- Revenue 2025
- $0
- Expenses 2025
- $541
Program services were 0.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- Street
- 1155 15th Street
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Officers and directors · 2025
As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Anthony Providenti
Board Chair
- Total calculated
- $0
- Hours/week
- 1
-
Tony Hung
Board Vice Chair
- Total calculated
- $0
- Hours/week
- 1
-
Hector Guinness
Treasurer
- Total calculated
- $0
- Hours/week
- 1
-
Chris Senna
Secretary
- Total calculated
- $0
- Hours/week
- 1
-
Beverly Paperiello
Director
- Total calculated
- $0
- Hours/week
- 1
-
Claudia Moreira
Director
- Total calculated
- $0
- Hours/week
- 1
-
Das Narayandas
Director
- Total calculated
- $0
- Hours/week
- 1
-
Jeff Strobel
Director
- Total calculated
- $0
- Hours/week
- 1
-
Karen Gaffney
Director
- Total calculated
- $0
- Hours/week
- 1
-
Lasandra Brill
Director
- Total calculated
- $0
- Hours/week
- 1
-
Ludivine van der Heyden
Director
- Total calculated
- $0
- Hours/week
- 1
-
Hampus Hillerstrom
President and CEO
- Total calculated
- $0
- Hours/week
- 40
-
Katherine O'Neill
VP Marketing & Community E
- Total calculated
- $0
- Hours/week
- 40
-
Lois Kelly
VP of Clinical Operations
- Total calculated
- $0
- Hours/week
- 40
-
Michelle Petronio
Chief Development Officer
- Total calculated
- $0
- Hours/week
- 40
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2025
- Revenue
- $0
- Expenses
- $541
- Contributions
- $0
- Grants paid
- $0
-
2024
- Revenue
- $2,759,719
- Expenses
- $3,286,372
- Contributions
- $2,705,416
- Grants paid
- $764,779
-
2023
- Revenue
- $4,039,327
- Expenses
- $3,991,706
- Contributions
- $4,044,988
- Grants paid
- $0
-
2022
- Revenue
- $3,159,544
- Expenses
- $3,979,523
- Contributions
- $3,191,064
- Grants paid
- $0
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Grants made
No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.
Grants received
-
2024 UNRESTRICTED GENERAL SUPPORT
-
DONOR ADVISED CHARITABLE GIVING
$101,500
2023 HEALTH
-
2023 GENERAL SUPPORT
-
$81,500
2024 DISEASE/DISORDER
-
DONOR ADVISED CHARITABLE GIVING
$77,460
2024 HEALTH
-
$65,000
2022 ALZHEIMER'S DISEASE RESEARCH RELATED TO DOWN SYNDROME
-
DONOR ADVISED CHARITABLE GIVING
$57,000
2022 HEALTH
-
2022 GENERAL SUPPORT
-
2023 For grant recipient's exempt purposes
-
2024 GENERAL SUPPORT
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Not present in the most recent drop.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.