- Revenue 2024
- $2,179,789
- Expenses 2024
- $1,770,153
Program services were 92.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- G70
- Classification
- 1200
- Street
- US HIGHWAY 46 WEST SUITE 202
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2024
Mission
ENHANCING SURVIVAL AND QUALITY OF LIFE FOR PEOPLE LIVING WITH GIST AND OTHER RARE CANCERS THROUGH PATIENT-POWERED RESEARCH, EDUCATION, EMPOWERMENT AND GLOBAL ADVOCACY EFFORTS.
Activities or mission (Part I)
ENHANCING SURVIVAL AND QUALITY OF LIFE FOR PEOPLE LIVING WITH GIST AND OTHER RARE CANCERS THROUGH PATIENT-POWERED RESEARCH, EDUCATION, EMPOWERMENT AND GLOBAL ADVOCACY EFFORTS. THE VISION IS TO CHAMPION PATIENT-POWERED SCIENCE AND DRASTICALLY INCREASE LONG-TERM SURVIVORSHIP FOR GIST CANCER PATIENTS.
-
RESEARCH: WE FUND AND MANAGE UNIQUELY COORDINATED RESEARCH INITIATIVES THAT ALWAYS KEEP THE NEEDS OF GIST PATIENTS FOREMOST. THE LIFE RAFT GROUP (LRG) CONTINUES TO LEAD A COLLABORATIVE TEAM OF WORLD-RENOWNED SCIENTISTS AND CLINICIANS IN GIST. LRG HAS THE LARGEST GIST PATIENT REGISTRY IN THE WORLD. OUR RESEARCH PARADIGM IS PATIENT-POWERED SCIENCE FOR LIFE. A COMPREHENSIVE APPROACH THAT COMPLIMENTS TRADITIONAL RESEARCH WITH REAL WORLD EVIDENCE SUPPORTED BY DATA.
Expenses $1,141,896 · Grants $25,000
-
INFORMATION, EDUCATION, ADVOCACY, OUTREACH & ENGAGEMENT: THE LRG PROVIDES SUPPORT, INTERVENTION, EDUCATION AND ADVOCACY TO GIST PATIENTS, THEIR FAMILIES, AND CAREGIVERS. LOCAL SUPPORT IS AVAILABLE TO THE GIST COMMUNITY THROUGH A NETWORK OF LRG MENTORS AND VOLUNTEERS. OUR EDUCATION PROGRAMS ARE OFFERED WORLDWIDE. OUR GIST DAYS OF LEARNING ANDOUR BIENNIAL LIFE FEST EVENT GATHER EXPERTS FROM ACROSS THE GLOBE TO BRING THE MOST UP TO DATE INFORMATION ON GIST RESEARCH, EMERGING THERAPIES AND UPDATES ON THE WORLD OF GIST. OUR OUTREACH AND ENGAGEMENT EFFORTS ALSO INCLUDE PATIENT SUPPORT GROUPS, FOCUS GROUPS, MONTHLY WEBCASTS, OUR WEBSITE, ACCESS TO OUR CLINICAL TRIALS DATABASE AND OUR WORLDWIDE GIST SPECIALIST DATABASE. EXPERT PATIENT TRAINING IS OFFERED TO ALL MEMBERS.
Expenses $488,643
As filed on the 2024 return.
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Stan BunnSTAN BUNN
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Jim HughesJIM HUGHES
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Christa PereiraCHRISTA PEREIRA
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
John AbramsJOHN ABRAMS
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Teena PetersohnTEENA PETERSOHN
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Gary GlasserGARY GLASSER
PRESIDENT
- Total calculated
- $0
- Hours/week
- 1
-
Steve PontellSTEVE PONTELL
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Kay StolzerKAY STOLZER
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Dr Monica AndersonDR MONICA ANDERSON
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Santy DisabatinoSANTY DISABATINO
BOARD MEMBER & TREASURER
- Total calculated
- $0
- Hours/week
- 1
-
Patricia Bonda-SwensonPATRICIA BONDA-SWENSON
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Bill BorwegenBILL BORWEGEN
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Robin EliaROBIN ELIA
CONTROLLER
- Total calculated
- $77,776
- From this org
- $73,829
- From related orgs
- $0
- Other
- $3,947
- Hours/week
- 30
-
Laura OcchiuzziLAURA OCCHIUZZI
DEPUTY EXECUTIVE DIRECTOR
- Total calculated
- $138,936
- From this org
- $131,915
- From related orgs
- $0
- Other
- $7,021
- Hours/week
- 35
-
Sara RothschildSARA ROTHSCHILD
EXECUTIVE DIRECTOR
- Total calculated
- $155,246
- From this org
- $144,660
- From related orgs
- $0
- Other
- $10,586
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $144,660
- Bonus
- $0
- Other
- $0
- Deferred
- $3,986
- Nontaxable benefits
- $6,600
- Filer's total
- $155,246
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $2,179,789
- Expenses
- $1,770,153
- Contributions
- $2,089,809
- Grants paid
- $25,000
-
2023
- Revenue
- $1,861,966
- Expenses
- $1,712,287
- Contributions
- $1,569,132
- Grants paid
- $20,000
-
2022
- Revenue
- $1,396,538
- Expenses
- $1,918,096
- Contributions
- $1,313,670
- Grants paid
- $25,000
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $1,973,515
- Expenses
- $1,984,660
- Assets (EOY)
- $3,390,555
-
2020 · 990
- Revenue
- $2,030,922
- Expenses
- $1,996,675
- Assets (EOY)
- $3,323,199
-
2019 · 990
- Revenue
- $1,544,312
- Expenses
- $1,964,935
- Assets (EOY)
- $3,281,991
-
2018 · 990
- Revenue
- $1,201,324
- Expenses
- $1,955,610
- Assets (EOY)
- $3,671,932
-
2017 · 990
- Revenue
- $1,094,919
- Expenses
- $1,901,977
- Assets (EOY)
- $4,427,396
-
2016 · 990
- Revenue
- $954,741
- Expenses
- $2,367,358
- Assets (EOY)
- $5,244,565
-
2015 · 990
- Revenue
- $4,188,288
- Expenses
- $2,378,766
- Assets (EOY)
- $6,669,149
-
2014 · 990
- Revenue
- $2,837,304
- Expenses
- $2,277,171
- Assets (EOY)
- $4,881,275
-
2013 · 990
- Revenue
- $3,145,446
- Expenses
- $2,411,426
- Assets (EOY)
- $4,264,769
-
2012 · 990
- Revenue
- not reported
- Expenses
- $2,380,145
- Assets (EOY)
- $3,578,709
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.
Grants made
-
2024 RESEARCH GRANT
-
$25,000
2022 RESEARCH GRANT
-
2023 RESEARCH GRANT
Grants received
-
2022 GENERAL SUPPORT
-
DONOR ADVISED CHARITABLE GIVING
$17,500
2023 HEALTH
-
2022 FOR RECIPIENT'S EXEMPT PURPOSE
-
2023 FOR RECIPIENT'S EXEMPT PURPOSE
-
2023 GENERAL SUPPORT
-
2024 GENERAL SUPPORT
-
2024 GENERAL SUPPORT
-
2022 GENERAL SUPPORT
-
2023 For grant recipient's exempt purposes
-
2022 For grant recipient's exempt purposes
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 13 October 2026 and read 1 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.