- Revenue 2023
- $5,110,030
- Expenses 2023
- $5,927,594
Program services were 69.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- E70
- Classification
- 1200
- Street
- 999 N CAPITOL ST NE STE 301
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2023
Mission
HEMOPHILIA FEDERATION OF AMERICA IS A NATIONAL NONPROFIT ORGANIZATION THAT ASSISTS, EDUCATES, AND ADVOCATES FOR THE BLEEDING DISORDERS COMMUNITY.
Activities or mission (Part I)
SEE PART III, LINE 1.
-
SYMPOSIUM CONFERENCE - A NATIONAL ANNUAL COMMUNITY-CERTIFICATION EDUCATIONAL CONFERENCE EVENT THAT DRAWS HUNDREDS OF PATIENTS AND THEIR FAMILIES.THIS CONFERENCE IS A PLACE WHERE COMMUNITY MEMBERS COME TOGETHER TO SHARE INFORMATION, LEARN ABOUT NEW ADVANCEMENT, AND BUILD A NETWORK OF SUPPORT.
Expenses $1,332,871 · Revenue $1,184,779
-
HFA RESEARCH - A COMMUNITY CENTERED, COMMUNITY FOCUSED, AND COMMUNITY DRIVEN PROGRAM AIMED AT IMPROVING THE LIVES OF BLEEDING DISORDERS COMMUNITY MEMBERS. RESEARCH TOPICS ARE IDENTIFIED BY THE COMMUNITY POPULATION AND FOCUSED ON PATIENT/COMMUNITY DATA. DATA IS COLLECTED NATIONALLY ONLINE AS WELL AS LOCALLY THROUGH HFA'S 50-PLUS MEMBER ORGANIZATIONS ACROSS THE COUNTRY.
Expenses $1,108,086 · Grants $402,523 · Revenue $132,666
-
OUTREACH - HELPS INDIVIDUALS WITH BLEEDING DISORDERS AND THEIR CAREGIVERS LEARN HOW TO BECOME ADVOCATES ON THEIR OWN BEHALF THROUGH IN-PERSON AND ONLINE TRAINING, TOOL KITS, AND WEB RESOURCES. EDUCATION AND TOOLS ARE PROVIDED TO PARTICIPATE IN MONITORING, LEARNING TO SELF-ADVOCATE, AND EDUCATING ABOUT FEDERAL AND STATE PUBLIC POLICIES THAT IMPACT THE LIVES OF PEOPLE LIVING WITH BLEEDIDNG DISORDERS. SOCIAL AND PRINT MEDIA ARE ACTIVELY UTILIZED TO EXTEND OUTREACH EFFORTS AND BRING COMMUNITY TOGETHER. FOUR PROGRAMS ARE INCLUDED IN OUTREACH: BLOOD BROTHERHOOD, BLOOD SISTERHOOD, HFA FAMILIES, AND OUTREACH EDUCATION.
Expenses $653,915
-
HELPING HANDS - DESIGNED TO ESTABLISH A RAPID, NON-INVASIVE SOURCE OF RELIEF FOR EMERGENCY SITUATIONS FOR INDIVIDUALS AND FAMILIES IN THE BLEEDING DISORDERS COMMUNITY. EACH APPLICATION IS GIVEN CAREFUL CONSIDERATION AS TO THE PERSONAL CIRCUMSTANCES, WHILE ENSURING A MINIMUM INVASION OF PRIVACY FOR COMMUNITY MEMBERS. THE PROGRAM ALSO ASSISTS INDIVIDUALS WITH THE COSTS OF MEDICALLY NECESSARY ITEMS AND DURABLE MEDICAL EQUIPMENT.
Expenses $465,875 · Grants $169,451
-
OTHER ACTIVITIES - PROVIDES EDUCATIONAL AND ARTISTIC SCHOLARSHIPS TO MEMBERS OF THE BLEEDING DISORDERS COMMUNITY, A RESOURCE GUIDE FOR THE CONSUMERS, AND MAINTAINS A WEBSITE WITH INFORMATION ABOUT THE ORGANIZATION'S PROGRAMS AND SERVICES. THE ORGANIZATION ALSO PUBLISHES A QUARTERLY NEWSLETTER CALLED "DATELINE FEDERATION". IN ADDITION, THE ORGANIZATION COVERS THE COST OF ATTENDANCE TO MEETINGS OF THE DEPARTMENT OF HEALTH AND HUMAN SERVICES, THE BLOOD PRODUCTS ADVISORY COMMITTEE OF THE FDA, AND THE ADVISORY COMMITTEE ON BLOOD SAFETY AND AVAILABILITY, AND PARTICIPATION IN CONFERENCES AT THE INVITATION OF THE CENTER FOR DISEASE CONTROL.
Expenses $312,742 · Revenue $124,500
-
GEARS FOR GOOD CHARITY BIKE RIDE - ENCOURAGES PEOPLE WITH BLEEDING DISORDERS TO LIVE HEALTHY, ACTIVE LIFESTYLES. GEARS FOR GOOD IS A CHARITY BIKE RIDE OFFERED TO RAISE FUNDS FOR THE HELPING HANDS PROGRAM. RIDERS ENJOY MEETING NEW PEOPLE AND BUILDING STRONGER FRIENDSHIPS ALONG THE WAY WHILE RAISING FUNDS FOR THIS IMPORTANT CAUSE.
Expenses $223,714 · Grants $13,000
As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.
Officers and directors · 2023
As listed in Part VII of the 2023 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
LUCAS RUNION
CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
JOSEPH MARKOWITZ
VICE-CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
ANNE-LOUISE WIRTHLIN
SECRETARY
- Total calculated
- $0
- Hours/week
- 1
-
GEORGE STONE
TREASURER - UNTIL 11/2023
- Total calculated
- $0
- Hours/week
- 1
-
THOMAS WALLACE
TREASURER - AS OF 11/2023
- Total calculated
- $0
- Hours/week
- 1
-
LYNNE CAPRETTO
DIRECTOR AND MOAC LIAISON
- Total calculated
- $0
- Hours/week
- 1
-
MARIA CHAVEZ
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
DAVID HUSKIE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
RENITA JOHNSON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
DIANE LIMA
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
DANIEL MIKKOLA
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
DANIEL KELSEY
PRESIDENT AND CEO - AS OF 04/2023
- Total calculated
- $158,102
- From this org
- $140,373
- From related orgs
- $0
- Other
- $17,729
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $140,373
- Bonus
- $0
- Other
- $0
- Deferred
- $8,375
- Nontaxable benefits
- $9,354
- Filer's total
- $158,102
-
BARBRA KAVANAUGH
INTERIM CEO - UNTIL 04/2023
- Total calculated
- $69,924
- From this org
- $69,924
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
TRACY CLEGHORN
PAST CHAIR
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2023
- Revenue
- $5,110,030
- Expenses
- $5,927,594
- Contributions
- $3,475,569
- Grants paid
- $584,974
-
2022
- Revenue
- $5,559,810
- Expenses
- $5,864,407
- Contributions
- $3,613,216
- Grants paid
- $851,801
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2023 · 990-T
- Revenue
- not reported
- Expenses
- not reported
- Assets (EOY)
- not reported
-
2022 · 990-T
- Revenue
- not reported
- Expenses
- not reported
- Assets (EOY)
- not reported
-
2021 · 990
- Revenue
- $5,475,706
- Expenses
- $4,515,451
- Assets (EOY)
- $9,019,153
-
2021 · 990
- Revenue
- $5,485,594
- Expenses
- $4,525,339
- Assets (EOY)
- $9,019,153
-
2020 · 990
- Revenue
- $6,415,247
- Expenses
- $5,248,685
- Assets (EOY)
- $8,150,051
-
2019 · 990
- Revenue
- $6,287,372
- Expenses
- $5,967,271
- Assets (EOY)
- $8,132,180
-
2018 · 990
- Revenue
- $5,583,851
- Expenses
- $5,446,618
- Assets (EOY)
- $6,329,926
-
2017 · 990
- Revenue
- $5,710,321
- Expenses
- $4,678,733
- Assets (EOY)
- $5,422,183
-
2016 · 990
- Revenue
- $5,229,652
- Expenses
- $3,736,967
- Assets (EOY)
- $4,388,925
-
2015 · 990
- Revenue
- $3,152,008
- Expenses
- $2,630,859
- Assets (EOY)
- $2,579,245
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.
Grants made
-
2023 BLEADERS RETREAT, HISPANIC HERITAGE SYMPOSIUM & VIRTUAL EVENTS IN SPANISH, VON WILLEBRAND DISEASE RETREAT, WOMEN'S RETREAT
-
2022 BUDGETING, YES YOU CAN (PART 2 OF 3),EVERYTHING CREDIT (PART 3 O 3) DEBRA JACOBS - EVENT 9/28/2022,FINANCIAL WELLNESS 101 (DEBRA JACOBS) PART 1/3,GAME OF LIFE 11/12/2022,INTENTIONAL TEAM BUILDING 11/12/2022,JOINT HEALTH WEBINAR - VIRTUAL,RAP SESSION - EVENT 5/21/2022,RAP SESSION - EVENT 5/21/2022,TEEN FITNESS 12/17/2022,WINTER HOLIDAY RAP SESSION 12/10/2022
-
2022 A PATHWAY FOR BEST CARE: THE REPRODUCTIVE YEARS - EVENT 5/14/2022,ADAPTING PHYSICAL ACTIVITIES FOR JOINT HEALTH,COOKING WITH CHEF MIKE - EVENT 1/8/2022,GOT STRESS SERIES - VIRTUAL EVENT OVER 3 WEEKS,RAP SESSION: CAREGIVERS - EVENT 5/14/2022,TASK MASTER & WHAT'S IN A CLOWNS DR. BAG
-
MIDWEST HEMOPHILIA ASSOCIATION V
$16,000
2022 12/13/22, FAMILES,4 SESSIONS: KINESIO TAPING, ADAPTING PHYSICAL ACTIVITIES FOR JOINT HEALTH, AND A PATHWAY FOR BEST CARE; THE REPRODUCTIVE YEARS,KINESIO TAPING,MENTAL HEALTH 101 - EVENT 5/14/2022,ON THE HORIZON/EMERGING THERAPIES,RAP SESSION: HEALTH & WELLNESS.
-
2022 BASICS OF SCHOOL ADVOCACY AND GOT STRESS? STRATEGIES FOR ANXIETY AND WORRY PRESENTED BY DR. JULIANA BLOOM,, PHD, BSIS RAP SESSION - ENGLISH - EVENT 3/19/2022, BSIS RAP SESSION - EVENT 3/19/2022,CARRIER GUILT & BALANCING FAMILY ISSUES,FINANCIAL WELLNESS 101, FACILITATED BY DEBRA JACOBS - EVENT 7/13/2022,MILD MATTERS, PRESENTED BY REBEKAH HECKATHORNE, RN
-
LOUISIANA HEMOPHILIA FOUNDATION
$16,000
2022 2 SESSIONS - MENTAL HEALTH 101 FOR TEENS & MY STORY OF RESILIENCE - EVENT 7/25/2022,2 SESSIONS: INTIMACY (COUPLES) AND RAP SESSION (INTIMACY),BLOOD SISTERHOOD PROGRAM OVERVIEW,IMPORTANCE OF COMMUNITY,IMPROV FOR TEENS CONNECTIONS & MENTAAL HEALTH, REAL TALK,
-
2022 A PATHWAY FOR BEST CARE,ADAPTING PHYSICAL ACTIVITIES FOR JOINT HEALTH - EVENT 8/13/2022,AGES AND STAGE; EARLY CHILDHOOD,MIND-BODY-HEART CONNECTION,MY STORY OR RESILIENCE & EMERGING THERAPIES,RAP SESSION,TRAUMA AND PTSD IN THE BLEEDING DISORDERS COMMUNITY.
-
$15,500
2023 MEN AND WOMEN'S CARE & CONNECTIONS PROGRAM, UHF 2023 FAMILY EDUCATION CONFERENCE, UHF SPRING EDUCATION MEETING
-
2023 2023 UNIDOS POR SANGRE COMMUNITY BUILDING, 2023 YOUTH LEADERSHIP DEVELOPMENT PROGRAM, FAMILY CAMP
-
2023 2023 COUPLES RETREAT, BLOOD BROTHERHOOD, NW WOMEN'S CONFERENCE
The 10 largest by cash amount. The API serves every itemized grant.
Grants received
-
2023 PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.
-
HEMOPHILIA ALLIANCE FOUNDATION
$10,000
2023 PROMOTE HEMOPHILIA
-
HEMOPHILIA ALLIANCE FOUNDATION
$10,000
2022 PROMOTE HEMOPHILIA
-
$6,595
2024 HFA APRIL 2023 SYMPOSIUM
-
$6,000
2023 HFA APRIL 2023 SYMPOSIUM
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 13 October 2026 and read 26 October 2026, for every organization at once. Returns through tax year 2023, the newest we have parsed for this organization.