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Nonprofiteer
← CROHNS & COLITIS FOUNDATION INC

Form 990 for tax year 2024

Filed by CROHNS & COLITIS FOUNDATION INC.

This return was superseded by a later amendment. matched by us It is kept because history is preserved rather than replaced.

What the amendment changed

Compared with the latest return for 2024 , filed 4 February 2026. matched by us Only the return's totals, a 990-PF's accounting method and the names listed in Part VII (Part VIII on a 990-PF) are compared. We relate returns by organization, tax year and form, and order them by each return's own timestamp; the filer's own "amended return" checkbox is a separate fact.

Program services expenses
$58,415,959 changed to $67,988,912
Management and general expenses
$16,885,248 changed to $9,511,891
Fundraising expenses
$8,203,616 changed to $6,004,020
Program service expenses (Part III)
$58,415,959 changed to $67,988,912

Totals

Total revenue
$85,182,348
Total expenses
$83,504,823
Contributions and grants received
$73,888,862
Grants paid
$23,680,607
Program service revenue
$9,112,274
Investment income
$1,327,009
Other revenue
$854,203
Total assets, end of year
$50,647,406
Total liabilities, end of year
$47,415,737
Net assets or fund balances, end of year
$3,231,669
Program services expenses (Part IX)
$58,415,959
Management and general expenses
$16,885,248
Fundraising expenses
$8,203,616
Program service expenses (Part III)
$58,415,959

Program services were 70.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $1,121,690

  • 1c · Fundraising events

    $26,975,616

  • 1e · Government grants (contributions)

    $551,064

  • 1f · All other contributions, gifts and grants

    $45,240,492

  • 1g · Noncash contributions included above

    $1,435,765

  • 2a · Program service revenue: IBD PLEXUS DATABASE AC

    total $8,790,214 · related or exempt $8,790,214

  • 2b · Program service revenue: EDUCATION & CAMP REG.

    total $322,060 · related or exempt $322,060

  • 3 · Investment income

    total $182,204 · excluded $182,204

  • 5 · Royalties

    total $492,767 · excluded $492,767

  • 7a · Gross sales of assets other than inventory

    securities $14,491,590

  • 7b · Less cost or other basis and sales expenses

    securities $13,346,785

  • 7c · Gain or loss

    securities $1,144,805

  • 7d · Net gain or loss

    total $1,144,805 · excluded $1,144,805

  • 8a · Fundraising events: gross income

    $6,151,320

  • 8a · Fundraising events: contributions included on line 1c

    $26,975,616

  • 8b · Fundraising events: direct expenses

    $6,461,774

  • 8c · Net income from fundraising events

    total -$310,454 · excluded -$310,454

  • 9a · Gaming: gross income

    $623,279

  • 9b · Gaming: direct expenses

    $312,825

  • 9c · Net income from gaming

    total $310,454 · excluded $310,454

  • 11a · Other revenue: IBD JOURNAL STIPENDS

    total $333,309 · excluded $333,309

  • 11b · Other revenue: REBATES/REFUNDS

    total $14,189 · excluded $14,189

  • 11c · Other revenue: VEHICLE DONATION PRGM

    total $11,150 · excluded $11,150

  • 11d · All other revenue

    total $2,788 · excluded $2,788

  • 11e · Other revenue, total

    $361,436

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $20,231,236 · program services $20,231,236

  • 3 · Grants to foreign organizations and individuals

    total $3,449,371 · program services $3,449,371

  • 5 · Compensation of officers, directors and key employees

    total $3,008,862 · program services $1,895,583 · management and general $722,127 · fundraising $391,152

  • 7 · Other salaries and wages

    total $26,173,306 · program services $16,489,183 · management and general $6,281,593 · fundraising $3,402,530

  • 8 · Pension plan contributions

    total $1,258,979 · program services $793,157 · management and general $302,155 · fundraising $163,667

  • 9 · Other employee benefits

    total $5,031,245 · program services $3,169,684 · management and general $1,207,499 · fundraising $654,062

  • 10 · Payroll taxes

    total $3,660,596 · program services $2,306,176 · management and general $878,543 · fundraising $475,877

  • 11b · Fees: legal

    total $37,265 · management and general $37,265

  • 11c · Fees: accounting

    total $200,380 · management and general $200,380

  • 11d · Fees: lobbying

    total $101,800 · program services $101,800

  • 11e · Fees: professional fundraising services

    total $334,625 · fundraising $334,625

  • 11g · Fees: other

    total $7,856,576 · program services $2,826,489 · management and general $3,179,799 · fundraising $1,850,288

  • 12 · Advertising and promotion

    total $832,503 · program services $554,310 · management and general $170,544 · fundraising $107,649

  • 13 · Office expenses

    total $330,844 · program services $221,403 · management and general $67,092 · fundraising $42,349

  • 14 · Information technology

    total $2,075,033 · program services $1,762,676 · management and general $302,532 · fundraising $9,825

  • 16 · Occupancy

    total $1,597,179 · program services $1,062,733 · management and general $327,638 · fundraising $206,808

  • 17 · Travel

    total $760,301 · program services $520,283 · management and general $147,141 · fundraising $92,877

  • 19 · Conferences, conventions and meetings

    total $389,355 · program services $387,340 · management and general $1,235 · fundraising $780

  • 20 · Interest

    total $127,158 · management and general $127,158

  • 22 · Depreciation, depletion and amortization

    total $1,185,865 · program services $788,398 · management and general $243,664 · fundraising $153,803

  • 23 · Insurance

    total $443,197 · management and general $443,197

  • 24a · Other expenses: SOFTWARE LICENSES

    total $1,052,978 · management and general $1,052,978

  • 24b · Other expenses: DATABASE MANAGEMENT

    total $648,386 · management and general $648,386

  • 24c · Other expenses: PUBLICATIONS

    total $606,369 · program services $403,292 · management and general $124,495 · fundraising $78,582

  • 24d · Other expenses: POSTAGE

    total $368,278 · program services $245,424 · management and general $75,315 · fundraising $47,539

  • 24e · All other expenses

    total $1,743,136 · program services $1,207,421 · management and general $344,512 · fundraising $191,203

Balance sheet

Part X, book values.

  • 2 · Savings and temporary cash investments

    beginning of year $9,517,214 · end of year $11,093,876

  • 3 · Pledges and grants receivable

    beginning of year $12,397,945 · end of year $16,433,532

  • 4 · Accounts receivable

    beginning of year $2,024,846 · end of year $7,567,840

  • 8 · Inventories for sale or use

    beginning of year $328,281 · end of year $302,774

  • 9 · Prepaid expenses and deferred charges

    beginning of year $1,281,499 · end of year $1,248,306

  • 10a · Land, buildings and equipment: cost or other basis

    $12,854,367

  • 10b · Land, buildings and equipment: accumulated depreciation

    $8,028,066

  • 10c · Land, buildings and equipment, net

    beginning of year $6,000,274 · end of year $4,826,301

  • 11 · Investments: publicly traded securities

    beginning of year $12,848,228 · end of year $967,721

  • 12 · Investments: other securities

    beginning of year $581,681 · end of year $240,754

  • 15 · Other assets

    beginning of year $9,020,156 · end of year $7,966,302

  • 17 · Accounts payable and accrued expenses

    beginning of year $5,068,454 · end of year $5,019,918

  • 18 · Grants payable

    beginning of year $30,248,553 · end of year $28,564,769

  • 19 · Deferred revenue

    beginning of year $1,750,389 · end of year $5,345,469

  • 22 · Loans and payables to officers and key people

    end of year $600,000

  • 23 · Secured mortgages and notes payable

    beginning of year $5,989,390

  • 25 · Other liabilities

    beginning of year $8,978,528 · end of year $7,885,581

  • 27 · Net assets without donor restrictions

    beginning of year -$6,495,911 · end of year -$6,300,153

  • 28 · Net assets with donor restrictions

    beginning of year $8,460,721 · end of year $9,531,822

Mission and programs · 2024

Mission

FOR OVER FIVE DECADES, THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") HAS BEEN DEDICATED TO ITS MISSION OF FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS AND IMPROVING THE QUALITY OF LIFE OF CHILDREN AND ADULTS AFFECTED BY THESE DISEASES. (SEE SCHED O)THE FOUNDATION HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD").

Activities or mission (Part I)

TO CURE CROHN'S DISEASE AND ULCERATIVE COLITIS. (CONTINUED ON SCHEDULE O)OUR GOAL IS TO IMPROVE THE QUALITY OF LIFE OF CHILDREN AND ADULTS AFFECTED BY THESE DISEASES. THE FOUNDATION SPONSORS BASIC AND CLINICAL RESEARCH OF THE HIGHEST QUALITY. WE ALSO OFFER A WIDE RANGE OF EDUCATIONAL PROGRAMS FOR PATIENTS AND HEALTHCARE PROFESSIONALS, WHILE PROVIDING SUPPORTIVE SERVICES TO HELP PEOPLE COPE WITH THESE CHRONIC INTESTINAL DISEASES. THESE PROGRAMS ARE SUPPORTED SOLELY THROUGH OUR DONORS, GRANTS, FUNDRAISING EFFORTS, AND SPONSORS.

  • SINCE ITS INCEPTION, THE CROHN'S & COLITIS FOUNDATION HAS PROVIDED MORE THAN $500 MILLION FOR RESEARCH ON THE TREATMENT AND CURES OF IBD. THE FOUNDATION FUNDS A SET OF PRIORITY RESEARCH INITIATIVES: MULTI-INSTITUTIONAL, MULTI-DISCIPLINARY, COLLABORATIVE RESEARCH PROJECTS TARGETING AREAS OF SCIENCE WITH A HIGH PROBABILITY OF ADVANCING TREATMENT. THE FOUNDATION HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD"). (CONTINUED IN SCHEDULE O)THE FOUNDATION'S RESEARCH PORTFOLIO IS A COMBINATION OF BASIC, TRANSLATIONAL, AND CLINICAL RESEARCH. DESIGNED TO CUT YEARS OFF THE RESEARCH PROCESS, IBD PLEXUS, THE FOUNDATION'S INNOVATIVE RESEARCH PLATFORM, IS THE SINGLE LARGEST IBD DATABASE IN THE US AND THE MOST COMPREHENSIVE IBD DATABASE IN THE WORLD. IT CURRENTLY PROVIDES RESEARCHERS WITH DATA FROM OVER 30,000 PATIENTS, INCLUDING 250,000 BIOSAMPLES (BLOOD, STOOL, AND INTESTINAL TISSUE).THE FOUNDATION LEADS THE WAY IN NEW, CRITICALLY IMPORTANT AREAS OF IBD RESEARCH, AND ACCELERATING NOVEL THERAPIES AND INNOVATIVE PRODUCTS THAT ADDRESS UNMET PATIENT NEEDS. IN 2020, THE FOUNDATION LAUNCHED THE MOST EXTENSIVE IBD-FOCUSED PRECISION NUTRITION EFFORT, TO BETTER UNDERSTAND THE DIRECT IMPACT THAT FOOD MAY HAVE IN THE MANAGEMENT OF IBD AND ON PATIENT QUALITY OF LIFE. THE FOUNDATION ALSO LAUNCHED THE SURGICAL RESEARCH NETWORK, OUR FIRST-EVER COORDINATED-FUNDING EFFORT TO STUDY SURGICAL OUTCOMES IN IBD, WITH OVER 50 CENTERS PARTICIPATING.

    Expenses $34,993,675 · Grants $23,680,607 · Revenue $8,790,214

  • THE CROHN'S & COLITIS FOUNDATION PROVIDES INFORMATION AND EDUCATION FOR THE MILLIONS OF INDIVIDUALS WITH IBD AND THEIR LOVED ONES THROUGH A VARIETY OF CHANNELS AT THE NATIONAL AND LOCAL LEVEL INCLUDING IN-PERSON AND WEB-BASED EDUCATION, SUPPORT PROGRAMS INCLUDING PEDIATRIC AND ADULT FOCUS INITIATIVES, IBD HELP CENTER ANSWERING QUESTIONS AND PROVDING SUPPORT FOR THOSE WITH IBD, AND NUMEROUS PRINTED MATERIALS PROVIDINGACCURATE AND UP-TO-DATE INFORMATION. IN A RECENT IMPACT STUDY, OVER 85% OF PATIENTS CONNECTED WITH THE FOUNDATION STATED THAT THE FOUNDATION HAS HAD A POSITIVE IMPACT ON THEIR IBD JOURNEY. THESE PATIENTS ALSO REPORTED BETTER SYMPTOM CONTROL THAN NON-FOUNDATION CONNECTED PATIENTS. (CONTINUED IN SCHEDULE O)THE FOUNDATION ALSO OFFERS PROFESSIONAL EDUCATION THROUGH OUR TWO SCIENTIFIC JOURNALS, INFLAMMATORY BOWEL DISEASES AND CROHN'S & COLITIS 360, AS WELL AS THROUGH HEALTH PROFESSIONAL EDUCATION PROGRAMS BOTH IN-PERSON AND WEB-BASED. IN ADDITION THE FOUNDATION HOSTS THE ANNUAL CROHN'S & COLITIS CONGRESS CONFERENCE. IN THE PAST YEAR, THE FOUNDATION LAUNCHED A PUBLIC SERVICE AWARENESS CAMPAIGN TO INCREASE FAMILIARITY OF IBD WITH THE GENERAL PUBLIC AND REDUCE THE STIGMA FOR THOSE INDIVIDUALS WITH IBD.

    Expenses $23,422,284 · Revenue $322,060

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Michael Osso

    PRESIDENT/CEO(NON-VOTING)

    Total calculated
    $762,198
    From this org
    $604,255
    From related orgs
    $0
    Other
    $157,943
    Hours/week
    35

    Schedule J breakdown matched by us

    Base
    $479,255
    Bonus
    $0
    Other
    $125,000
    Deferred
    $129,750
    Nontaxable benefits
    $28,193
    Filer's total
    $762,198
  • Daniel Stone

    TREASURER

    Total calculated
    $0
    Hours/week
    1
  • Jodi Yellen

    SECRETARY (THRU 03/2024)

    Total calculated
    $0
    Hours/week
    1
  • Jeffrey Mittleman

    SECRETARY (AS OF 03/2024)

    Total calculated
    $0
    Hours/week
    1
  • Brent Polk MD

    CHAIRMAN (THRU 03/2024)

    Total calculated
    $0
    Hours/week
    1
  • Amber Backhaus

    CHAIRMAN (AS OF 03/2024)

    Total calculated
    $0
    Hours/week
    1
  • Rhonda Bolding

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Noel Brown

    TRUSTEE (AS OF 03/2024)

    Total calculated
    $0
    Hours/week
    1
  • John Capodiluno

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Chase Carpenter

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Rocio Castrillon

    TRUSTEE (AS OF 03/2024)

    Total calculated
    $0
    Hours/week
    1
  • Deborah Crawford

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Tolulope Falaiye MD

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Becky Flaherty

    TRUSTEE (AS OF 03/2024)

    Total calculated
    $0
    Hours/week
    1
  • Alex Funderburg

    TRUSTEE (THRU 03/2024)

    Total calculated
    $0
    Hours/week
    1
  • Cheryl Guerin

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Kevin Harlen

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Peter Higgins MD PhD Msc

    NSAC CHAIR ELECT

    Total calculated
    $0
    Hours/week
    1
  • Kelly Issokson Msrdcnsc

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Sean Kelley

    TRUSTEE (THRU 03/2024)

    Total calculated
    $0
    Hours/week
    1
  • Sandra Kim MD

    TRUSTEE (AS OF 03/2024)

    Total calculated
    $0
    Hours/week
    1
  • Michele Kissous-Hunt

    TRUSTEE (THRU 03/2024)

    Total calculated
    $0
    Hours/week
    1
  • Annette Martinez

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Audra Miller

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Joe Monk

    TRUSTEE (THRU 03/2024)

    Total calculated
    $0
    Hours/week
    1
  • Mark Murray PhD

    TRUSTEE (THRU 03/2024)

    Total calculated
    $0
    Hours/week
    1
  • Armin Rahmanian

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Megan Riehl Psyd

    TRUSTEE (AS OF 03/2024)

    Total calculated
    $0
    Hours/week
    1
  • Jonathan Rose

    TRUSTEE (AS OF 07/2024)

    Total calculated
    $0
    Hours/week
    1
  • David Rubin MD

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Frank Russomano

    TRUSTEE (THRU 03/2024)

    Total calculated
    $0
    Hours/week
    1
  • Lori Siegel Rabinowitz

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Andrew Stern

    TRUSTEE (AS OF 03/2024)

    Total calculated
    $0
    Hours/week
    1
  • Nicholas Uzl

    TRUSTEE (THRU 06/2024)

    Total calculated
    $0
    Hours/week
    1
  • Troy Vollertsen

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Douglas Wolf MD

    TRUSTEE (AS OF 03/2024)

    Total calculated
    $0
    Hours/week
    1
  • Sharon Lungrin

    CHIEF OP. OFF./CHIEF FIN.

    Total calculated
    $338,112
    From this org
    $267,379
    From related orgs
    $0
    Other
    $70,733
    Hours/week
    35

    Schedule J breakdown matched by us

    Base
    $267,379
    Bonus
    $0
    Other
    $0
    Deferred
    $9,663
    Nontaxable benefits
    $61,070
    Filer's total
    $338,112
  • Alan Moss

    CHIEF SCIENTIFIC OFFICER

    Total calculated
    $464,324
    From this org
    $450,466
    From related orgs
    $0
    Other
    $13,858
    Hours/week
    35

    Schedule J breakdown matched by us

    Base
    $450,466
    Bonus
    $0
    Other
    $0
    Deferred
    $10,125
    Nontaxable benefits
    $3,733
    Filer's total
    $464,324
  • Rohit Suri

    CHIEF TECHNOLOGY OFFICER

    Total calculated
    $383,145
    From this org
    $304,578
    From related orgs
    $0
    Other
    $78,567
    Hours/week
    35

    Schedule J breakdown matched by us

    Base
    $304,578
    Bonus
    $0
    Other
    $0
    Deferred
    $18,885
    Nontaxable benefits
    $59,682
    Filer's total
    $383,145
  • Allison Coffey

    CHIEF DEVELOPMENT OFFICER

    Total calculated
    $296,009
    From this org
    $273,205
    From related orgs
    $0
    Other
    $22,804
    Hours/week
    35

    Schedule J breakdown matched by us

    Base
    $273,205
    Bonus
    $0
    Other
    $0
    Deferred
    $19,058
    Nontaxable benefits
    $3,746
    Filer's total
    $296,009
  • Chris Fidyk

    EVP, BUSINESS DEVELOPMENT

    Total calculated
    $218,035
    From this org
    $213,952
    From related orgs
    $0
    Other
    $4,083
    Hours/week
    35

    Schedule J breakdown matched by us

    Base
    $213,952
    Bonus
    $0
    Other
    $0
    Deferred
    $2,138
    Nontaxable benefits
    $1,945
    Filer's total
    $218,035
  • Christy Desantis

    CHIEF MKTNG. & COMM. OFFCR.

    Total calculated
    $283,615
    From this org
    $256,701
    From related orgs
    $0
    Other
    $26,914
    Hours/week
    35

    Schedule J breakdown matched by us

    Base
    $256,701
    Bonus
    $0
    Other
    $0
    Deferred
    $5,200
    Nontaxable benefits
    $21,714
    Filer's total
    $283,615
  • Laura Wingate

    CHIEF EDU. SUPP. & ADVOC. OFFICER

    Total calculated
    $263,424
    From this org
    $219,544
    From related orgs
    $0
    Other
    $43,880
    Hours/week
    35

    Schedule J breakdown matched by us

    Base
    $219,544
    Bonus
    $0
    Other
    $0
    Deferred
    $15,866
    Nontaxable benefits
    $28,014
    Filer's total
    $263,424
  • Sarah Weaver

    VP, CLINICAL QUALITY & INNOVATION

    Total calculated
    $223,117
    From this org
    $206,702
    From related orgs
    $0
    Other
    $16,415
    Hours/week
    35

    Schedule J breakdown matched by us

    Base
    $206,702
    Bonus
    $0
    Other
    $0
    Deferred
    $12,736
    Nontaxable benefits
    $3,679
    Filer's total
    $223,117
  • Angela Dobes

    VICE PRESIDENT, IBD PLEXUS

    Total calculated
    $276,871
    From this org
    $259,396
    From related orgs
    $0
    Other
    $17,475
    Hours/week
    35

    Schedule J breakdown matched by us

    Base
    $259,396
    Bonus
    $0
    Other
    $0
    Deferred
    $13,796
    Nontaxable benefits
    $3,679
    Filer's total
    $276,871
  • Marisa Mayer

    CHIEF LEGAL OFFICER

    Total calculated
    $336,231
    From this org
    $259,396
    From related orgs
    $0
    Other
    $76,835
    Hours/week
    35

    Schedule J breakdown matched by us

    Base
    $259,396
    Bonus
    $0
    Other
    $0
    Deferred
    $18,909
    Nontaxable benefits
    $57,926
    Filer's total
    $336,231
  • Leana Patel

    VP, PEOPLE & CULTURE

    Total calculated
    $228,886
    From this org
    $202,086
    From related orgs
    $0
    Other
    $26,800
    Hours/week
    35

    Schedule J breakdown matched by us

    Base
    $202,086
    Bonus
    $0
    Other
    $0
    Deferred
    $6,126
    Nontaxable benefits
    $20,674
    Filer's total
    $228,886
  • Jack Matarasso

    SVP, DIGITAL MARKETING

    Total calculated
    $218,625
    From this org
    $202,684
    From related orgs
    $0
    Other
    $15,941
    Hours/week
    35

    Schedule J breakdown matched by us

    Base
    $202,684
    Bonus
    $0
    Other
    $0
    Deferred
    $12,087
    Nontaxable benefits
    $3,854
    Filer's total
    $218,625

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Independent compensation consultant
  • 3 · Form 990 of other organizations
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee
  • 4b · Supplemental nonqualified retirement plan

Answered no

  • 4a · Severance or change-of-control payment
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 3
THE CROHN'S & COLITIS FOUNDATION IS DEPENDENT ON EXPERIENCED AND QUALIFIED LEADERSHIP TO ACHIEVE ITS GOALS. FACTORS SUCH AS ANNUAL GROSS REVENUES, MISSION EXPENDITURES, GEOGRAPHIC LOCATION, TENURE, AND INDIVIDUAL PERFORMANCE HELP DETERMINE SENIOR LEADERSHIP COMPENSATION. THE PRESIDENT'S COMPENSATION IS DETERMINED ON AN ANNUAL BASIS BY THE CHAIRMAN OF THE BOARD WITH APPROVAL BY THE COMPENSATION AND BENEFITS COMMITTEE USING GUIDELINES AND COMPARABLE DATA PROVIDED IN NATIONAL COMPENSATION STUDIES OF EXECUTIVES. THE FOUNDATION HAS AN INDEPENDENT COMPENSATION CONSULTANT TO REVIEW AND VALIDATE THE COMPENSATION IT PAYS ITS EMPLOYEES. THE FOUNDATION'S PRACTICE WILL BE TO CONTINUE TO RELY ON THE MOST RECENT SURVEY AND OTHER INDUSTRY DATA COMPARING THE COMPENSATION THE FOUNDATION PAYS TO ITS EMPLOYEES WITH COMPENSATION PAID TO EMPLOYEES OF OTHER NOT FOR PROFIT ORGANIZATIONS OF SIMILAR SIZE. THE ORGANIZATION COMMISSIONED ITS LAST STUDY IN 2021.
PART I, LINE 4B
IN CALENDAR YEAR 2024, THE PRESIDENT RECEIVED A PAYOUT FROM THE 457(F) PLAN IN THE AMOUNT OF $125,000. THIS AMOUNT IS REPORTED IN SCHEDULE J, PART (III) AND, LIKEWISE, IN COLUMN (F) TO REFLECT THAT IT WAS REPORTED AS DEFERRED COMPENSATION ON PRIOR YEAR FORM 990'S. PRESIDENT OSSO'S PARTICIPATION IN THE SECTION 457(F) PLAN TERMINATED WITH THE FINAL PAYOUT IN 2024.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2024
Filed
10 November 2025
IRS schema version
2024v5.2
Source object
202513159349302411

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