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INTERNATIONAL SOCIETY OF AMYLIODOSIS

EIN 54-2153449 BURNSVILLE, MN

Revenue 2025
$946,221
Expenses 2025
$616,862

Program services were 59.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
H03
Classification
2800
Street
14305 SOUTHCROSS DR W STE 100

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Other organizations at this address

14 other organizations in the IRS Business Master File list the same street address. matched by us

This address is a suite or unit (STE 100). Organizations that share one are often clients of the same office-services firm, accountant or registered agent rather than related to each other.

We match the street line and ZIP code as the IRS gives them, ignoring case and outer spaces and nothing else, so "AVE" and "AVENUE" count as different streets and this list can miss some. A shared address can mean related organizations or a shared office, but it can also be a registered agent, a mail drop or a service provider holding mail for unrelated clients. It is not, by itself, evidence that two organizations are connected.

Mission and programs · 2025

Mission

ISA is the leading global organization dedicated to engaging with scientists, healthcare providers, patients and other stakeholders to provide education, raise awareness and advance research and multidisciplinary clinical practice for all types of amyloidosis.

Activities or mission (Part I)

Provide education, raise awareness and advance research and multidisciplinary clinical practice for all types of amyloidosis.

  • Workshop:The Society organized a scientific workshop in 2025 to bring together leading experts, researchers, and clinicians in the field of amyloidosis to discuss cutting-edge advancements in diagnostics, treatment response assessment, screening approaches, and drug development. Manuscripts summarizing workshop results were prepared to submit to the journal Amyloid.

    Expenses $143,124 · Revenue $58,366

  • Fellowships: ISA awards year-long clinical fellowships to institutions submitting top proposals. The Fellowship Program focuses on clinical training in all types of amyloidosis. ISA supported three fellowships in 2025.

    Expenses $147,337 · Grants $80,227

  • Journal:ISA provides editorial support for Amyloid, the leading journal for basic and clinical research on amyloids and systemic and localized amyloidosis.

    Expenses $41,498 · Revenue $13,500

  • Virtual Case Discussions: ISA holds virtual 90-minute case discussions on a periodic basis, with the goals of increasing awareness of amyloidosis around the globe and showcasing how the latest diagnostic methods and treatment options can be applied to real-life cases.

    Expenses $33,543

  • Symposium:The biennial International Symposium on Amyloidosis is the premier meeting to discover the latestadvancements, stay current on research, and network with clinicians in the amyloidosis field. These meetingsbring together physicians and scientists to share ideas and advance the science of amyloidosis and protein-folding diseases. Symposia are held in even-numbered years.

    Expenses $697

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Shaji Kumar

    President

    Total calculated
    $0
    Hours/week
    2
  • Stefan Schonland

    Past President

    Total calculated
    $0
    Hours/week
    2
  • Yoshiki Sekijima

    Vice President

    Total calculated
    $0
    Hours/week
    2
  • Mathew Maurer

    Secretary

    Total calculated
    $0
    Hours/week
    1
  • Anita D'Souza

    Treasurer

    Total calculated
    $0
    Hours/week
    1
  • Efstathios Kastritis

    Member at Large

    Total calculated
    $0
    Hours/week
    0.5
  • Lisa Mendelson

    Member at Large

    Total calculated
    $0
    Hours/week
    0.5
  • Maite Cibeira

    Member at Large

    Total calculated
    $0
    Hours/week
    0.5
  • Eloisa Riva

    Member at Large

    Total calculated
    $0
    Hours/week
    0.5
  • Giovanni Palladini

    Representative of the Italian Society

    Total calculated
    $0
    Hours/week
    0.5
  • Alexander Carpintiero

    Representative of the German Society

    Total calculated
    $0
    Hours/week
    0.5
  • Mona Johnson

    Executive Director

    Total calculated
    $75,000
    From this org
    $75,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    20

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $946,221
    Expenses
    $616,862
    Contributions
    $802,232
    Grants paid
    $80,227
  • 2023
    Revenue
    $697,376
    Expenses
    $300,698
    Contributions
    $163,064
    Grants paid
    $14,055
  • 2022
    Revenue
    $130,581
    Expenses
    $131,520
    Contributions
    $4,200
    Grants paid
    $18,000

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $248,977
    Expenses
    $89,134
    Assets (EOY)
    $355,913

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Form 990-N e-Postcard, tax year 2020

Tax period
1 January 2020 to 31 December 2020
Principal officer
Shaji Kumar
Mailing address
2424 American LaneMadison WI 53704

As filed, from the IRS e-Postcard file of 26 October 2026. The IRS publishes only each organization's most recent postcard, so earlier years are not shown. A 990-N carries no financial detail. The postcard also gives the principal officer's address, which is not shown here.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

No itemized grant names this organization as a recipient. Only grants over $5,000 are itemized, and only by filers of the full Form 990.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 29 October 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.