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PRADER-WILLI SYNDROME ASSOCIATION

EIN 41-1306908 BRANDON, FL

Revenue 2025
$3,014,155
Expenses 2025
$2,681,770

Program services were 82.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
Classification
1200
Street
1032 E BRANDON BLVD 4744

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • MARGUERITE RUPNOW

    CHAIRMAN OF THE BOARD

    Total calculated
    $0
    Hours/week
    3

  • TINA IHENFELD

    TREASURER

    Total calculated
    $0
    Hours/week
    5

  • DENISE SERVAIS

    SECRETARY

    Total calculated
    $0
    Hours/week
    3

  • JEFFREY COVINGTON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • KATHRYN LUCERO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • ANN SCHEIMANN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • TIM HEARN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • CLINT HURDLE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • JOHN LENS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • MICHELLE TORBERT

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • LISA LAMB

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • MITCH COHEN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • MATT MCCLEERY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • STACY WARD

    CEO

    Total calculated
    $134,856
    From this org
    $134,856
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $3,014,155
    Expenses
    $2,681,770
    Contributions
    $2,666,053
    Grants paid
    $50,000
  • 2024
    Revenue
    $1,585,370
    Expenses
    $1,567,125
    Contributions
    $1,446,508
    Grants paid
    $12,905
  • 2023
    Revenue
    $1,577,352
    Expenses
    $1,847,424
    Contributions
    $1,353,277
    Grants paid
    $55,134
  • 2022
    Revenue
    $2,242,320
    Expenses
    $1,555,709
    Contributions
    $2,117,419
    Grants paid
    $129,812

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Grants made

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 10 September 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.