- Revenue 2024
- $1,530,721
- Expenses 2024
- $1,481,036
Program services were 87.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- G54Z
- Classification
- 1000
- Street
- 1501 REEDSDALE ST
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2024
Mission
PROVIDE PROGRAMS FOR THE DISTRIBUTION OF EDUCATIONAL MATERIALS AND RENDERING OF INFORMATIONAL SERVICES TO THE GENERAL PUBLIC TO FURTHER AN UNDERSTANDING OF EPILEPSY AND SUPPORT PATIENTS WHO ARE LIVING WITH EPILEPSY.
-
PATIENT SERVICES - RENDERING OF INDIVIDUALIZED CONSULTATIVE AND SUPPORT PROGRAMS THAT PROVIDE INDIVIDUAL ASSISTANCE TO PERSONS WHO HAVE EPILEPSY AND THEIR FAMILIES IN COPING WITH THE CONDITION.
Expenses $490,547
-
COMMUNITY SERVICES - RENDERING OF GROUP BASED SUPPORT SERVICES TO THE GENERAL PUBLIC, AND TO INDIVIDUALS AND FAMILIES AFFECTED BY EPILEPSY.
Expenses $465,868
-
PUBLIC HEALTH EDUCATION - DISTRIBUTION FO EDUCATION MATERIALS AND RENDERING OF INFORMATIONAL SERVICES TO THE GENERAL PUBLIC TO FURTHER AN UNDERSTANDING OF EPILEPSY.
Expenses $194,311
-
PROFESSIONAL EDUCATION AND TRAINING - RENDERING OF INFROMATIONAL SERVICES AND MATERIALS TO PHYSICIANS, NURSES, NURSE PRACTITIONERS, EDUCATORS AND ALLIED PROFESSIONALS.
Expenses $145,730
As filed on the 2024 return.
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
MARGARET JELLEY
PRESIDENT & CEO
- Total calculated
- $135,374
- From this org
- $113,200
- From related orgs
- $0
- Other
- $22,174
- Hours/week
- 40
-
MARCIA MARTIN
SECRETARY
- Total calculated
- $0
- Hours/week
- 1
-
JAY R BARKLEY
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
RUSS ALLEN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
JOYCE BENDER
CHAIRMAN
- Total calculated
- $0
- Hours/week
- 1
-
GLEN GOLDBACH
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
BRIAN HIMMEL ESQUIRE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
PATRICIA CRUMRINE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
EUGENE DEFRANK
TREASURER
- Total calculated
- $0
- Hours/week
- 1
-
CAROLE LANE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
GREG POLLOCK
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
VERONICA VILLALOBOS ESQUIRE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
DANIEL P ORIE ESQUIRE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
JAMES VALERIANO MD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
ANTHONY MUSMANNO
VICE CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
ANTO BAGIC MD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
KERRY MCQUONE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
CHRISTINA PICONE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
DEBORAH L RICE-JOHNSON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
ANDREA CARELLI
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $1,530,721
- Expenses
- $1,481,036
- Contributions
- $897,625
- Grants paid
- $100,446
-
2023
- Revenue
- $1,495,800
- Expenses
- $1,464,982
- Contributions
- $857,324
- Grants paid
- $71,259
-
2022
- Revenue
- $1,217,503
- Expenses
- $1,177,931
- Contributions
- $795,470
- Grants paid
- $68,280
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $1,484,033
- Expenses
- $1,179,298
- Assets (EOY)
- $6,030,931
-
2020 · 990
- Revenue
- $960,074
- Expenses
- $1,001,754
- Assets (EOY)
- $7,114,304
-
2019 · 990
- Revenue
- $1,349,984
- Expenses
- $1,406,659
- Assets (EOY)
- $5,770,303
-
2018 · 990
- Revenue
- $1,573,468
- Expenses
- $1,794,230
- Assets (EOY)
- $5,948,355
-
2016 · 990
- Revenue
- $2,265,470
- Expenses
- $1,614,393
- Assets (EOY)
- $5,993,023
-
2015 · 990
- Revenue
- $1,812,341
- Expenses
- $1,630,904
- Assets (EOY)
- $4,880,046
-
2014 · 990
- Revenue
- $2,288,287
- Expenses
- $1,485,035
- Assets (EOY)
- $5,029,442
-
2013 · 990
- Revenue
- $2,079,325
- Expenses
- $1,456,202
- Assets (EOY)
- $4,266,450
-
2012 · 990
- Revenue
- not reported
- Expenses
- $1,350,069
- Assets (EOY)
- $3,366,420
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.
Grants made
No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.
Grants received
-
$33,300
2022 SPECIFICALLY NAMED DISEASES
-
$32,600
2024 EPILEPSY RESEARCH
-
$25,000
2022 EPILEPSY RESEARCH
-
$25,000
2023 EPILEPSY RESEARCH
-
$22,000
2023 MEDICAL RESEARCH
-
2022 DONOR DESIGNATION
-
$18,200
2023 BUILD CAPACITY, TOOLS & RESOURCES
-
2023 DONOR DESIGNATION
-
$17,350
2024 BUILD CAPACITY, TOOLS & RESOURCES
-
2024 DONOR DESIGNATION
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 13 October 2026 and read 26 October 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.