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Nonprofiteer
← HEMOPHILIA ASSOCIATION OF NEW YORK INC

Form 990 for tax year 2024

Filed by HEMOPHILIA ASSOCIATION OF NEW YORK INC.

Totals

Total revenue
$441,005
Total expenses
$960,241
Contributions and grants received
$384,466
Grants paid
$104,180
Program service revenue
$0
Investment income
$46,831
Other revenue
$9,708
Total assets, end of year
$4,358,738
Total liabilities, end of year
$224,150
Net assets or fund balances, end of year
$4,134,588
Program services expenses (Part IX)
$623,639
Management and general expenses
$313,419
Fundraising expenses
$23,183
Program service expenses (Part III)
$623,639

Program services were 64.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $209,842

  • 1f · All other contributions, gifts and grants

    $174,624

  • 3 · Investment income

    total $44,365 · excluded $44,365

  • 7a · Gross sales of assets other than inventory

    securities $243,496

  • 7b · Less cost or other basis and sales expenses

    securities $241,030

  • 7c · Gain or loss

    securities $2,466

  • 7d · Net gain or loss

    total $2,466 · excluded $2,466

  • 8a · Fundraising events: gross income

    $98,538

  • 8a · Fundraising events: contributions included on line 1c

    $209,842

  • 8b · Fundraising events: direct expenses

    $98,538

  • 8c · Net income from fundraising events

    total $0

  • 11a · Other revenue: OTHER REVENUE

    total $9,708 · excluded $9,708

  • 11e · Other revenue, total

    $9,708

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $63,954 · program services $63,954

  • 2 · Grants to domestic individuals

    total $40,226 · program services $40,226

  • 5 · Compensation of officers, directors and key employees

    total $176,078 · program services $114,891 · management and general $55,007 · fundraising $6,180

  • 7 · Other salaries and wages

    total $243,550 · program services $158,916 · management and general $76,085 · fundraising $8,549

  • 8 · Pension plan contributions

    total $25,171 · program services $16,424 · management and general $7,863 · fundraising $884

  • 9 · Other employee benefits

    total $24,977 · program services $16,299 · management and general $7,802 · fundraising $876

  • 10 · Payroll taxes

    total $32,930 · program services $21,487 · management and general $10,287 · fundraising $1,156

  • 11c · Fees: accounting

    total $109,700 · management and general $109,700

  • 11f · Fees: investment management

    total $12,884 · management and general $12,884

  • 11g · Fees: other

    total $3,267 · program services $2,131 · management and general $1,021 · fundraising $115

  • 13 · Office expenses

    total $25,338 · program services $17,141 · management and general $7,369 · fundraising $828

  • 14 · Information technology

    total $5,062 · program services $3,442 · management and general $1,456 · fundraising $164

  • 17 · Travel

    total $16,167 · program services $15,044 · management and general $876 · fundraising $247

  • 19 · Conferences, conventions and meetings

    total $1,992 · program services $1,376 · management and general $601 · fundraising $15

  • 22 · Depreciation, depletion and amortization

    total $28,389 · program services $18,524 · management and general $8,869 · fundraising $996

  • 23 · Insurance

    total $9,283 · program services $6,057 · management and general $2,900 · fundraising $326

  • 24a · Other expenses: EVENT

    total $104,322 · program services $104,322

  • 24b · Other expenses: PRINTING AND PUBLICATIO

    total $19,757 · program services $14,998 · management and general $3,969 · fundraising $790

  • 24c · Other expenses: MISCELLANEOUS

    total $8,858 · program services $3,034 · management and general $4,056 · fundraising $1,768

  • 24d · Other expenses: POSTAGE

    total $5,326 · program services $3,408 · management and general $1,735 · fundraising $183

  • 24e · All other expenses

    total $3,010 · program services $1,965 · management and general $939 · fundraising $106

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $31,538 · end of year $137,714

  • 2 · Savings and temporary cash investments

    beginning of year $13,159 · end of year $13,080

  • 3 · Pledges and grants receivable

    beginning of year $1,693,923 · end of year $1,292,275

  • 4 · Accounts receivable

    beginning of year $25 · end of year $246

  • 9 · Prepaid expenses and deferred charges

    beginning of year $89,215 · end of year $42,853

  • 10a · Land, buildings and equipment: cost or other basis

    $1,173,833

  • 10b · Land, buildings and equipment: accumulated depreciation

    $365,357

  • 10c · Land, buildings and equipment, net

    beginning of year $835,342 · end of year $808,476

  • 11 · Investments: publicly traded securities

    beginning of year $1,933,017 · end of year $2,064,094

  • 17 · Accounts payable and accrued expenses

    beginning of year $104,123 · end of year $166,150

  • 19 · Deferred revenue

    beginning of year $3,250 · end of year $58,000

  • 27 · Net assets without donor restrictions

    beginning of year $2,723,911 · end of year $2,891,610

  • 28 · Net assets with donor restrictions

    beginning of year $1,764,935 · end of year $1,242,978

Mission and programs · 2024

Mission

TO PROVIDE INFORMATION, ADVOCACY, ASSISTANCE AND SCHOLARSHIPS FOR THOSE WITH BLEEDING DISORDERS, AS WELL AS PROVIDE RESEARCH FUNDING FOR BETTER THERAPIES AND POTENTIAL CURES FOR BLEEDING DISORDERS.

Activities or mission (Part I)

FUND CURES FOR HEMOPHILIA AND RELATED CONDITIONS.

  • MOST OF THE ASSOCIATION'S ACTIVITY IS DIRECTED TOWARD PROVIDING INFORMATION AND ASSISTANCE TO THE BLEEDING DISORDERS COMMUNITY. SOME TO SPECIFIC FAMILIES BASED ON NEED. DURING 2024-2025, 65% OF STAFF TIME/EFFORT WAS EXPENDED IN THIS SERVICE FUNCTION. INCLUDED WAS PROVIDING FINANCIAL ASSISTANCE, SPECIFIC PROBLEM RESOLUTION, COUNSELING, OUT-REFERRALS, EDUCATION, ADVOCACY, AND INFORMATIONAL AND EDUCATIONAL MATERIALS FOR PATIENTS/CLIENTS. DURING THE FISCAL YEAR 2024-2025, 1013 PERSONS WITH BLEEDING DISORDERS AND THEIR FAMILIES WERE SERVED. 13% OF PATIENTS RECEIVED EMERGENCY FINANCIAL ASSISTANCE OR OTHER FORMS OF SPECIFIC ASSISTANCE OR AWARDS TOTALING $40,226. GROUP MEETINGS AND PATIENTS EVENTS WERE CONDUCTED THROUGHOUT THE YEAR. (CONTINUED ON SCHEDULE O)HIGHLIGHTS INCLUDE A TEEN RETREAT, A FAMILY EDUCATIONAL CONFERENCE, AND A WOMEN'S RETREAT.

    Expenses $619,716 · Grants $102,894

  • THE ORGANIZATION SUPPORTS SCIENTIFIC STUDIES AND INVESTIGATIONS AT QUALIFIED INSTITUTIONS TOWARD FINDING ALLEVIATION OF THE MEDICAL PROBLEMS ASSOCIATED WITH HEMOPHILIA AND OTHER BLEEDING DISORDERS AND THEIR COMPLICATIONS. DURING THE FISCAL YEAR 2024-2025, THE ASSOCIATION MADE $986 IN PAYMENTS TOWARD THE RESEARCH GRANT AWARDED IN FY 2022-2023.

    Expenses $2,126 · Grants $986

  • IN FISCAL YEAR 2024-2025, THE ASSOCATION SUPPORTED BLEEDNG DISORDERS PROFESSIONALS IN ATTENDING NATIONAL MEETINGS. INFORMATION WAS PROVIDED TO THE GENERAL PUBLIC ON BLEEDING DISORDERS.

    Expenses $1,797 · Grants $300

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Mariam Voutsis

    CHAIRMAN OF THE BOARD

    Total calculated
    $0
    Hours/week
    2

  • Eileen Margolies

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • Edward G Rogoff PhD

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • Mark K Svenningson

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • Jeffrey Zacharia

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • Joana Baquero

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • Theodore Bunin

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • Brian Egan

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • Robert M Greer

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • Mark Kovarik

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • Joseph Mugford

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • Maggi Pack

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • Aureo C Pinto Jr

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • Christopher N Toussaint

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • Alejandro Baquero

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • Elizabeth Cedeno

    EXECUTIVE DIRECTOR-BEGINNING 1/1/25

    Total calculated
    $100,386
    From this org
    $88,698
    From related orgs
    $0
    Other
    $11,688
    Hours/week
    40

  • Linda E Mugford

    EXECUTIVE DIRECTOR-THRU 12/31/24

    Total calculated
    $202,702
    From this org
    $168,448
    From related orgs
    $0
    Other
    $34,254
    Hours/week
    24

    Schedule J breakdown matched by us

    Base
    $168,448
    Bonus
    $0
    Other
    $0
    Deferred
    $16,946
    Nontaxable benefits
    $17,308
    Filer's total
    $202,702

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Form 990 of other organizations
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2024
Filed
10 November 2025
IRS schema version
2024v5.2
Source object
202543149349305214

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