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← INTERNATIONAL SOCIETY OF AMYLIODOSIS

Form 990 for tax year 2025

Filed by INTERNATIONAL SOCIETY OF AMYLIODOSIS.

Totals

Total revenue
$946,221
Total expenses
$616,862
Contributions and grants received
$802,232
Grants paid
$80,227
Program service revenue
$71,866
Investment income
$72,123
Other revenue
$0
Total assets, end of year
$2,923,349
Total liabilities, end of year
$252,803
Net assets or fund balances, end of year
$2,670,546
Program services expenses (Part IX)
$366,199
Management and general expenses
$250,663
Fundraising expenses
$0
Program service expenses (Part III)
$366,199

Program services were 59.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $802,232

  • 2a · Program service revenue: Membership dues

    total $58,366 · related or exempt $58,366

  • 2b · Program service revenue: Journals

    total $13,500 · related or exempt $13,500

  • 3 · Investment income

    total $72,123 · excluded $72,123

Functional expenses

Part IX, the statement of functional expenses.

  • 3 · Grants to foreign organizations and individuals

    total $80,227 · program services $80,227

  • 11a · Fees: management

    total $366,491 · program services $165,039 · management and general $201,452

  • 11c · Fees: accounting

    total $16,700 · management and general $16,700

  • 13 · Office expenses

    total $3,710 · program services $25 · management and general $3,685

  • 17 · Travel

    total $47,269 · program services $45,793 · management and general $1,476

  • 19 · Conferences, conventions and meetings

    total $47,578 · program services $47,578

  • 23 · Insurance

    total $4,353 · program services $2,810 · management and general $1,543

  • 24a · Other expenses: Dues and Journal Subscr

    total $50,534 · program services $24,727 · management and general $25,807

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $249,874 · end of year $586,225

  • 2 · Savings and temporary cash investments

    beginning of year $2,239,578 · end of year $2,085,830

  • 3 · Pledges and grants receivable

    beginning of year $0 · end of year $233,024

  • 9 · Prepaid expenses and deferred charges

    beginning of year $0 · end of year $18,270

  • 17 · Accounts payable and accrued expenses

    beginning of year $0 · end of year $1,939

  • 18 · Grants payable

    beginning of year $111,415 · end of year $0

  • 19 · Deferred revenue

    beginning of year $36,850 · end of year $25,864

  • 25 · Other liabilities

    beginning of year $0 · end of year $225,000

  • 27 · Net assets without donor restrictions

    beginning of year $2,218,217 · end of year $2,401,718

  • 28 · Net assets with donor restrictions

    beginning of year $122,970 · end of year $268,828

Mission and programs · 2025

Mission

ISA is the leading global organization dedicated to engaging with scientists, healthcare providers, patients and other stakeholders to provide education, raise awareness and advance research and multidisciplinary clinical practice for all types of amyloidosis.

Activities or mission (Part I)

Provide education, raise awareness and advance research and multidisciplinary clinical practice for all types of amyloidosis.

  • Workshop:The Society organized a scientific workshop in 2025 to bring together leading experts, researchers, and clinicians in the field of amyloidosis to discuss cutting-edge advancements in diagnostics, treatment response assessment, screening approaches, and drug development. Manuscripts summarizing workshop results were prepared to submit to the journal Amyloid.

    Expenses $143,124 · Revenue $58,366

  • Fellowships: ISA awards year-long clinical fellowships to institutions submitting top proposals. The Fellowship Program focuses on clinical training in all types of amyloidosis. ISA supported three fellowships in 2025.

    Expenses $147,337 · Grants $80,227

  • Journal:ISA provides editorial support for Amyloid, the leading journal for basic and clinical research on amyloids and systemic and localized amyloidosis.

    Expenses $41,498 · Revenue $13,500

  • Virtual Case Discussions: ISA holds virtual 90-minute case discussions on a periodic basis, with the goals of increasing awareness of amyloidosis around the globe and showcasing how the latest diagnostic methods and treatment options can be applied to real-life cases.

    Expenses $33,543

  • Symposium:The biennial International Symposium on Amyloidosis is the premier meeting to discover the latestadvancements, stay current on research, and network with clinicians in the amyloidosis field. These meetingsbring together physicians and scientists to share ideas and advance the science of amyloidosis and protein-folding diseases. Symposia are held in even-numbered years.

    Expenses $697

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Shaji Kumar

    President

    Total calculated
    $0
    Hours/week
    2

  • Stefan Schonland

    Past President

    Total calculated
    $0
    Hours/week
    2

  • Yoshiki Sekijima

    Vice President

    Total calculated
    $0
    Hours/week
    2

  • Mathew Maurer

    Secretary

    Total calculated
    $0
    Hours/week
    1

  • Anita D'Souza

    Treasurer

    Total calculated
    $0
    Hours/week
    1

  • Efstathios Kastritis

    Member at Large

    Total calculated
    $0
    Hours/week
    0.5

  • Lisa Mendelson

    Member at Large

    Total calculated
    $0
    Hours/week
    0.5

  • Maite Cibeira

    Member at Large

    Total calculated
    $0
    Hours/week
    0.5

  • Eloisa Riva

    Member at Large

    Total calculated
    $0
    Hours/week
    0.5

  • Giovanni Palladini

    Representative of the Italian Society

    Total calculated
    $0
    Hours/week
    0.5

  • Alexander Carpintiero

    Representative of the German Society

    Total calculated
    $0
    Hours/week
    0.5

  • Mona Johnson

    Executive Director

    Total calculated
    $75,000
    From this org
    $75,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    20

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2025
Filed
29 July 2026
IRS schema version
2025v4.2
Source object
202612199349300421

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