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CURE LBSL

EIN 46-2829156 ARLINGTON, VA

Browse the largest nonprofits in Virginia

Revenue 2025
$651,672
Expenses 2025
$307,430

Program services were 100.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G129
Classification
1200
Street
3520 S WAKEFIELD ST

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2025

Mission

PROVIDE FUNDING TO RARE DISEASE RESEARCH AND SUPPORT AFFECTED FAMILIES

  • Cure LBSL's primary mission is to fund critical research into Leukoencephalopathy with Brain Stem and Spinal Cord Involvement and Lactate Elevation (LBSL), a rare genetic leukodystrophy. During 2025, the organization supported research initiatives designed to improve understanding of the disease, advance scientific knowledge of disease progression, and explore potential therapeutic approaches. Activities included support for natural history and qualitative patient studies as well as collaborations with academic and clinical research partners.

    Expenses $214,629 · Grants $141,768

  • Cure LBSL conducted an Externally-Led Patient Focused Drug Development meeting on August 1, 2025. This advocacy initiative gathered patient and caregiver perspectives regarding the impact of LBSL and provided information intended to support regulatory and therapeutic development efforts.

    Expenses $92,801

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Morgan Voigt

    EXECUTIVE DIRECTOR

    Total calculated
    $50,000
    From this org
    $50,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    30

  • Lance Stern

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Megan Mitchell

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Chris Gulugian

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Edward Blakely

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Elizabeth McGinn

    DIRECTOR

    Total calculated
    $0
    Hours/week
    15

  • Elizabeth Gulugian

    BOARD CHAIR

    Total calculated
    $0
    Hours/week
    5

  • Morgan Stern

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $651,672
    Expenses
    $307,430
    Contributions
    $629,886
    Grants paid
    $123,984
  • 2024
    Revenue
    $1,052,682
    Expenses
    $845,152
    Contributions
    $1,052,673
    Grants paid
    $636,000
  • 2024
    Revenue
    $1,052,682
    Expenses
    $845,152
    Contributions
    $1,052,673
    Grants paid
    $636,000
  • 2023
    Revenue
    $1,852,552
    Expenses
    $1,661,665
    Contributions
    $1,850,787
    Grants paid
    $1,502,459
  • 2022
    Revenue
    $1,410,138
    Expenses
    $1,319,933
    Contributions
    $1,410,137
    Grants paid
    $1,144,010

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $599,293
    Expenses
    $414,562
    Assets (EOY)
    $444,924

  • 2020 · 990

    Revenue
    $659,411
    Expenses
    $470,491
    Assets (EOY)
    $260,193

  • 2019 · 990

    Revenue
    $308,282
    Expenses
    $279,767
    Assets (EOY)
    $71,272

  • 2018 · 990

    Revenue
    $107,860
    Expenses
    $109,261
    Assets (EOY)
    $43,192

  • 2017 · 990-EZ

    Revenue
    $100,598
    Expenses
    $74,942
    Assets (EOY)
    $44,532

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Form 990-N e-Postcard, tax year 2016

Tax period
1 January 2016 to 31 December 2016
Principal officer
Michael McGinn
Mailing address
4414 36TH ST SArlington VA 22206
Website
www.acureforellie.org

As filed, from the IRS e-Postcard file of 9 November 2026. The IRS publishes only each organization's most recent postcard, so earlier years are not shown. A 990-N carries no financial detail. The postcard also gives the principal officer's address, which is not shown here.

Grants made

Where these grants went next →

Grants received

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.