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INTERNATIONAL SOCIETY FOR FRONTOTEMPORAL DEMENTIAS INC

EIN 61-1581848 BURNSVILLE, MN

Revenue 2023
$134,293
Expenses 2023
$25,987

Program services were 78.1% of total expenses calculated — Part III's total program service expenses over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G96
Classification
1000
Street
14305 SOUTHCROSS DR W STE 100

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2023

As listed in Part VII of the 2023 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • John van Swieten

    President

    Total calculated
    $0
    Hours/week
    2

  • Olivier Piguet

    President-Elect

    Total calculated
    $0
    Hours/week
    1

  • Chiadi Onyike

    Chair Finance/Membership Committee

    Total calculated
    $0
    Hours/week
    1

  • Howie Rosen

    Elect Finance/Membership Committe

    Total calculated
    $0
    Hours/week
    1

  • Ian MacKenzie

    Chair Prog/Site/Selection Committee

    Total calculated
    $0
    Hours/week
    1

  • Manuela Neumann

    Elect Prog/Site/Selection Committee

    Total calculated
    $0
    Hours/week
    1

  • Carmela Tartaglia

    Chair Publication/Commun Committee

    Total calculated
    $0
    Hours/week
    1

  • Kyrana Tsapkini

    Elect Publication/Commun Committee

    Total calculated
    $0
    Hours/week
    1

  • Bernardino Ghetti

    Treasurer/Secretary

    Total calculated
    $0
    Hours/week
    2

  • David Casalod

    Executive Director

    Total calculated
    $0
    Hours/week
    2

  • Tessa Benitez

    Associate Executive Director

    Total calculated
    $0
    Hours/week
    2

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2023
    Revenue
    $134,293
    Expenses
    $25,987
    Contributions
    $93,491
    Grants paid
    not reported
  • 2022
    Revenue
    $28,638
    Expenses
    $38,652
    Contributions
    $698
    Grants paid
    not reported

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 10 September 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.