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Nonprofiteer
← HHT FOUNDATION INTERNATIONAL INC

Form 990 for tax year 2022

Filed by HHT FOUNDATION INTERNATIONAL INC.

Totals

Total revenue
$3,740,865
Total expenses
$4,069,058
Contributions and grants received
$3,263,861
Grants paid
$1,702,745
Program service revenue
$410,107
Investment income
$69,101
Other revenue
-$2,204
Total assets, end of year
$3,515,746
Total liabilities, end of year
$680,335
Net assets or fund balances, end of year
$2,835,411
Program services expenses (Part IX)
$3,460,889
Management and general expenses
$530,897
Fundraising expenses
$77,272
Program service expenses (Part III)
$3,460,889

Program services were 85.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $53,787

  • 1e · Government grants (contributions)

    $2,096,118

  • 1f · All other contributions, gifts and grants

    $1,113,956

  • 2a · Program service revenue: CONFERENCE FEES

    total $410,107 · related or exempt $410,107

  • 3 · Investment income

    total $55,714 · excluded $55,714

  • 7a · Gross sales of assets other than inventory

    securities $701,989

  • 7b · Less cost or other basis and sales expenses

    securities $688,602

  • 7c · Gain or loss

    securities $13,387

  • 7d · Net gain or loss

    total $13,387 · related or exempt $13,387

  • 8a · Fundraising events: gross income

    $3,244

  • 8a · Fundraising events: contributions included on line 1c

    $53,787

  • 8b · Fundraising events: direct expenses

    $11,211

  • 8c · Net income from fundraising events

    total -$7,967 · excluded -$7,967

  • 11a · Other revenue: OTHER INCOME

    total $5,763 · related or exempt $5,763

  • 11e · Other revenue, total

    $5,763

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $1,702,745 · program services $1,702,745

  • 5 · Compensation of officers, directors and key employees

    total $289,541 · program services $229,654 · management and general $51,376 · fundraising $8,511

  • 7 · Other salaries and wages

    total $621,347 · program services $492,829 · management and general $110,253 · fundraising $18,265

  • 8 · Pension plan contributions

    total $6,966 · program services $5,508 · management and general $1,250 · fundraising $208

  • 9 · Other employee benefits

    total $104,079 · program services $82,385 · management and general $18,611 · fundraising $3,083

  • 10 · Payroll taxes

    total $67,431 · program services $53,389 · management and general $12,046 · fundraising $1,996

  • 11b · Fees: legal

    total $1,602 · management and general $1,602

  • 11c · Fees: accounting

    total $159,214 · program services $65,524 · management and general $92,703 · fundraising $987

  • 11d · Fees: lobbying

    total $36,000 · program services $36,000

  • 11f · Fees: investment management

    total $2,562 · management and general $2,562

  • 11g · Fees: other

    total $202,856 · program services $142,816 · management and general $59,324 · fundraising $716

  • 12 · Advertising and promotion

    total $40,064 · program services $40,887 · management and general -$823

  • 13 · Office expenses

    total $134,799 · program services $54,460 · management and general $55,756 · fundraising $24,583

  • 14 · Information technology

    total $68,180 · program services $61,983 · management and general $5,430 · fundraising $767

  • 16 · Occupancy

    total $14,218 · program services $7,302 · management and general $6,916

  • 17 · Travel

    total $83,346 · program services $53,469 · management and general $27,798 · fundraising $2,079

  • 19 · Conferences, conventions and meetings

    total $417,048 · program services $413,913 · fundraising $3,135

  • 22 · Depreciation, depletion and amortization

    total $3,100 · program services $2,454 · management and general $554 · fundraising $92

  • 24a · Other expenses: MISCELLANEOUS AND CREDI

    total $93,020 · program services $5,127 · management and general $85,146 · fundraising $2,747

  • 24b · Other expenses: SUBSCRIPTIONS AND DUES

    total $11,123 · program services $900 · management and general $120 · fundraising $10,103

  • 24c · Other expenses: PAZOPANIB

    total $9,544 · program services $9,544

  • 24d · Other expenses: OTHER GRANTS AND AWARDS

    total $273 · management and general $273

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $583,916 · end of year $411,022

  • 3 · Pledges and grants receivable

    beginning of year $451,242 · end of year $703,055

  • 9 · Prepaid expenses and deferred charges

    beginning of year $21,429 · end of year $21,876

  • 10a · Land, buildings and equipment: cost or other basis

    $200,618

  • 10b · Land, buildings and equipment: accumulated depreciation

    $193,901

  • 10c · Land, buildings and equipment, net

    beginning of year $7,801 · end of year $6,717

  • 11 · Investments: publicly traded securities

    beginning of year $2,157,352 · end of year $2,271,426

  • 15 · Other assets

    beginning of year $101,547 · end of year $101,650

  • 17 · Accounts payable and accrued expenses

    beginning of year $178,682 · end of year $680,335

  • 27 · Net assets without donor restrictions

    beginning of year $1,254,191 · end of year $1,375,518

  • 28 · Net assets with donor restrictions

    beginning of year $1,890,414 · end of year $1,459,893

Mission and programs · 2022

Mission

HHT INTERNATIONAL, INC IS A NOT-FOR-PROFIT ORGANIZATION ORGANIZED TO PROVIDE INFORMATION ABOUT HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT) TO PATIENTS, FAMILY MEMBERS AND PHYSICIANS, OPERATE AS A SUPPORT GROUP FOR PATIENTS AND FAMILY MEMBERS, RAISE FUNDS FOR BASIC AND CLINICAL RESEARCH, AND SPONSOR RESEARCH GRANTS FOR STUDIES RELATING TO HHT.

  • RESEARCH - THE RESEARCH PROGRAM IS SUPPORTIVE IN FUNDING RESEARCH FOR THE UNDERSTANDING OF THE MECHANISM OF HHT DISEASE, NOVEL THERAPEUTIC APPROACHES TO TREATMENT AND MANAGEMENT, AND TRANSLATIONAL RESEARCH LEADING TO MULTI-CENTER TRIALS. THE HHT INTERNATIONAL SCIENTIFIC CONFERENCE IS HELD EVERY OTHER YEAR.

    Expenses $2,443,402 · Grants $1,702,745

  • EDUCATION - THE GOAL OF THE EDUCATION PROGRAM IS TO PROMOTE EDUCATION, DIAGNOSIS, AND BEST PRACTICE TREATMENTS RELATED TO HHT THROUGH PATIENT SUPPORT, SUPPORT OF CONFERENCES, MEETINGS, AND COMPREHENSIVE HHT CLINICAL CENTERS OF EXCELLENCE.

    Expenses $860,601 · Revenue $410,109

  • PUBLIC INFORMATION - THE GOAL OF THE PUBLIC INFORMATION PROGRAM IS TO INCREASE PUBLIC, PRIVATE, AND GOVERNMENTAL AWARENESS OF THE HHT DISORDER THROUGH THE PRESS AND THE MEDIA.

    Expenses $145,663

  • ADVOCACY - THE GOAL OF THE ADVOCACY PROGRAM IS TO ADVOCATE FOR AND SUPPORT THOSE WITH HHT BY PURSUING RECOGNITION AND FUNDING FOR AWARENESS, ACCESS TO EXPERT CARE AND CLINICAL TRIALS.

    Expenses $11,223

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Ann Trussell

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Anthony Anzell PhD

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Benjamin Holt Esq

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Brandon Probst PhD

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Dennis Routledge

    MEMBER EMERITUS

    Total calculated
    $0
    Hours/week
    1

  • Dennis Sprecher MD

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Gabriella Choi

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Howard Lichtig

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Jim Lapides

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • John Dunn

    PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Karen Silber Weissel PhD

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Marc Topaz Esq

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Marijo McCune

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Robert Berkman

    MEMBER EMERITUS

    Total calculated
    $0
    Hours/week
    1

  • Sara Palmer PhD

    PAST PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Savanah Schott

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • Scott Boatwright

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Scott Olitsky MD

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Marianne Clancy

    EXECUTIVE DIRECTOR

    Total calculated
    $180,465
    From this org
    $167,703
    From related orgs
    $0
    Other
    $12,762
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $167,703
    Bonus
    $0
    Other
    $0
    Deferred
    $2,700
    Nontaxable benefits
    $10,062
    Filer's total
    $180,465

  • Stefanie-Nicole Schaefer

    CHIEF OPERATING OFFICER

    Total calculated
    $109,076
    From this org
    $103,340
    From related orgs
    $0
    Other
    $5,736
    Hours/week
    40

  • Gary Saum

    FORMER DIRECTOR

    Total calculated
    $108,746
    From this org
    $108,746
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2022
Filed
23 April 2024
IRS schema version
2022v5.0
Source object
202431229349301338

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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