- Revenue 2024
- $722,979
- Expenses 2024
- $1,194,522
Program services were 77.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- G12
- Classification
- 1000
- Street
- 3306 CHARLES PAGE BLVD SUITE 273
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
CHRIS OSTERTAG
CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
CHAD JOHNSON
SECRETARY
- Total calculated
- $0
- Hours/week
- 1
-
CORIN CHAPMAN
VICE CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
RYAN MAPLE
TREASURER 1/1 - 8/31
- Total calculated
- $0
- Hours/week
- 1
-
SARA KEAR
TREASURER 9/1-12/31
- Total calculated
- $0
- Hours/week
- 1
-
NATALIE CLOUSE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
MADELINE CORRIGAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
BRIAN TIMS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
KELLY DAUER-HUBSCHMITT
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
DAVID LAPIDUS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
JULIE GACNIK
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
ISABELLA PINA
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
LAUREN DRAPER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
MEGHAN MEYERS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
ANDREW LONGENECKER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
DAN BURNS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
CHRISTINE QUINN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
CHARINA RAMIREZ
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
KIM MARTINELLI
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
MELISSA BRYCE
DIRECTOR 9/1 - 12/31
- Total calculated
- $0
- Hours/week
- 0.5
-
MADELEINE BRYCE
DIRECTOR OF DEVELOPMENT
- Total calculated
- $76,923
- From this org
- $76,923
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
MELISSA BRYCE
EXECUTIVE DIRECTOR 1/1-8/31
- Total calculated
- $62,115
- From this org
- $62,115
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
RYAN MAPLE
EXECUTIVE DIRECTOR 9/1-12/31
- Total calculated
- $28,442
- From this org
- $28,442
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $722,979
- Expenses
- $1,194,522
- Contributions
- $671,239
- Grants paid
- $92,768
-
2023
- Revenue
- $660,533
- Expenses
- $840,138
- Contributions
- $643,524
- Grants paid
- $59,652
-
2022
- Revenue
- $815,854
- Expenses
- $1,150,024
- Contributions
- $799,711
- Grants paid
- $31,544
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Grants made
-
$92,768
2024 PATIENT - FOCUSED DRUG DEVELOPMENT IN PEROXISOMAL DISORDERS
-
$25,000
2023 GENERAL FUND
-
$21,710
2023 GENERAL FUND
-
2022 GENE THERPAY FOR ZELLWEGER SPECTURM DISORDERS-PEX 16 PROJECT
-
$12,942
2023 GENERAL FUND
Grants received
-
$125,887
2022 DONATION
-
$62,934
2022 UNRESTRICTED
-
$51,239
2023 UNRESTRICTED
-
$50,602
2023 SUPPORT RESEARCH, SCIENTIFIC COLLABORATION, AND EMPOWERING INDIVIDUALS THROUGH EDUCATION PROGRAMS RELATED TO PEROXISOMAL DISORDERS
-
$37,168
2024 UNRESTRICTED
-
$25,000
2024 DISEASE/DISORDER
-
CHARITIES AID FOUNDATION AMERICA
$23,395
2022 CHARITABLE DONATION
-
$20,000
2023 DISEASE/DISORDER
-
$12,345
2024 GENERAL SUPPORT
-
$10,000
2022 DISEASE/DISORDER
The 10 largest by cash amount. The API serves every itemized grant.
Related organizations
From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.
Declared on its 2024 return
-
501(C)(3) · INSPIRE JOY IN THE LIVES OF FAMILIES FACING RARE DISEASES THROUGH ART · OK
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 10 September 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.