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Nonprofiteer
← CURESHANK

Form 990 for tax year 2022

Filed by CURESHANK.

Totals

Total revenue
$487,302
Total expenses
$219,660
Contributions and grants received
$487,299
Grants paid
$5,000
Program service revenue
$0
Investment income
$3
Other revenue
$0
Total assets, end of year
$854,048
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$854,048
Program services expenses (Part IX)
$194,075
Management and general expenses
$25,585
Fundraising expenses
$0
Program service expenses (Part III)
$194,075

Program services were 88.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $487,299

  • 3 · Investment income

    total $3 · excluded $3

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $5,000 · program services $5,000

  • 11a · Fees: management

    total $147,808 · program services $147,808

  • 11b · Fees: legal

    total $30,067 · program services $30,067

  • 11c · Fees: accounting

    total $680 · management and general $680

  • 12 · Advertising and promotion

    total $16,919 · management and general $16,919

  • 13 · Office expenses

    total $544 · management and general $544

  • 16 · Occupancy

    total $2,644 · management and general $2,644

  • 17 · Travel

    total $3,507 · management and general $3,507

  • 23 · Insurance

    total $1,291 · management and general $1,291

  • 24a · Other expenses: CONCEPTUAL MODEL

    total $3,700 · program services $3,700

  • 24b · Other expenses: FAMILY STORIES

    total $3,600 · program services $3,600

  • 24c · Other expenses: VOICE OF PATIENT REPORT

    total $3,000 · program services $3,000

  • 24d · Other expenses: MEMBERSHIP FEES

    total $900 · program services $900

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $437,681 · end of year $853,047

  • 2 · Savings and temporary cash investments

    beginning of year $148,725 · end of year $1,001

  • 27 · Net assets without donor restrictions

    beginning of year $586,406 · end of year $854,048

Mission and programs · 2022

Mission

TO ACCELERATE THE DEVELOPMENT OF TREATMENTS FOR PHELAN-MCDERMID SYNDROME AND SHANK-RELATED DISORDERS. OUR APPROACH IS TO IDENTIFY AND FUND PROJECTS THAT OVERCOME CRITICAL BARRIERS TO SUCCESSFUL DRUG DEVELOPMENT AND TO COORDINATE SCIENTIFIC EFFORTS TO IMPROVE EFFICIENCY AND SPEED IN THE FIELD.

Activities or mission (Part I)

TO ACCELERATE THE DEVELOPMENT OF TREATMENTS FOR PHELAN-MCDERMID SYNDROME AND SHANK-RELATED DISORDERS.

  • CURESHANK WILL BRING THE SCIENTIFIC COMMUNITY TOGETHER BY ORGANIZING SCIENTIFIC SYMPOSIA AND OTHER MEETINGS. WITH OUR SCIENTIFIC STAKEHOLDERS, WE WILL DEVELOP A RESEARCH ROADMAP TO A CURE FOR SHANK-RELATED DISORDERS. WE WILL ALSO SERVE AS AN HONEST BROKER TO ENABLE COLLABORATION AMONG SHANK RESEARCHERS AND COORDINATION OF THEIR PROJECTS TO IMPROVE THE SPEED AND EFFICIENCY OF RESEARCH.

    Expenses $107,292 · Grants $5,000

  • CURESHANK WILL FUND TARGETED RESEARCH STUDIES, INCLUDING SCIENTIFIC PROJECTS THAT ELUCIDATE THE UNDERLYING DISEASE MECHANISMS, THAT IDENTIFY AND VALIDATE TARGETS FOR DRUG DEVELOPMENT, AND THAT DE-RISK PROMISING DRUG TARGETS. CURESHANK WILL ALSO FUND CERTAIN PROMISING CLINICAL TRIALS READINESS INITIATIVES. THESE ACTIVITIES ARE NEEDED TO INCREASE THE NUMBER OF DRUG TARGETS MOVING FROM ACADEMIC RESEARCH LABS INTO SUCCESSFUL INDUSTRY-SPONSORED CLINICAL TRIALS.

    Expenses $85,883

  • CURESHANK WILL ADVOCATE FOR INCREASED FUNDING OF SHANK RESEARCH BY OTHER STAKEHOLDERS AND STRATEGIZE WITH RESEARCHERS ON INITIATIVES, SUCH AS SEED GRANTS, THAT COULD HELP ATTRACT RESEARCH INVESTMENT BY OTHER FUNDERS.

    Expenses $900

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Geraldine Bliss

    PRESIDENT

    Total calculated
    $0
    Hours/week
    40

  • Paulina Rychenkova

    SECRETARY

    Total calculated
    $0
    Hours/week
    25

  • Abby Lievense

    TREASURER

    Total calculated
    $0
    Hours/week
    15

  • Talya Emery Silva

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2022
Filed
1 November 2023
IRS schema version
2022v5.0
Source object
202343139349304424

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