- Revenue 2024
- $191,808
- Expenses 2024
- $292,975
Program services were 44.7% of total expenses calculated — Part III's total program service expenses over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- H54
- Classification
- 1200
- Street
- 1500 HEMPSTEAD TPKE
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2024
Primary exempt purpose
SEE SCHEDULE O
-
PROVIDE ADVOCACY, EDUCATION, AND INFORMATION REGARDING EPILEPSY TO INDIVIDUALS, FAMILIES, EDUCATORS, AND PRACTITIONERS. ANTI-STIGMA CAMPAIGNS ARE PROMOTED IN NASSAU AND SUFFOLK COUNTIES.
Expenses $131,028
As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
LISA BURCH
PRESIDENT/CEO (AS OF 02/24)
- Total calculated
- $0
- Hours/week
- 0.5
-
TOM HOPKINS
PRESIDENT/CEO (UNTIL 05/24)
- Total calculated
- $0
- Hours/week
- 0.5
-
JEFFREY NAGEL ESQ
CHAIR/DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
LAWRENCE BOORD
TREASURER
- Total calculated
- $0
- Hours/week
- 0.5
-
ROBERT KARSON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
DR JOSIANE LAJOIE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $191,808
- Expenses
- $292,975
- Contributions
- $98,106
- Grants paid
- not reported
-
2023
- Revenue
- $172,951
- Expenses
- $215,173
- Contributions
- $85,530
- Grants paid
- not reported
-
2022
- Revenue
- $184,252
- Expenses
- $150,109
- Contributions
- $122,177
- Grants paid
- not reported
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990-EZ
- Revenue
- $77,743
- Expenses
- $130,372
- Assets (EOY)
- $32,976
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.
Grants made
No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.
Grants received
-
$16,424
2024 GENERAL SUPPORT
Related organizations
From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.
Declared as related by
-
EPIC FAMILY OF HUMAN SERVICE AGENCIES
On its 2024 return as a controlled entity
-
On its 2024 return
Other IRS files
Auto-Revocation List
- Exemption revoked 15 May 2021, reinstated 15 May 2021.
Publication 78
Listed as of 13 October 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 13 October 2026 and read 26 October 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.