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HHT FOUNDATION INTERNATIONAL INC

EIN 22-3115041 COCKEYSVILLE, MD

Browse the largest nonprofits in Maryland

Revenue 2024
$9,841,516
Expenses 2024
$7,129,175

Program services were 86.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
S41Z
Classification
1000
Street
12 GALLOWAY AVENUE

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

HHT FOUNDATION INTERNATIONAL, INC. IS A NOT-FOR-PROFIT ORGANIZATION DEDICATED TO SERVING INDIVIDUALS AFFECTED BY HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT). THE ORGANIZATION PROVIDES INFORMATION TO PATIENTS, FAMILY MEMBERS, AND HEALTHCARE PROFESSIONALS; OFFERS SUPPORT AND COMMUNITY FOR PATIENTS AND THEIR FAMILIES; RAISES FUNDS TO ADVANCE BASIC AND CLINICAL RESEARCH; AND SPONSORS RESEARCH GRANTS TO PROMOTE SCIENTIFIC STUDIES FOCUSED ON HHT.

Activities or mission (Part I)

FIND A CURE FOR HHT WHILE SAVING THE LIVES AND IMPROVING THE WELL-BEING OF INDIVIDUALS AND FAMILIES AFFECTED BY HHT.

  • RESEARCH - THE RESEARCH PROGRAM SUPPORTS FUNDING FOR STUDIES THAT ADVANCE UNDERSTANDING OF THE UNDERLYING MECHANISMS OF HHT, FOSTERS THE DEVELOPMENT OF NOVEL THERAPEUTIC APPROACHES FOR TREATMENT AND DISEASE MANAGEMENT, AND PROMOTES TRANSLATIONAL RESEARCH THAT LEADS TO MULTI-CENTER CLINICAL TRIALS. IN ADDITION, THE HHT INTERNATIONAL SCIENTIFIC CONFERENCE IS HELD BIENNIALLY TO FACILITATE COLLABORATION AND THE EXCHANGE OF SCIENTIFIC KNOWLEDGE AMONG RESEARCHERS AND CLINICIANS.

    Expenses $5,435,882 · Grants $2,385,005

  • EDUCATION - THE GOAL OF THE EDUCATION PROGRAM IS TO ADVANCE AWARENESS, ACCURATE DIAGNOSIS, AND BEST-PRACTICE TREATMENT OF HHT BY SUPPORTING PATIENT EDUCATION AND OUTREACH, SPONSORING EDUCATIONAL CONFERENCES AND PROFESSIONAL MEETINGS, AND STRENGTHENING A NETWORK OF COMPREHENSIVE HHT CLINICAL CENTERS OF EXCELLENCE.

    Expenses $390,312 · Revenue $470,997

  • PUBLIC INFORMATION - THE GOAL OF THE PUBLIC INFORMATION PROGRAM IS TO INCREASE AWARENESS OF HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT) AMONG THE GENERAL PUBLIC, PRIVATE SECTOR, AND GOVERNMENTAL AUDIENCES THROUGH STRATEGIC ENGAGEMENT WITH THE PRESS AND OTHER MEDIA CHANNELS.

    Expenses $290,891

  • ADVOCACY - THE GOAL OF THE ADVOCACY PROGRAM IS TO REPRESENT AND SUPPORT INDIVIDUALS AFFECTED BY HHT BY ADVANCING RECOGNITION OF THE DISORDER AND SECURING FUNDING TO EXPAND AWARENESS EFFORTS, IMPROVE ACCESS TO EXPERT CARE, AND PROMOTE PARTICIPATION IN CLINICAL TRIALS.

    Expenses $29,023

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • John Dunn

    PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Gabriella Choi

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Marc Topaz Esq

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Karen Silber Weissel PhD

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • Anthony Anzell PhD

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Scott Boatwright

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Howard Lichtig

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Marijo McCune

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Mike Nolan

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Brandon Probst PhD

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Dennis Sprecher MD

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Terry Thompson Jr

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Dennis Routledge

    MEMBER EMERITUS

    Total calculated
    $0
    Hours/week
    1

  • Marianne Clancy

    EXECUTIVE DIRECTOR

    Total calculated
    $234,751
    From this org
    $199,190
    From related orgs
    $0
    Other
    $35,561
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $199,190
    Bonus
    $0
    Other
    $0
    Deferred
    $5,792
    Nontaxable benefits
    $29,769
    Filer's total
    $234,751

  • Stefanie-Nicole Schaefer

    CHIEF OPERATING OFFICER

    Total calculated
    $136,271
    From this org
    $114,106
    From related orgs
    $0
    Other
    $22,165
    Hours/week
    40

  • Melissa Dickey

    DIRECTOR, NAT'L HHT COORDINATING CENTER

    Total calculated
    $159,370
    From this org
    $145,845
    From related orgs
    $0
    Other
    $13,525
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $145,845
    Bonus
    $0
    Other
    $0
    Deferred
    $4,408
    Nontaxable benefits
    $9,117
    Filer's total
    $159,370

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $9,841,516
    Expenses
    $7,129,175
    Contributions
    $9,245,580
    Grants paid
    $2,385,005
  • 2023
    Revenue
    $6,790,311
    Expenses
    $5,251,461
    Contributions
    $6,587,947
    Grants paid
    $2,930,944
  • 2022
    Revenue
    $3,740,865
    Expenses
    $4,069,058
    Contributions
    $3,263,861
    Grants paid
    $1,702,745

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $2,377,085
    Expenses
    $1,884,387
    Assets (EOY)
    $3,323,287

  • 2020 · 990

    Revenue
    $2,204,324
    Expenses
    $1,231,386
    Assets (EOY)
    $3,054,085

  • 2019 · 990

    Revenue
    $1,790,976
    Expenses
    $1,481,024
    Assets (EOY)
    $1,852,494

  • 2018 · 990

    Revenue
    $1,708,278
    Expenses
    $1,369,365
    Assets (EOY)
    $1,519,255

  • 2017 · 990

    Revenue
    $1,002,959
    Expenses
    $1,163,770
    Assets (EOY)
    $1,133,217

  • 2016 · 990

    Revenue
    $1,044,604
    Expenses
    $1,348,119
    Assets (EOY)
    $1,300,277

  • 2015 · 990

    Revenue
    $944,349
    Expenses
    $1,151,299
    Assets (EOY)
    $1,567,185

  • 2014 · 990

    Revenue
    $1,321,688
    Expenses
    $1,741,862
    Assets (EOY)
    $2,005,960

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 11 November 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.