- Revenue 2025
- $349,738
- Expenses 2025
- $329,642
Program services were 81.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- G20
- Classification
- 1000
- Street
- 122 HUNNS LAKE RD
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Officers and directors · 2025
As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Jill Kiernan
Executive Director
- Total calculated
- $78,280
- From this org
- $76,000
- From related orgs
- $0
- Other
- $2,280
- Hours/week
- 40
-
Kacee Richter
President
- Total calculated
- $0
- Hours/week
- 10
-
Kerry Grens
Vice President
- Total calculated
- $0
- Hours/week
- 5
-
Erin Rooker
Marketing Manager
- Total calculated
- $0
- Hours/week
- 5
-
Robert Thibodeau
Director
- Total calculated
- $0
- Hours/week
- 1
-
Tim Bernier
Treasurer
- Total calculated
- $0
- Hours/week
- 5
-
Zoe Wisnoski
Secretary
- Total calculated
- $0
- Hours/week
- 1
-
Monic Bejano
Director
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2025
- Revenue
- $349,738
- Expenses
- $329,642
- Contributions
- $314,482
- Grants paid
- $84,000
-
2024
- Revenue
- $270,669
- Expenses
- $399,562
- Contributions
- $181,535
- Grants paid
- $110,000
-
2023
- Revenue
- $309,002
- Expenses
- $333,744
- Contributions
- $279,571
- Grants paid
- $20,000
-
2022
- Revenue
- $165,360
- Expenses
- $157,087
- Contributions
- $163,592
- Grants paid
- $10,000
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Form 990-N e-Postcard, tax year 2019
- Tax period
- 1 January 2019 to 31 December 2019
- Principal officer
- Jill Rae Kiernan
- Mailing address
- 122 Hunns Lake RoadStanfordville NY 12581
- Website
- tbrsyndrome.org
As filed, from the IRS e-Postcard file of 12 October 2026. The IRS publishes only each organization's most recent postcard, so earlier years are not shown. A 990-N carries no financial detail. The postcard also gives the principal officer's address, which is not shown here.
Grants made
-
$75,000
2025 Research
-
$20,000
2023
-
$10,000
2024
-
$10,000
2022
-
Unravel Bioscience
$7,000
2025 Research
Grants received
-
$31,000
2022 Operating Support/Annual Fund
-
DONOR ADVISED CHARITABLE GIVING
$16,231
2024 HEALTH
-
2024 GENERAL SUPPORT
-
DONOR ADVISED CHARITABLE GIVING
$12,400
2023 HEALTH
-
DONOR ADVISED CHARITABLE GIVING
$10,834
2022 HEALTH
-
$10,000
2024 HEALTH
-
2022 For grant recipient's exempt purposes
-
2023 GENERAL SUPPORT
-
2023
-
$6,000
2023 GENERAL SUPPORT
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 10 September 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The IRS Business Master File ingested 5 October 2026, which is when the registration facts above were last refreshed for every organization. Returns through tax year 2025, the newest we have parsed for this organization.