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← DYSTONIA MEDICAL RESEARCH FOUNDATION

Form 990 for tax year 2022

Filed by DYSTONIA MEDICAL RESEARCH FOUNDATION.

Totals

Total revenue
$2,569,110
Total expenses
$2,496,291
Contributions and grants received
$2,391,324
Grants paid
$826,698
Program service revenue
$0
Investment income
$133,079
Other revenue
$44,707
Total assets, end of year
$6,256,038
Total liabilities, end of year
$1,459,885
Net assets or fund balances, end of year
$4,796,153
Program services expenses (Part IX)
$1,990,245
Management and general expenses
$261,440
Fundraising expenses
$244,606
Program service expenses (Part III)
$1,990,245

Program services were 79.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Listed in Part VII

  • JANET HIESHETTER

    Sec/EXEC DIR

    Total calculated
    $199,374
    From this org
    $172,893
    From related orgs
    $0
    Other
    $26,481
    Hours/week
    59

    Schedule J breakdown matched by us

    Base
    $172,893
    Bonus
    not reported
    Other
    not reported
    Deferred
    $7,142
    Nontaxable benefits
    $19,339
    Filer's total
    $199,374

  • DEBORAH DURRER

    DIR DEVELOPMENT

    Total calculated
    $126,015
    From this org
    $95,071
    From related orgs
    $0
    Other
    $30,944
    Hours/week
    38

  • JENNIFER MCNABOLA

    DIR FINANCE

    Total calculated
    $106,724
    From this org
    $100,558
    From related orgs
    $0
    Other
    $6,166
    Hours/week
    30

  • JESSICA FEELEY

    DIR COMMUN & EDUC

    Total calculated
    $94,181
    From this org
    $82,776
    From related orgs
    $0
    Other
    $11,405
    Hours/week
    38

  • MARK RUDOLPH

    President

    Total calculated
    $0
    Hours/week
    5

  • JOHN DOWNEY

    Treasurer

    Total calculated
    $0
    Hours/week
    3

  • RICHARD LEWIS

    Vice President

    Total calculated
    $0
    Hours/week
    2

  • BARBARA KESSLER

    Vice President

    Total calculated
    $0
    Hours/week
    2

  • KAREN ROSS

    Vice President

    Total calculated
    $0
    Hours/week
    2

  • CAROLE RAWSON

    Vice President

    Total calculated
    $0
    Hours/week
    2

  • PAULA SCHNEIDER

    Vice President

    Total calculated
    $0
    Hours/week
    2

  • Ron Hersh

    Vice President

    Total calculated
    $0
    Hours/week
    3

  • Allison London

    Director

    Total calculated
    $0
    Hours/week
    1

  • FRANCES BELZBERG

    Director

    Total calculated
    $0
    Hours/week
    1

  • MARILYNNE HERBERT

    Director

    Total calculated
    $0
    Hours/week
    1

  • STEFANIE JACKSON

    Director

    Total calculated
    $0
    Hours/week
    1

  • DIANE RUDOLPH

    Director

    Total calculated
    $0
    Hours/week
    1

  • JOEL PERLMUTTER MD

    Scientific Dir

    Total calculated
    $0
    Hours/week
    3

  • ERWIN JACKSON

    Director

    Total calculated
    $0
    Hours/week
    1

  • BILL MCLAUGHLIN

    Director

    Total calculated
    $0
    Hours/week
    1

  • Art Kessler

    Director

    Total calculated
    $0
    Hours/week
    1

  • SANDRA WEIL

    Director

    Total calculated
    $0
    Hours/week
    1

  • ROSALIE LEWIS

    Director

    Total calculated
    $0
    Hours/week
    1

  • Pamela Sloate

    Director

    Total calculated
    $0
    Hours/week
    1

  • Jon Davis

    Director

    Total calculated
    $0
    Hours/week
    1

  • Dennis Kessler

    Director

    Total calculated
    $0
    Hours/week
    1

  • LIZ RAWSON

    Director

    Total calculated
    $0
    Hours/week
    1

  • DONNA DRISCOLL

    Director

    Total calculated
    $0
    Hours/week
    1

  • BRIAN KEANE

    Director

    Total calculated
    $0
    Hours/week
    1

  • Marc Miller

    Director

    Total calculated
    $0
    Hours/week
    1

  • Robin Miller

    Director

    Total calculated
    $0
    Hours/week
    1

  • DAN LEWIS

    Director

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Written employment contract
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2022
Filed
23 August 2023
IRS schema version
2022v5.0
Source object
202332359349301808

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