- Revenue 2024
- $6,883,911
- Expenses 2024
- $15,111,434
Program services were 99.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- G12
- Classification
- 1000
- Street
- 1074 WOODWARD AVE
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
JENNIFER GILBERT
PRESIDENT
- Total calculated
- $0
- Hours/week
- 0.5
-
MATTHEW RIZIK
TREASURER & SECRETARY
- Total calculated
- $0
- Hours/week
- 0.5
-
JEFFREY MORGANROTH
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $6,883,911
- Expenses
- $15,111,434
- Contributions
- $8,840,638
- Grants paid
- $15,047,154
-
2023
- Revenue
- $9,521,090
- Expenses
- $5,386,586
- Contributions
- $11,290,238
- Grants paid
- $5,331,337
-
2022
- Revenue
- $8,115,909
- Expenses
- $4,721,535
- Contributions
- $9,827,323
- Grants paid
- $4,681,984
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Grants made
-
CHILDREN'S HOSPITAL OF PHILADELPHIA
$3,023,731
2024 SUPPORT FOR NEUROFIBROMATOSIS RESEARCH
-
$2,492,685
2024 SUPPORT FOR NEUROFIBROMATOSIS RESEARCH
-
$2,434,903
2022 SUPPORT FOR NEUROFIBROMATOSIS RESEARCH
-
$1,971,529
2023 SUPPORT FOR NEUROFIBROMATOSIS RESEARCH
-
$1,500,000
2024 SUPPORT FOR NEUROFIBROMATOSIS RESEARCH
-
$1,500,000
2022 SUPPORT FOR NEUROFIBROMATOSIS RESEARCH
-
$1,492,500
2023 SUPPORT FOR NEUROFIBROMATOSIS RESEARCH
-
UNIVERSITY OF ALABAMA AT BIRMINGHAM
$1,184,294
2024 SUPPORT FOR NEUROFIBROMATOSIS RESEARCH
-
$887,596
2024 SUPPORT FOR NEUROFIBROMATOSIS RESEARCH
-
CHILDREN'S HOSPITAL CORPORATION
$859,027
2024 SUPPORT FOR NEUROFIBROMATOSIS RESEARCH
The 10 largest by cash amount. The API serves every itemized grant.
Grants received
-
DONOR ADVISED CHARITABLE GIVING
$449,500
2023 HEALTH
-
DONOR ADVISED CHARITABLE GIVING
$344,250
2024 HEALTH
-
$325,100
2023 TO SUPPORT MEDICAL RESEARCH
-
$232,350
2022 TO SUPPORT MEDICAL RESEARCH
-
DONOR ADVISED CHARITABLE GIVING
$214,000
2022 HEALTH
-
2023 VOLUNTARY HEALTH ASSOICATIONS
-
2023 GENERAL SUPPORT
-
2024 For grant recipient's exempt purposes
-
2022 GENERAL SUPPORT
-
2024 VOLUNTARY HEALTH ASSOCIATIONS
The 10 largest by cash amount. The API serves every itemized grant.
Related organizations
From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.
Declared on its 2024 return
-
501(C)(3) · GRANTMAKING PRIVATE FOUNDATION · MI
-
501(C)(3) · GRANTMAKING PRIVATE FOUNDATION · MI
-
NICK GILBERT NEUROFIBROMATOSIS RESEARCH INSTITUE
501(C)(3) · NEUROFIBROMATOSIS RESEARCH · MI
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 10 September 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.