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HEMOPHILIA ASSOCIATION OF NEW YORK INC

EIN 13-5650955 NEW YORK, NY

Revenue 2024
$441,005
Expenses 2024
$960,241

Program services were 64.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G030
Classification
1000
Street
131 WEST 33RD STREET

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

TO PROVIDE INFORMATION, ADVOCACY, ASSISTANCE AND SCHOLARSHIPS FOR THOSE WITH BLEEDING DISORDERS, AS WELL AS PROVIDE RESEARCH FUNDING FOR BETTER THERAPIES AND POTENTIAL CURES FOR BLEEDING DISORDERS.

Activities or mission (Part I)

FUND CURES FOR HEMOPHILIA AND RELATED CONDITIONS.

  • MOST OF THE ASSOCIATION'S ACTIVITY IS DIRECTED TOWARD PROVIDING INFORMATION AND ASSISTANCE TO THE BLEEDING DISORDERS COMMUNITY. SOME TO SPECIFIC FAMILIES BASED ON NEED. DURING 2024-2025, 65% OF STAFF TIME/EFFORT WAS EXPENDED IN THIS SERVICE FUNCTION. INCLUDED WAS PROVIDING FINANCIAL ASSISTANCE, SPECIFIC PROBLEM RESOLUTION, COUNSELING, OUT-REFERRALS, EDUCATION, ADVOCACY, AND INFORMATIONAL AND EDUCATIONAL MATERIALS FOR PATIENTS/CLIENTS. DURING THE FISCAL YEAR 2024-2025, 1013 PERSONS WITH BLEEDING DISORDERS AND THEIR FAMILIES WERE SERVED. 13% OF PATIENTS RECEIVED EMERGENCY FINANCIAL ASSISTANCE OR OTHER FORMS OF SPECIFIC ASSISTANCE OR AWARDS TOTALING $40,226. GROUP MEETINGS AND PATIENTS EVENTS WERE CONDUCTED THROUGHOUT THE YEAR. (CONTINUED ON SCHEDULE O)HIGHLIGHTS INCLUDE A TEEN RETREAT, A FAMILY EDUCATIONAL CONFERENCE, AND A WOMEN'S RETREAT.

    Expenses $619,716 · Grants $102,894

  • THE ORGANIZATION SUPPORTS SCIENTIFIC STUDIES AND INVESTIGATIONS AT QUALIFIED INSTITUTIONS TOWARD FINDING ALLEVIATION OF THE MEDICAL PROBLEMS ASSOCIATED WITH HEMOPHILIA AND OTHER BLEEDING DISORDERS AND THEIR COMPLICATIONS. DURING THE FISCAL YEAR 2024-2025, THE ASSOCIATION MADE $986 IN PAYMENTS TOWARD THE RESEARCH GRANT AWARDED IN FY 2022-2023.

    Expenses $2,126 · Grants $986

  • IN FISCAL YEAR 2024-2025, THE ASSOCATION SUPPORTED BLEEDNG DISORDERS PROFESSIONALS IN ATTENDING NATIONAL MEETINGS. INFORMATION WAS PROVIDED TO THE GENERAL PUBLIC ON BLEEDING DISORDERS.

    Expenses $1,797 · Grants $300

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • MARIAM VOUTSIS

    CHAIRMAN OF THE BOARD

    Total calculated
    $0
    Hours/week
    2

  • EILEEN MARGOLIES

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • EDWARD G ROGOFF PHD

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • MARK K SVENNINGSON

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • JEFFREY ZACHARIA

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • JOANA BAQUERO

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • THEODORE BUNIN

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • BRIAN EGAN

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • ROBERT M GREER

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • MARK KOVARIK

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • JOSEPH MUGFORD

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • MAGGI PACK

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • AUREO C PINTO JR

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • CHRISTOPHER N TOUSSAINT

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • ALEJANDRO BAQUERO

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • ELIZABETH CEDENO

    EXECUTIVE DIRECTOR-BEGINNING 1/1/25

    Total calculated
    $100,386
    From this org
    $88,698
    From related orgs
    $0
    Other
    $11,688
    Hours/week
    40

  • LINDA E MUGFORD

    EXECUTIVE DIRECTOR-THRU 12/31/24

    Total calculated
    $202,702
    From this org
    $168,448
    From related orgs
    $0
    Other
    $34,254
    Hours/week
    24

    Schedule J breakdown matched by us

    Base
    $168,448
    Bonus
    $0
    Other
    $0
    Deferred
    $16,946
    Nontaxable benefits
    $17,308
    Filer's total
    $202,702

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $441,005
    Expenses
    $960,241
    Contributions
    $384,466
    Grants paid
    $104,180
  • 2023
    Revenue
    $2,305,589
    Expenses
    $1,121,457
    Contributions
    $2,234,392
    Grants paid
    $242,609
  • 2022
    Revenue
    $572,223
    Expenses
    $1,013,221
    Contributions
    $507,967
    Grants paid
    $204,169

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $563,478
    Expenses
    $1,016,115
    Assets (EOY)
    $3,657,906

  • 2020 · 990

    Revenue
    $326,271
    Expenses
    $774,702
    Assets (EOY)
    $4,332,778

  • 2019 · 990

    Revenue
    $2,353,082
    Expenses
    $794,961
    Assets (EOY)
    $4,331,795

  • 2018 · 990

    Revenue
    $435,037
    Expenses
    $908,235
    Assets (EOY)
    $2,847,140

  • 2017 · 990

    Revenue
    $457,870
    Expenses
    $853,672
    Assets (EOY)
    $3,366,104

  • 2016 · 990

    Revenue
    $1,518,743
    Expenses
    $784,373
    Assets (EOY)
    $3,698,929

  • 2015 · 990

    Revenue
    $776,518
    Expenses
    $770,168
    Assets (EOY)
    $2,906,836

  • 2014 · 990

    Revenue
    $848,617
    Expenses
    $850,224
    Assets (EOY)
    $2,967,543

  • 2013 · 990

    Revenue
    $727,251
    Expenses
    $662,940
    Assets (EOY)
    $3,001,979

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

Where these grants went next →

Grants received

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 23 October 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.