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SPINA BIFIDA ASSOCIATION OF AMERICA

EIN 58-1342181 ALEXANDRIA, VA

Revenue 2024
$1,942,830
Expenses 2024
$2,045,054

Program services were 80.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G55Z
Classification
1000
Street
2000 DUKE STREET 300

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • NANCY GORE

    CHAIR

    Total calculated
    $0
    Hours/week
    5

  • MARIA BOURNIAS ESQ CPA

    IMMEDIATE PAST CHAIR

    Total calculated
    $0
    Hours/week
    2

  • ERIC TOBIN

    CHAIR-ELECT

    Total calculated
    $0
    Hours/week
    2

  • ANSHUL VARMA

    SECRETARY/TREASURER

    Total calculated
    $0
    Hours/week
    2

  • MARIE THOMING PE

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    2

  • JAMES ARMIJO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • ROBIN M BOWMAN MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • TRACY DINUNZIO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • ELLEN FREMION MD FAAP FACP

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • CHASE PHILLIPS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • SHELIAH ROY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • KATHRYN ANN NAVARETTE SMITH RN MN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • BRYAN VODICKA

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • DAWNE WIDENER-BURROWS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • MELISSA WIEGEL

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JOHN WIENER MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • SARA STRUWE

    PRESIDENT AND CEO

    Total calculated
    $163,718
    From this org
    $139,468
    From related orgs
    $0
    Other
    $24,250
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $139,468
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $24,250
    Filer's total
    $163,718

  • MICHAEL WOOD

    CHIEF OPERATING OFFICER

    Total calculated
    $115,329
    From this org
    $95,445
    From related orgs
    $0
    Other
    $19,884
    Hours/week
    37.5

  • GLENRAE BROWN

    CHIEF FINANCIAL OFFICER

    Total calculated
    $138,276
    From this org
    $113,972
    From related orgs
    $0
    Other
    $24,304
    Hours/week
    37.5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $1,942,830
    Expenses
    $2,045,054
    Contributions
    $1,387,255
    Grants paid
    $0
  • 2023
    Revenue
    $2,834,510
    Expenses
    $3,175,550
    Contributions
    $2,142,601
    Grants paid
    $0
  • 2022
    Revenue
    $2,183,431
    Expenses
    $2,305,814
    Contributions
    $2,092,167
    Grants paid
    $37,427

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 10 September 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.