- Revenue 2025
- $1,283,221
- Expenses 2025
- $1,770,505
Program services were 81.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- H90
- Classification
- 1000
- Street
- 154 W 14TH STREET
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2025
Mission
THE ORGANIZATION'S MISSION IS TO FIGHT LYMPHATIC DISEASES AND LYMPHEDEMA THROUGH EDUCATION, RESEARCH AND ADVOCACY. THE ORGANIZATION SEEKS TO ACCELERATE THE PREVENTION, TREATMENT, AND CURE OF LYMPHATIC DISEASES WHILE BRINGING PATIENTS AND MEDICAL PROFESSIONALS TOGETHER TO ADDRESS THE UNMET NEEDS SURROUNDING LYMPHATIC DISORDERS.
Activities or mission (Part I)
THE ORGANIZATION'S MISSION IS TO FIGHT LYMPHATIC DISEASE AND LYMPHEDEMA THROUGH EDUCATION, RESEARCH AND ADVOCACY. THE ORGANIZATION SEEKS TO ACCELERATE THE PREVENTION, TREATMENT, AND CURE OF LYMPHATIC DISEASES WHILE BRINGING PATIENTS AND MEDICAL PROFESSIONALS TOGETHER TO ADDRESS THE UNMET NEEDS SURROUNDING LYMPHATIC DISORDERS.
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Some activities of the organization during 2025 include the following: LE&RN continued to expand programs to meet the goals of the expanded mission of fighting lymphatic disease through education, research, and advocacy. LE&RN continued its grant program, which allows young investigators to attend conferences focused on lymphatic research. LE&RN continued its educational and awareness outreach programs targeting academia, government, industry, and the medical and patient communities. LE&RN continued its monthly virtual symposium series, which brings the world's foremost authorities in lymphatic disease and lymphedema to patients, their families, and professionals. LE&RN updated its website and provided daily social media posts and monthly newsletters featuring significant events in the field. LE&RN produced six issues of Lymphatic Research and Biology, an international, peer-reviewedbiomedical journal providing a forum for the exchange of cutting-edge scientific developments in lymphatic science and medicine. LE&RN secured ongoing support from the Congressional and National Institutes of Health for lymphatic research. LE&RN continued the LE&RN/LymphNotes Lymphedema Scholarship Program to provide tuition support to therapists seeking certification in lymphedema therapy. LE&RN continued a web-based "Ask the Experts" feature that allows patients, their families, and professionals to ask the most prominent authorities in the field questions directly. LE&RN spokesperson and Academy Award Winner Kathy Bates appeared in print and television media to support research. LE&RN's Virtual Expo was expanded to better serve patients and therapists. LE&RN and NAVBO prepared a biennial Virtual Lymphatic Forum for researchers LE&RN developed new chapters in several states and countries. LE&RN continued to lead global events related to its establishment of World Lymphedema Day on March 6, 2016. LE&RN supported and grew its Centers of Excellence in the Diagnosis & Treatment of Lymphatic Diseases to 80 member institutions in over 20 countries. LE&RN, in collaboration with Stanford University, hosted the annual virtual State-of-the-Art Summit in Lymphatic Research & Medicine. LE&RN promoted its PSA video featuring National Spokesperson Kathy Bates, which was hosted on the Centers for Disease Control and Prevention (CDC) 's cancer-related websites. LE&RN continued its cancer-related lymphedema campaign. LE&RN succeeded in having the Congressionally Directed Medical Research Program (CDMRP) include lymphedema as a category in the Department of Defense's Peer Reviewed Medical Research Program (PRMRP). LE&RN successfully requested that Congress establish a National Commission on Lymphatic Diseases at the National Institutes of Health (NIH). LE&RN established a global Patient Resource Center. LE&RN expanded and updated its Global Patient Registry. LE&RN successfully advocated for a Program Manager in Lymphatics at the Advanced Research Agency for Health (ARPA-H) LE&RN, in concert with the research community, created a "Gaps in Lymphatic Research" document that was distributed to the NIH, CDC, ARPA-H, CDMRP, NNLBI, and NIAID. LE&RN hired its first full-time Vice President of Scientific Affairs and Science and Medical Director.
Expenses $1,442,732 · Grants $23,618 · Revenue $1,169,710
As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.
Officers and directors · 2025
As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
JOSEPH DAYAN MD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
DORON ILAN MD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
DAVE MCDOWELL
CHAIRPERSON
- Total calculated
- $0
- Hours/week
- 10
-
RICK PETTY
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
DEBBIE MILES
TREASURER
- Total calculated
- $0
- Hours/week
- 1
-
MELISSA ALDRICH PHD
SECRETARY
- Total calculated
- $0
- Hours/week
- 1
-
WILLIAM REPICCI
PRESIDENT & CEO
- Total calculated
- $372,407
- From this org
- $314,640
- From related orgs
- $0
- Other
- $57,767
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $283,640
- Bonus
- $0
- Other
- $31,000
- Deferred
- $30,000
- Nontaxable benefits
- $27,767
- Filer's total
- $372,407
-
Maria Celia Dupecher
Vice President for Scientific Affairs
- Total calculated
- $146,250
- From this org
- $146,250
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2025
- Revenue
- $1,283,221
- Expenses
- $1,770,505
- Contributions
- $1,142,651
- Grants paid
- $23,618
-
2025
- Revenue
- $1,283,221
- Expenses
- $1,770,505
- Contributions
- $1,142,651
- Grants paid
- $23,618
-
2024
- Revenue
- $1,755,810
- Expenses
- $1,651,386
- Contributions
- $1,558,455
- Grants paid
- $13,348
-
2023
- Revenue
- $1,476,365
- Expenses
- $1,736,198
- Contributions
- $1,391,048
- Grants paid
- $17,000
-
2022
- Revenue
- $1,462,533
- Expenses
- $1,490,145
- Contributions
- $1,346,987
- Grants paid
- $9,000
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $4,129,686
- Expenses
- $997,532
- Assets (EOY)
- $3,889,093
-
2020 · 990
- Revenue
- $894,003
- Expenses
- $731,503
- Assets (EOY)
- $654,052
-
2019 · 990
- Revenue
- $1,001,853
- Expenses
- $866,648
- Assets (EOY)
- $501,469
-
2018 · 990
- Revenue
- $912,615
- Expenses
- $867,921
- Assets (EOY)
- $352,714
-
2017 · 990
- Revenue
- $617,641
- Expenses
- $824,266
- Assets (EOY)
- $264,626
-
2016 · 990
- Revenue
- $635,364
- Expenses
- $927,227
- Assets (EOY)
- $435,545
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.
Grants made
No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.
Grants received
-
$140,000
2024 Cancer Programs
-
$75,000
2023 THE ORGANIZATION'S MISSION IS TO FIGHT LYMPHATIC DISEASES AND LYMPHEDEMA THROUGH EDUCATION, RESEARCH AND ADVOCACY. THE ORGANIZATION SEEKS TO ACCELERATE THE PREVENTION, TREATMENT, AND CURE OF LYMPHATIC DISEASES WHILE BRINGING PATIENTS AND MEDICAL PROFESSIONALS TOGETHER TO ADDRESS THE UNMET NEEDS SURROUNDING LYMPHATIC DISORDERS.
-
$64,041
2024 THE ORGANIZATION'S MISSION IS TO FIGHT LYMPHATIC DISEASES AND LYMPHEDEMA THROUGH EDUCATION, RESEARCH AND ADVOCACY. THE ORGANIZATION SEEKS TO ACCELERATE THE PREVENTION, TREATMENT, AND CURE OF LYMPHATIC DISEASES WHILE BRINGING PATIENTS AND MEDICAL PROFESSIONALS TOGETHER TO ADDRESS THE UNMET NEEDS SURROUNDING LYMPHATIC DISORDERS.
-
2024 DESIGNATED SUPPORT FOR GENERAL SUPPORT
-
DONOR ADVISED CHARITABLE GIVING
$15,178
2024 HEALTH
-
2022 For grant recipient's exempt purposes
-
2022 FOR RECIPIENT'S EXEMPT PURPOSE
-
$10,000
2022 HEALTH
-
$10,000
2024 HEALTH
-
2023 FOR GENERAL SUPPORT
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 13 October 2026 and read 23 October 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.