- Revenue 2024
- $597,811
- Expenses 2024
- $528,155
Program services were 86.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- H84
- Classification
- 1200
- Street
- 11777 SAN VICENTE BLVD STE 500
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2024
Mission
CureSHANK has a singular purpose: To accelerate the development of treatments for Phelan-McDermid Syndrome and SHANK-related disorders. Our approach is to identify and fund projects that overcome critical barriers to successful drug development and to coordinate scientific efforts to improve efficiency and speed in the field.
-
CureSHANK will bring the scientific community together by organizing scientific symposium and other meetings. With our scientific stakeholders, we will develop a research roadmap to a cure for SHANK-related disorders. We will also serve as an honest broker to enable collaboration among SHANK researchers and coordination of their projects to improve the speed and efficiency of research.
Expenses $279,862 · Grants $83,728
-
CureSHANK will fund targeted research studies, including scientific projects that elucidate the underlying disease mechanisms, that identify and validate targets for drug development, and that de-risk promising drug targets. CureSHANK will also fund certain promising clinical trials readiness initiatives. These activities are needed to increase the number of drug targets moving from academic research labs into successful industry-sponsored clinical trials.
Expenses $131,845
-
CureSHANK will advocate for increased funding of SHANK research by other stakeholders and strategize with researchers on initiatives, such as seed grants, that could help attract research investment by other funders.
Expenses $45,063
As filed on the 2024 return.
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Geraldine Bliss
President
- Total calculated
- $0
- Hours/week
- 50
-
Talya Emery Silva
Vice President
- Total calculated
- $0
- Hours/week
- 50
-
Abby Lievense
Treasurer
- Total calculated
- $0
- Hours/week
- 20
-
Laura Hinrichsen
Secretary
- Total calculated
- $0
- Hours/week
- 10
-
Grace Li
Director
- Total calculated
- $0
- Hours/week
- 10
-
Jenny Graham Beeson
Director
- Total calculated
- $0
- Hours/week
- 10
-
Laura Hinrichsen
Director
- Total calculated
- $0
- Hours/week
- 10
-
Paulina Rychenkova
Director
- Total calculated
- $0
- Hours/week
- 5
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $597,811
- Expenses
- $528,155
- Contributions
- $586,766
- Grants paid
- $83,728
-
2023
- Revenue
- $464,972
- Expenses
- $287,968
- Contributions
- $464,968
- Grants paid
- $50,633
-
2022
- Revenue
- $487,302
- Expenses
- $219,660
- Contributions
- $487,299
- Grants paid
- $5,000
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $547,552
- Expenses
- $18,174
- Assets (EOY)
- $586,406
-
2020 · 990-EZ
- Revenue
- $46,065
- Expenses
- $7,939
- Assets (EOY)
- $57,028
-
2019 · 990-EZ
- Revenue
- $24,550
- Expenses
- $3,784
- Assets (EOY)
- $20,766
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.
Grants made
-
$62,474
2024
-
$30,000
2023 SEED GRANTS
-
$10,000
2024
-
$10,000
2023 GRANTS
Grants received
-
COMMUNITY FOUNDATION FOR BREVARD INC
$100,000
2023 HEALTH & WELLNESS
-
COMMUNITY FOUNDATION FOR BREVARD INC
$100,000
2024 HEALTH & WELLNESS
-
2022 For grant recipient's exempt purposes
-
2023 For grant recipient's exempt purposes
-
2024 For grant recipient's exempt purposes
-
$15,000
2022 IN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE
-
2024 GENERAL SUPPORT
-
$10,000
2023 FOR RECIPIENT'S EXEMPT PURPOSE
-
$10,000
2024 IN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE
-
2023 HEALTH
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 13 October 2026 and read 26 October 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.