Form 990 for tax year 2022

Totals

Total revenue

$3,888,384

Total expenses

$3,018,754

Contributions and grants received

$4,534,964

Grants paid

$1,421,792

Program service revenue

$0

Investment income

$4,020

Other revenue

-$650,600

Total assets, end of year

$3,615,825

Total liabilities, end of year

$1,290,628

Net assets or fund balances, end of year

$2,325,197

Program services expenses (Part IX)

$2,307,277

Management and general expenses

$362,522

Fundraising expenses

$348,955

Program service expenses (Part III)

$2,307,277

Program services were 76.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2022

• RESEARCH - THE CHILDREN'S HEART FOUNDATION FUNDS THE MOST PROMISING CONGENITAL HEART DEFECT (CHD)RESEARCH. SINCE 1996, CHF HAS INVESTED $16.5 MILLION INTO CHD RESEARCH AND SCIENTIFIC COLLABORATIONS.IN 2022, CHF FUNDED NEARLY $1.5 MILLION IN CHD RESEARCH AND SCIENTIFIC COLLABORATIONS ACROSS FOUR KEY INITIATIVES: 1. INDEPENDENT RESEARCH FUNDED BY THE FOUNDATION, 2. COLLABORATIVE RESEARCH WITH THE HEART ASSOCIATION THROUGH JOINT CONGENITAL HEART DEFECT RESEARCH AWARDS, 3. FUNDING THE AMERICAN ACADEMY OF PEDIATRICS' PEDIATRIC CARDIOLOGY RESEARCH FELLOWSHIP AWARD, AND 4. FUNDING CARDIAC NETWORKS UNITED (CNU), A NATIONAL PEDIATRIC AND CONGENITAL CARDIOVASCULAR RESEARCH NETWORK.CHF PROVIDED FUNDING FOR THE FOLLOWING INDEPENDENT RESEARCH:-SAMANTHA BUTLER, PHD (BOSTON CHILDREN'S HOSPITAL) RECEIVED FUNDING FROM THE CHILDREN'S HEART FOUNDATION FOR HER WORK ON DEVELOPMENTAL INTERVENTION IN THE CARDIAC INTENSIVE CARE UNIT FOR NEWBORNS WITH CONGENITAL HEART DISEASE.-VAHID SERPOOSHAN, PHD (EMORY UNIVERSITY) RECEIVED FUNDING FROM THE CORTNEY BARNETT RESEARCH AWARD FOR HIS EFFORTS ON A 3D BIOPRINTED PLATFORM FOR MODELING AND TREATMENT PLANNING OF HEPATIC DISORDERS IN FONTAN PATIENTS.-NIMROD GOLDSHTROM, MD, MS (COLUMBUS UNIVERSITY IRVING MEDICAL CENTER) RECEIVED FUNDING FROM THE MEND A HEART FOUNDATION AWARD FOR HIS EFFORTS ON CEREBRAL AUTOREGULATION AND NEURODEVELOPMENT OUTCOMES IN NEONATES WITH SINGLE VENTRICLE CONGENITAL HEART DISEASE.THESE RESEARCH EFFORTS WILL HELP EXPERTS LEARN MORE ABOUT THE LIFE-LONG CARE NEEDS OF INDIVIDUALS LIVING WITH CHDS AND HOW TO CONTINUE TO IMPROVE THEIR OVERALL QUALITY OF LIFE. THE CHILDREN'S HEART FOUNDATION PROVIDES FUNDING TO CARDIAC NETWORKS UNITED TO IMPROVE OUTCOMES FOR CHILDREN WITH CHDS. ONE OF CNU'S CURRENT RESEARCH EFFORTS - THE PAC3 CHEST TUBE PROJECT - IS NOW BEING IMPLEMENTED AT NEARLY 20 U.S. HOSPITALS AS RESEARCHERS CONSIDER THE OPTIMAL TIME FOR CHEST TUBE REMOVAL IN YOUNG CHD PATIENTS.IN ADDITION, THE FOUNDATION FUNDED THE AMERICAN ACADEMY OF PEDIATRICS' 2022 PEDIATRIC CARDIOLOGY RESEARCH FELLOWSHIP AWARD GIVEN TO KARI PHILLIPS, MD, OF THE UNIVERSITY OF UTAH HEALTH. HER RESEARCH - EXPLORING PATIENT AND FAMILY DECISION MAKING IN PEDIATRIC HEART TRANSPLANT - AIMS TO UNDERSTAND WHAT IS IMPORTANT TO FAMILIES AS THEY MAKE LIFE CHANGING DECISIONS, INCLUDING THE DECISION TO PROCEED WITH HEART TRANSPLANT AND EMPLOY INTENSIVE THERAPIES SUCH AS DIALYSIS AND VENTRICULAR ASSIST DEVICE WHILE WAITING FOR A TRANSPLANT.

  Expenses $2,017,012 · Grants $1,421,792

• AWARENESS- CONGENITAL HEART WALKS: THE CHILDREN'S HEART FOUNDATION'S CONGENITAL HEART WALK SERIES IS THE NATION'S LARGEST WALK SERIES SOLELY DEDICATED TO RAISING AWARENESS AND FUNDS FOR CONGENITAL HEART DEFECT RESEARCH. 31 CONGENITAL HEART WALK EVENTS TOOK PLACE IN 2022. FOR THE FIRST TIME SINCE 2019, ALL WALKS WERE BACK TO IN-PERSON EVENTS, AND SO MANY OF OUR HEART FAMILIES AND TEAMS JOINED TOGETHER AGAIN IN OUR WALK FOR CHD RESEARCH. THE WALKS OFFER A CHANCE TO STRENGTHEN OUR COMMUNITY AND SPREAD AWARENESS ABOUT AMERICA'S MOST COMMON BIRTH DEFECT - CHDS, AND WE RAISED MORE THAN $2,000,000!FUNDRAISING EVENTS AND CAMPAIGNS: VARIOUS FUNDRAISING EVENTS AND CAMPAIGNS TOOK PLACE THROUGHOUT 2022, INCLUDING #GIVINGTUESDAY, HEART MONTH, VOLUNTEER APPRECIATION MONTH, AND OUR MATCHING FROM THE HEART CAMPAIGN - ALL OF WHICH HELPED RAISE AWARENESS AND FUNDS OF THE CHILDREN'S HEART FOUNDATION'S CRITICAL MISSION.GENERAL AWARENESS: THE CHILDREN'S HEART FOUNDATION UTILIZES SOCIAL MEDIA AND VIDEO STORYTELLING TO SPREAD FURTHER AWARENESS OF CHDS AND CHF. OUR SOCIAL MEDIA EFFORTS FOCUS ON SHARING STORIES OF CHILDREN, ADULTS, AND FAMILIES IMPACTED BY CHDS, AS WELL AS TELLING OUR AUDIENCE ABOUT THE IMPORTANT RESEARCH EFFORTS WE ARE FUNDING. THESE TOOLS HELP US REACH PEOPLE WHO MAY NOT HAVE PREVIOUSLY KNOWN ABOUT OUR IMPORTANT WORK.

  Expenses $114,680

• ADVOCACY - WE ENDEAVORED TO CREATE MORE AWARENESS OF THE NEED FOR ADVOCACY FOR THOSE WITH CHDS AND THEIR FAMILY MEMBERS BY TELLING THEIR STORY ON OUR WEBSITES, IN VIDEO, AND THROUGH SPECIAL BROADCAST PRODUCTIONS, LIKE THE PBS VISIONARIES SERIES. OUR ADVOCACY EFFORTS FOCUS ON RAISING AWARENESS OF THE NEED FOR INCREASED FUNDING FOR RESEARCH, SURVIVIVAL,LONGEVITY AND QUALITY OF LIFE EFFORTS WHICH HAVE DRAMATICALLY INCREASED FOR CHD PATIENTS. THERE HAS BEEN A 37.5% DECREASE IN BABIES DYING AT BIRTH WHICH IS A TREMENDOUS RESULT, BUT WE KNOW THAT BABIES ARE STILL BEING BORN DAILY WITH CHDS.WE ARE MOVING FORWARD TO ENGAGE MORE IN ADVOCACY EFFORTS BY RECRUITING GRASSROOTS VOLUNTEERS, CREATING A STRATEGIC LEGISLATIVE AGENDA, AND ADVOCATING THROUGH VOLUNTEER EFFORTS TO INFLUENCE MORE FUNDING FOR CARDIAC HEART DEFECTS.

  Expenses $175,585 · Revenue $4,350

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

• EMORY UNIVERSITY

  $400,000

  CORTNEY BARNETT 2 YEAR RESEARCH AWARD - VAHID SERPOOSHAN

• AMERICAN HEART ASSOCIATION

  $300,000

  CONGENITAL HEART DISEASE RESEARCH

• UNIVERSITY OF MICHIGAN HEART CENTER

  $300,000

  CARDIAC NETWORKS UNITED GRANT

• BOSTON CHILDREN'S HOSPITAL

  $199,667

  INDEPENDENT RESEARCH FUNDING - DR. SAMANTHA BUTLER

• COLUMBIA UNIVERSITY IRVING MEDICAL CENTER

  $187,046

  MEND A HEART FOUNDATION 2 YEAR RESEARCH AWARD - DR. NIMROD GOLDSHTROM

• AMERICAN ACADEMY OF PEDIATRICS

  $35,000

  CARDIOLOGY AND CARDIAC SURGERY RESEARCH FELLOWSHIP AWARD

Provenance

Return type

form_990

Tax year

2022

Filed

10 November 2023

IRS schema version

2022v5.0

Source object

202323199349320897

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