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Nonprofiteer
← HEMOPHILIA ASSOCIATION OF NEW YORK INC

Form 990 for tax year 2022

Filed by HEMOPHILIA ASSOCIATION OF NEW YORK INC.

Totals

Total revenue
$572,223
Total expenses
$1,013,221
Contributions and grants received
$507,967
Grants paid
$204,169
Program service revenue
$0
Investment income
$54,143
Other revenue
$10,113
Total assets, end of year
$3,242,886
Total liabilities, end of year
$131,213
Net assets or fund balances, end of year
$3,111,673
Program services expenses (Part IX)
$732,324
Management and general expenses
$231,397
Fundraising expenses
$49,500
Program service expenses (Part III)
$732,324

Program services were 72.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $308,349

  • 1f · All other contributions, gifts and grants

    $199,618

  • 3 · Investment income

    total $59,726 · excluded $59,726

  • 7a · Gross sales of assets other than inventory

    securities $456,106

  • 7b · Less cost or other basis and sales expenses

    securities $461,689

  • 7c · Gain or loss

    securities -$5,583

  • 7d · Net gain or loss

    total -$5,583 · excluded -$5,583

  • 8a · Fundraising events: gross income

    $109,485

  • 8a · Fundraising events: contributions included on line 1c

    $308,349

  • 8b · Fundraising events: direct expenses

    $109,485

  • 8c · Net income from fundraising events

    total $0

  • 11a · Other revenue: OTHER REVENUE

    total $10,113 · excluded $10,113

  • 11e · Other revenue, total

    $10,113

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $147,851 · program services $147,851

  • 2 · Grants to domestic individuals

    total $56,318 · program services $56,318

  • 5 · Compensation of officers, directors and key employees

    total $202,489 · program services $128,398 · management and general $60,646 · fundraising $13,445

  • 7 · Other salaries and wages

    total $177,669 · program services $112,660 · management and general $53,212 · fundraising $11,797

  • 8 · Pension plan contributions

    total $16,708 · program services $10,595 · management and general $5,004 · fundraising $1,109

  • 9 · Other employee benefits

    total $32,635 · program services $20,694 · management and general $9,774 · fundraising $2,167

  • 10 · Payroll taxes

    total $30,796 · program services $19,528 · management and general $9,223 · fundraising $2,045

  • 11b · Fees: legal

    total $1,750 · management and general $1,750

  • 11c · Fees: accounting

    total $49,170 · management and general $49,170

  • 11f · Fees: investment management

    total $9,202 · management and general $9,202

  • 11g · Fees: other

    total $38,554 · program services $23,399 · management and general $3,115 · fundraising $12,040

  • 13 · Office expenses

    total $21,336 · program services $13,530 · management and general $6,389 · fundraising $1,417

  • 14 · Information technology

    total $6,316 · program services $4,188 · management and general $1,740 · fundraising $388

  • 17 · Travel

    total $37,053 · program services $35,556 · management and general $1,201 · fundraising $296

  • 19 · Conferences, conventions and meetings

    total $19,751 · program services $19,193 · management and general $467 · fundraising $91

  • 22 · Depreciation, depletion and amortization

    total $26,464 · program services $16,781 · management and general $7,926 · fundraising $1,757

  • 23 · Insurance

    total $11,340 · program services $7,190 · management and general $3,397 · fundraising $753

  • 24a · Other expenses: EVENT

    total $88,111 · program services $88,111

  • 24b · Other expenses: PRINTING AND PUBLICATIO

    total $22,513 · program services $17,509 · management and general $3,982 · fundraising $1,022

  • 24c · Other expenses: MISCELLANEOUS

    total $5,110 · program services $3,040 · management and general $1,829 · fundraising $241

  • 24d · Other expenses: SUPPLIES

    total $4,788 · program services $3,056 · management and general $1,278 · fundraising $454

  • 24e · All other expenses

    total $7,297 · program services $4,727 · management and general $2,092 · fundraising $478

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $104,771 · end of year $106,922

  • 2 · Savings and temporary cash investments

    beginning of year $120,800 · end of year $17,158

  • 3 · Pledges and grants receivable

    beginning of year $685,696 · end of year $312,725

  • 4 · Accounts receivable

    beginning of year $0 · end of year $2,850

  • 9 · Prepaid expenses and deferred charges

    beginning of year $30,108 · end of year $79,246

  • 10a · Land, buildings and equipment: cost or other basis

    $1,173,666

  • 10b · Land, buildings and equipment: accumulated depreciation

    $318,301

  • 10c · Land, buildings and equipment, net

    beginning of year $881,829 · end of year $855,365

  • 11 · Investments: publicly traded securities

    beginning of year $1,834,702 · end of year $1,868,620

  • 17 · Accounts payable and accrued expenses

    beginning of year $143,971 · end of year $127,963

  • 19 · Deferred revenue

    beginning of year $13,000 · end of year $3,250

  • 27 · Net assets without donor restrictions

    beginning of year $2,680,717 · end of year $2,745,818

  • 28 · Net assets with donor restrictions

    beginning of year $820,218 · end of year $365,855

Mission and programs · 2022

Mission

TO PROVIDE INFORMATION, ADVOCACY, ASSISTANCE AND SCHOLARSHIPS FOR THOSE WITH BLEEDING DISORDERS, AS WELL AS PROVIDE RESEARCH FUNDING FOR BETTER THERAPIES AND POTENTIAL CURES FOR BLEEDING DISORDERS.

Activities or mission (Part I)

FUND CURES FOR HEMOPHILIA AND RELATED CONDITIONS.

  • PATIENT SERVICES: MOST OF THE ASSOCIATION'S ACTIVITY IS DIRECTED TOWARD PROVIDING INFORMATION AND ASSISTANCE TO THE BLEEDING DISORDERS COMMUNITY SOME TO SPECIFIC INDIVIDUALS AND FAMILIES. DURING 2022-2023 60.2% OF STAFF TIME-EFFORT WAS EXPENDED IN THIS SERVICE FUNCTION, INCLUDED WAS PROVIDING FINANCIAL ASSISTANCE, SPECIFIC PROBLEM RESOLUTION, COUNSELING, OUT-REFERRALS, EDUCATION, ADVOCACY, AND INFORMATIONAL AND EDUCATIONAL MATERIALS FOR PATIENTS/CLIENTS. DURING THE FISCAL YEAR 2022-2023 847 PERSONS WITH BLEEDING DISORDERS AND THEIR FAMILIES WERE SERVED, 11% OF CLIENTS RECEIVED EMERGENCY FINANCIAL ASSISTANCE OR OTHER FORMS OF SPECIFIC ASSISTANCE OR AWARDS TOTALING $90,046. SIXTEEN GROUP MEETINGS WERE CONDUCTED THROUGHOUT THE YEAR. HIGHLIGHTS TEEN RETREAT AND FAMILY EDUCATIONAL CONFERENCE.

    Expenses $628,978 · Grants $137,433

  • THE ORGANIZATION SUPPORTS SCIENTIFIC STUDIES AND INVESTIGATIONS AT QUALIFIED INSTITUTIONS TOWARD FINDING ALLEVIATION OF THE MEDICAL PROBLEMS OF HEMOPHILIA AND OTHER BLEEDING DISORDERS AND THEIR COMPLICATIONS. DURING THE FISCAL YEAR 2022-2023 THE ASSOCIATION AWARDED A 2-YEAR, $200,000 RESEARCH GRANT.

    Expenses $70,549 · Grants $63,851

  • PUBLIC HEALTH AND PROFESSIONAL HEALTH EDUCATION: IN FY 2022-2023 THE ASSOCIATION SUPPORTED BLEEDING DISORDERS PROFESSIONALS IN ATTENDING NATIONAL MEETINGS. ALSO PROVIDED INFORMATION TO THE GENERAL PUBLIC.

    Expenses $29,166 · Grants $2,885

  • COMMUNITY SERVICES

    Expenses $3,631

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • MARIAM VOUTSIS

    PRESIDENT

    Total calculated
    $0
    Hours/week
    2

  • EILEEN MARGOLIES

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    2

  • EDWARD G ROGOFF PHD

    BOARD CHAIRPERSON

    Total calculated
    $0
    Hours/week
    2

  • MARK K SVENNINGSON

    TREASURER

    Total calculated
    $0
    Hours/week
    2

  • JEFFREY ZACHARIA

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    2

  • JOANA BAQUERO

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • THEODORE BUNIN

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • BRIAN EGAN

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • ROBERT M GREER

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • MARK KOVARIK

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • JOSEPH MUGFORD

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • MAGGI PACK

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • AUREO C PINTO JR

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • CHRISTOPHER N TOUSSAINT

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • LINDA E MUGFORD

    EXECUTIVE DIRECTOR

    Total calculated
    $198,893
    From this org
    $158,963
    From related orgs
    $0
    Other
    $39,930
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $158,963
    Bonus
    $0
    Other
    $0
    Deferred
    $20,161
    Nontaxable benefits
    $19,769
    Filer's total
    $198,893

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Form 990 of other organizations
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2022
Filed
8 May 2024
IRS schema version
2022v5.0
Source object
202431299349300038

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