Totals
- Total revenue
- $2,179,789
- Total expenses
- $1,770,153
- Contributions and grants received
- $2,089,809
- Grants paid
- $25,000
- Program service revenue
- $0
- Investment income
- $166,851
- Other revenue
- -$76,871
- Total assets, end of year
- $3,761,480
- Total liabilities, end of year
- $301,915
- Net assets or fund balances, end of year
- $3,459,565
- Program services expenses (Part IX)
- $1,630,539
- Management and general expenses
- $69,807
- Fundraising expenses
- $69,807
- Program service expenses (Part III)
- $1,630,539
Program services were 92.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$140,510
-
1f · All other contributions, gifts and grants
$1,949,299
-
3 · Investment income
total $166,851 · excluded $166,851
-
8a · Fundraising events: gross income
$46,205
-
8a · Fundraising events: contributions included on line 1c
$140,510
-
8b · Fundraising events: direct expenses
$132,669
-
8c · Net income from fundraising events
total -$86,464 · excluded -$86,464
-
11a · Other revenue: OTHER
total $9,593 · excluded $9,593
-
11e · Other revenue, total
$9,593
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $25,000 · program services $25,000
-
5 · Compensation of officers, directors and key employees
total $371,958 · program services $342,202 · management and general $14,878 · fundraising $14,878
-
7 · Other salaries and wages
total $673,822 · program services $619,916 · management and general $26,953 · fundraising $26,953
-
8 · Pension plan contributions
total $8,317 · program services $7,651 · management and general $333 · fundraising $333
-
9 · Other employee benefits
total $34,993 · program services $32,195 · management and general $1,399 · fundraising $1,399
-
10 · Payroll taxes
total $97,063 · program services $89,297 · management and general $3,883 · fundraising $3,883
-
11b · Fees: legal
total $6,265 · program services $5,763 · management and general $251 · fundraising $251
-
11c · Fees: accounting
total $40,380 · program services $37,150 · management and general $1,615 · fundraising $1,615
-
11g · Fees: other
total $335,802 · program services $308,938 · management and general $13,432 · fundraising $13,432
-
12 · Advertising and promotion
total $3,635 · program services $3,345 · management and general $145 · fundraising $145
-
13 · Office expenses
total $37,692 · program services $34,676 · management and general $1,508 · fundraising $1,508
-
14 · Information technology
total $8,547 · program services $7,863 · management and general $342 · fundraising $342
-
16 · Occupancy
total $28,580 · program services $26,294 · management and general $1,143 · fundraising $1,143
-
19 · Conferences, conventions and meetings
total $33,163 · program services $30,509 · management and general $1,327 · fundraising $1,327
-
22 · Depreciation, depletion and amortization
total $1,220 · program services $1,122 · management and general $49 · fundraising $49
-
23 · Insurance
total $1,697 · program services $1,561 · management and general $68 · fundraising $68
-
24a · Other expenses: MEETINGS/EDUCATIONAL SE
total $43,608 · program services $40,120 · management and general $1,744 · fundraising $1,744
-
24b · Other expenses: COMMUNICATIONS
total $12,143 · program services $11,171 · management and general $486 · fundraising $486
-
24c · Other expenses: PRINTING & PUBLICATIONS
total $3,792 · program services $3,488 · management and general $152 · fundraising $152
-
24d · Other expenses: POSTAGE
total $2,476 · program services $2,278 · management and general $99 · fundraising $99
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year -$1
-
2 · Savings and temporary cash investments
beginning of year $864,659 · end of year $623,636
-
4 · Accounts receivable
beginning of year $60,910 · end of year $213,354
-
9 · Prepaid expenses and deferred charges
beginning of year $2,382 · end of year $7,123
-
10a · Land, buildings and equipment: cost or other basis
$42,306
-
10b · Land, buildings and equipment: accumulated depreciation
$36,226
-
10c · Land, buildings and equipment, net
beginning of year $410 · end of year $6,080
-
11 · Investments: publicly traded securities
beginning of year $2,240,613 · end of year $2,868,450
-
15 · Other assets
beginning of year $75,073 · end of year $42,837
-
17 · Accounts payable and accrued expenses
beginning of year $212,537 · end of year $263,119
-
25 · Other liabilities
beginning of year $70,986 · end of year $38,796
-
27 · Net assets without donor restrictions
beginning of year $2,396,817 · end of year $2,432,060
-
28 · Net assets with donor restrictions
beginning of year $563,706 · end of year $1,027,505
Mission and programs · 2024
Mission
ENHANCING SURVIVAL AND QUALITY OF LIFE FOR PEOPLE LIVING WITH GIST AND OTHER RARE CANCERS THROUGH PATIENT-POWERED RESEARCH, EDUCATION, EMPOWERMENT AND GLOBAL ADVOCACY EFFORTS.
Activities or mission (Part I)
ENHANCING SURVIVAL AND QUALITY OF LIFE FOR PEOPLE LIVING WITH GIST AND OTHER RARE CANCERS THROUGH PATIENT-POWERED RESEARCH, EDUCATION, EMPOWERMENT AND GLOBAL ADVOCACY EFFORTS. THE VISION IS TO CHAMPION PATIENT-POWERED SCIENCE AND DRASTICALLY INCREASE LONG-TERM SURVIVORSHIP FOR GIST CANCER PATIENTS.
-
RESEARCH: WE FUND AND MANAGE UNIQUELY COORDINATED RESEARCH INITIATIVES THAT ALWAYS KEEP THE NEEDS OF GIST PATIENTS FOREMOST. THE LIFE RAFT GROUP (LRG) CONTINUES TO LEAD A COLLABORATIVE TEAM OF WORLD-RENOWNED SCIENTISTS AND CLINICIANS IN GIST. LRG HAS THE LARGEST GIST PATIENT REGISTRY IN THE WORLD. OUR RESEARCH PARADIGM IS PATIENT-POWERED SCIENCE FOR LIFE. A COMPREHENSIVE APPROACH THAT COMPLIMENTS TRADITIONAL RESEARCH WITH REAL WORLD EVIDENCE SUPPORTED BY DATA.
Expenses $1,141,896 · Grants $25,000
-
INFORMATION, EDUCATION, ADVOCACY, OUTREACH & ENGAGEMENT: THE LRG PROVIDES SUPPORT, INTERVENTION, EDUCATION AND ADVOCACY TO GIST PATIENTS, THEIR FAMILIES, AND CAREGIVERS. LOCAL SUPPORT IS AVAILABLE TO THE GIST COMMUNITY THROUGH A NETWORK OF LRG MENTORS AND VOLUNTEERS. OUR EDUCATION PROGRAMS ARE OFFERED WORLDWIDE. OUR GIST DAYS OF LEARNING ANDOUR BIENNIAL LIFE FEST EVENT GATHER EXPERTS FROM ACROSS THE GLOBE TO BRING THE MOST UP TO DATE INFORMATION ON GIST RESEARCH, EMERGING THERAPIES AND UPDATES ON THE WORLD OF GIST. OUR OUTREACH AND ENGAGEMENT EFFORTS ALSO INCLUDE PATIENT SUPPORT GROUPS, FOCUS GROUPS, MONTHLY WEBCASTS, OUR WEBSITE, ACCESS TO OUR CLINICAL TRIALS DATABASE AND OUR WORLDWIDE GIST SPECIALIST DATABASE. EXPERT PATIENT TRAINING IS OFFERED TO ALL MEMBERS.
Expenses $488,643
As filed on the 2024 return.
Listed in Part VII
-
Stan BunnSTAN BUNN
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Jim HughesJIM HUGHES
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Christa PereiraCHRISTA PEREIRA
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
John AbramsJOHN ABRAMS
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Teena PetersohnTEENA PETERSOHN
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Gary GlasserGARY GLASSER
PRESIDENT
- Total calculated
- $0
- Hours/week
- 1
-
Steve PontellSTEVE PONTELL
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Kay StolzerKAY STOLZER
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Dr Monica AndersonDR MONICA ANDERSON
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Santy DisabatinoSANTY DISABATINO
BOARD MEMBER & TREASURER
- Total calculated
- $0
- Hours/week
- 1
-
Patricia Bonda-SwensonPATRICIA BONDA-SWENSON
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Bill BorwegenBILL BORWEGEN
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Robin EliaROBIN ELIA
CONTROLLER
- Total calculated
- $77,776
- From this org
- $73,829
- From related orgs
- $0
- Other
- $3,947
- Hours/week
- 30
-
Laura OcchiuzziLAURA OCCHIUZZI
DEPUTY EXECUTIVE DIRECTOR
- Total calculated
- $138,936
- From this org
- $131,915
- From related orgs
- $0
- Other
- $7,021
- Hours/week
- 35
-
Sara RothschildSARA ROTHSCHILD
EXECUTIVE DIRECTOR
- Total calculated
- $155,246
- From this org
- $144,660
- From related orgs
- $0
- Other
- $10,586
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $144,660
- Bonus
- $0
- Other
- $0
- Deferred
- $3,986
- Nontaxable benefits
- $6,600
- Filer's total
- $155,246
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
- 3 · Approval by the board or compensation committee
Answered no
- 4a · Severance or change-of-control payment
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
-
RESEARCH GRANT
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 17 November 2025
- IRS schema version
- 2024v5.2
- Source object
- 202513219349320781
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