
- 1000
- Street
- 1 S DEARBORN ST STE 2000
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2024
Mission
3 FOLD MISSION OF SUPPORT, EDUCATION, AND RESEARCH. SUPPORT: TO HELP PATIENTS AND THEIR FAMILIES COPE WITH SCLERODERMA THROUGH MUTUAL SUPPORT PROGRAMS, PEER COUNSELING, PHYSICIAN REFERRALS, AND EDUCATIONAL INFORMATION. EDUCATION: TO PROMOTE PUBLIC AWARENESS AND EDUCATION THROUGH PATIENT AND HEALTH PROFESSIONAL SEMINARS, LITERATURE, AND PUBLICITY CAMPAIGNS. RESEARCH: TO STIMULATE AND SUPPORT RESEARCH TO IMPROVE TREATMENT AND ULTIMATELY FIND THE CAUSE OF AND CURE FOR SCLERODERMA AND RELATED DISEASES.
Activities or mission (Part I)
3 FOLD MISSION OF SUPPORT, EDUCATION, AND RESEARCH. SUPPORT: TO HELP PATIENTS AND THEIR FAMILIES COPE WITH SCLERODERMA THROUGH MUTUAL SUPPORT PROGRAMS, PEER COUNSELING, PHYSICIAN REFERRALS, AND EDUCATIONAL INFORMATION.
-
PATIENT SUPPORT ACTIVITIES AND EDUCATION DAYS, MAINTAINING HELPLINE, ANSWERING TELEPHONE AND WRITTEN INQUIRIES, DISTRIBUTE LITERATURE AND OTHER EDUCATIONAL MATERIALS, PUBLISHING NEWSLETTER.
Expenses $187,263 · Revenue $31,826
As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Dan ClarinDAN CLARIN
TREASURER
- Total calculated
- $0
- Hours/week
- 1
-
Jules CoganJULES COGAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
David HelfandDAVID HELFAND
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Cleetus FriedmanCLEETUS FRIEDMAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Tony CoganTONY COGAN
PRESIDENT
- Total calculated
- $0
- Hours/week
- 1
-
Carol GoldmanCAROL GOLDMAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Mary CarnsMARY CARNS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Peter GoldmanPETER GOLDMAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Julie L DrewniakJULIE L DREWNIAK
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Eliisa CapstickELIISA CAPSTICK
SECRETARY
- Total calculated
- $0
- Hours/week
- 1
-
Jennifer BrysonJENNIFER BRYSON
VICE PRESIDENT
- Total calculated
- $0
- Hours/week
- 1
-
Stephanie GreshSTEPHANIE GRESH
EXECUTIVE DIRECTOR
- Total calculated
- $112,426
- From this org
- $112,426
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $456,038
- Expenses
- $308,083
- Contributions
- $215,631
- Grants paid
- $0
-
2023
- Revenue
- $413,276
- Expenses
- $366,478
- Contributions
- $172,731
- Grants paid
- $83,780
-
2022
- Revenue
- $427,266
- Expenses
- $266,262
- Contributions
- $201,615
- Grants paid
- $14,823
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $389,268
- Expenses
- $303,970
- Assets (EOY)
- $3,677,722
-
2020 · 990
- Revenue
- $311,756
- Expenses
- $317,374
- Assets (EOY)
- $3,321,142
-
2019 · 990
- Revenue
- $494,234
- Expenses
- $453,049
- Assets (EOY)
- $3,029,419
-
2018 · 990
- Revenue
- $792,725
- Expenses
- $434,509
- Assets (EOY)
- $4,092,945
-
2017 · 990
- Revenue
- $3,135,356
- Expenses
- $1,320,428
- Assets (EOY)
- $3,505,765
-
2016 · 990
- Revenue
- $620,756
- Expenses
- $357,344
- Assets (EOY)
- $775,287
-
2015 · 990
- Revenue
- $323,630
- Expenses
- $237,551
- Assets (EOY)
- $591,391
-
2014 · 990
- Revenue
- $299,712
- Expenses
- $303,360
- Assets (EOY)
- $561,022
-
2013 · 990
- Revenue
- $245,408
- Expenses
- $199,817
- Assets (EOY)
- $509,419
-
2012 · 990
- Revenue
- not reported
- Expenses
- $321,668
- Assets (EOY)
- $468,310
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.
Grants made
-
$83,780
2023 FUND RESEARCH PROJECTS
-
$14,823
2022 FUND RESEARCH PROJECTS
Grants received
-
2022 For grant recipient's exempt purposes
-
2024 GENERAL SUPPORT
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 13 October 2026 and read 1 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.