Totals
- Total revenue
- $1,396,538
- Total expenses
- $1,918,096
- Contributions and grants received
- $1,313,670
- Grants paid
- $25,000
- Program service revenue
- $0
- Investment income
- $41,019
- Other revenue
- $41,849
- Total assets, end of year
- $2,905,317
- Total liabilities, end of year
- $246,223
- Net assets or fund balances, end of year
- $2,659,094
- Program services expenses (Part IX)
- $1,747,721
- Management and general expenses
- $75,723
- Fundraising expenses
- $94,652
- Program service expenses (Part III)
- $1,747,721
Program services were 91.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$64,725
-
1f · All other contributions, gifts and grants
$1,248,945
-
3 · Investment income
total $41,019 · excluded $41,019
-
8a · Fundraising events: gross income
$99,396
-
8a · Fundraising events: contributions included on line 1c
$64,725
-
8b · Fundraising events: direct expenses
$58,214
-
8c · Net income from fundraising events
total $41,182 · excluded $41,182
-
11a · Other revenue: OTHER
total $667 · excluded $667
-
11e · Other revenue, total
$667
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $25,000 · program services $25,000
-
5 · Compensation of officers, directors and key employees
total $413,962 · program services $376,706 · management and general $16,558 · fundraising $20,698
-
7 · Other salaries and wages
total $834,919 · program services $759,775 · management and general $33,397 · fundraising $41,747
-
8 · Pension plan contributions
total $15,078 · program services $13,721 · management and general $603 · fundraising $754
-
9 · Other employee benefits
total $47,783 · program services $43,483 · management and general $1,912 · fundraising $2,388
-
10 · Payroll taxes
total $87,436 · program services $79,567 · management and general $3,497 · fundraising $4,372
-
11c · Fees: accounting
total $11,700 · program services $10,647 · management and general $468 · fundraising $585
-
11g · Fees: other
total $138,947 · program services $126,442 · management and general $5,558 · fundraising $6,947
-
12 · Advertising and promotion
total $405 · program services $369 · management and general $16 · fundraising $20
-
13 · Office expenses
total $33,382 · program services $30,378 · management and general $1,335 · fundraising $1,669
-
14 · Information technology
total $19,209 · program services $17,481 · management and general $768 · fundraising $960
-
16 · Occupancy
total $147,869 · program services $134,561 · management and general $5,915 · fundraising $7,393
-
22 · Depreciation, depletion and amortization
total $488 · program services $444 · management and general $20 · fundraising $24
-
23 · Insurance
total $15,818 · program services $14,394 · management and general $633 · fundraising $791
-
24a · Other expenses: EDUCATIONAL EVENT EXPEN
total $70,606 · program services $64,252 · management and general $2,824 · fundraising $3,530
-
24b · Other expenses: MEETINGS/EDUCATIONAL SE
total $21,786 · program services $19,826 · management and general $871 · fundraising $1,089
-
24c · Other expenses: COMMUNICATIONS
total $19,008 · program services $17,298 · management and general $760 · fundraising $950
-
24d · Other expenses: PRINTING & PUBLICATIONS
total $10,788 · program services $9,817 · management and general $432 · fundraising $539
-
24e · All other expenses
total $3,912 · program services $3,560 · management and general $156 · fundraising $196
Balance sheet
Part X, book values.
-
2 · Savings and temporary cash investments
beginning of year $3,347,807 · end of year $875,283
-
4 · Accounts receivable
beginning of year $10,312 · end of year $0
-
9 · Prepaid expenses and deferred charges
beginning of year $12,860 · end of year $1,785
-
10a · Land, buildings and equipment: cost or other basis
$149,720
-
10b · Land, buildings and equipment: accumulated depreciation
$148,823
-
10c · Land, buildings and equipment, net
beginning of year $1,385 · end of year $897
-
11 · Investments: publicly traded securities
beginning of year $3,240 · end of year $2,012,401
-
15 · Other assets
beginning of year $14,951 · end of year $14,951
-
17 · Accounts payable and accrued expenses
beginning of year $209,903 · end of year $246,223
-
27 · Net assets without donor restrictions
beginning of year $3,180,652 · end of year $2,623,561
-
28 · Net assets with donor restrictions
end of year $35,533
Mission and programs · 2022
Mission
ENHANCING SURVIVAL AND QUALITY OF LIFE FOR PEOPLE LIVING WITH GIST THROUGH PATIENT-POWERED RESEARCH, EDUCATION, EMPOWERMENT AND GLOBAL ADVOCACY EFFORTS.
Activities or mission (Part I)
ENHANCING SURVIVAL AND QUALITY OF LIFE FOR PEOPLE LIVING WITH GIST THROUGH PATIENT-POWERED RESEARCH, EDUCATION, EMPOWERMENT AND GLOBAL ADVOCACY EFFORTS. THE VISION IS TO CHAMPION PATIENT-POWERED SCIENCE AND DRASTICALLY INCREASE LONG-TERM SURVIVORSHIP FOR GIST CANCER PATIENTS.
-
RESEARCH: WE FUND AND MANAGE UNIQUELY COORDINATED RESEARCH INITIATIVES THAT ALWAYS KEEP THE NEEDS OF GIST PATIENTS FOREMOST. THE LIFE RAFT GROUP (LRG) CONTINUES TO LEAD A COLLABORATIVE TEAM OF WORLD-RENOWNED SCIENTISTS AND CLINICIANS IN GIST. LRG HAS THE LARGEST GIST PATIENT REGISTRY IN THE WORLD. OUR RESEARCH PARADIGM IS PATIENT-POWERED SCIENCE FOR LIFE. A COMPREHENSIVE APPROACH THAT COMPLIMENTS TRADITIONAL RESEARCH WITH REAL WORLD EVIDENCE SUPPORTED BY DATA.
Expenses $1,217,654 · Grants $25,000
-
INFORMATION, EDUCATION, ADVOCACY, OUTREACH & ENGAGEMENT: THE LRG PROVIDES SUPPORT, INTERVENTION, EDUCATION AND ADVOCACY TO GIST PATIENTS, THEIR FAMILIES, AND CAREGIVERS. LOCAL SUPPORT IS AVAILABLE TO THE GIST COMMUNITY THROUGH A NETWORK OF LRG MENTORS AND VOLUNTEERS. OUR EDUCATION PROGRAMS ARE OFFERED WORLDWIDE. OUR GIST DAYS OF LEARNING ANDOUR BIENNIAL LIFE FEST EVENT GATHER EXPERTS FROM ACROSS THE GLOBE TO BRING THE MOST UP TO DATE INFORMATION ON GIST RESEARCH, EMERGING THERAPIES AND UPDATES ON THE WORLD OF GIST. OUR OUTREACH AND ENGAGEMENT EFFORTS ALSO INCLUDE PATIENT SUPPORT GROUPS, FOCUS GROUPS, MONTHLY WEBCASTS, OUR WEBSITE, ACCESS TO OUR CLINICAL TRIALS DATABASE AND OUR WORLDWIDE GIST SPECIALIST DATABASE. EXPERT PATIENT TRAINING IS OFFERED TO ALL MEMBERS.
Expenses $530,067
As filed on the 2022 return.
Listed in Part VII
-
Jerry CudzilJERRY CUDZIL
PRESIDENT
- Total calculated
- $0
- Hours/week
- 1
-
Stan BunnSTAN BUNN
PAST PRESIDENT
- Total calculated
- $0
- Hours/week
- 1
-
Jim HughesJIM HUGHES
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Rodrigo SalasRODRIGO SALAS
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
John PossJOHN POSS
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Teena PetersohnTEENA PETERSOHN
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Gary GlasserGARY GLASSER
SECRETARY/TREASURER
- Total calculated
- $0
- Hours/week
- 1
-
Eric BieganskyERIC BIEGANSKY
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Steve PontellSTEVE PONTELL
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Kay StolzerKAY STOLZER
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Dr Monica AndersonDR MONICA ANDERSON
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Santy DisabatinoSANTY DISABATINO
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Patricia Bonda-SwensonPATRICIA BONDA-SWENSON
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Bill BorwegenBILL BORWEGEN
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Norman J ScherzerNORMAN J SCHERZER
CONSULTING EXECUTIVE DIRECTOR
- Total calculated
- $147,117
- From this org
- $137,560
- From related orgs
- $0
- Other
- $9,557
- Hours/week
- 35
-
Laura OcchiuzziLAURA OCCHIUZZI
VICE PRESIDENT
- Total calculated
- $126,338
- From this org
- $119,646
- From related orgs
- $0
- Other
- $6,692
- Hours/week
- 35
-
Sara RothchildSARA ROTHCHILD
EXECUTIVE DIRECTOR
- Total calculated
- $140,507
- From this org
- $129,707
- From related orgs
- $0
- Other
- $10,800
- Hours/week
- 35
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
$25,000
RESEARCH GRANT
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 15 November 2023
- IRS schema version
- 2022v5.0
- Source object
- 202313199349320606
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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