Totals
- Total revenue
- $330,431
- Total expenses
- $178,391
- Contributions and grants received
- $329,977
- Grants paid
- $177,385
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $454
- Total assets, end of year
- $557,893
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $557,893
- Program services expenses (Part IX)
- $177,385
- Management and general expenses
- $1,006
- Fundraising expenses
- $0
- Program service expenses (Part III)
- $177,385
Program services were 99.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1a · Federated campaigns
$0
-
1b · Membership dues
$0
-
1c · Fundraising events
$0
-
1d · Related organizations
$0
-
1e · Government grants (contributions)
$0
-
1f · All other contributions, gifts and grants
$329,977
-
1g · Noncash contributions included above
$0
-
2a · Program service revenue
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
2b · Program service revenue
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
2c · Program service revenue
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
2d · Program service revenue
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
2e · Program service revenue
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
2f · All other program service revenue
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
3 · Investment income
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
4 · Income from investment of tax-exempt bond proceeds
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
5 · Royalties
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
6a · Gross rents
real property $0 · personal property $0
-
6b · Less rental expenses
real property $0 · personal property $0
-
6c · Rental income or loss
real property $0 · personal property $0
-
6d · Net rental income or loss
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
7a · Gross sales of assets other than inventory
securities $0 · other assets $0
-
7b · Less cost or other basis and sales expenses
securities $0 · other assets $0
-
7c · Gain or loss
securities $0 · other assets $0
-
7d · Net gain or loss
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
8a · Fundraising events: gross income
$0
-
8a · Fundraising events: contributions included on line 1c
$0
-
8b · Fundraising events: direct expenses
$0
-
8c · Net income from fundraising events
total $0 · unrelated business $0 · excluded $0
-
9a · Gaming: gross income
$0
-
9b · Gaming: direct expenses
$0
-
9c · Net income from gaming
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
10a · Gross sales of inventory
$764
-
10b · Cost of goods sold
$310
-
10c · Net income from sales of inventory
total $454 · related or exempt $0 · unrelated business $0 · excluded $0
-
11a · Other revenue
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
11b · Other revenue
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
11c · Other revenue
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
11d · All other revenue
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
11e · Other revenue, total
$0
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $177,385 · program services $177,385
-
2 · Grants to domestic individuals
total $0 · program services $0
-
3 · Grants to foreign organizations and individuals
total $0 · program services $0
-
4 · Benefits paid to or for members
total $0 · program services $0
-
5 · Compensation of officers, directors and key employees
total $0 · program services $0 · management and general $0 · fundraising $0
-
6 · Compensation of disqualified persons
total $0 · program services $0 · management and general $0 · fundraising $0
-
7 · Other salaries and wages
total $0 · program services $0 · management and general $0 · fundraising $0
-
8 · Pension plan contributions
total $0 · program services $0 · management and general $0 · fundraising $0
-
9 · Other employee benefits
total $0 · program services $0 · management and general $0 · fundraising $0
-
10 · Payroll taxes
total $0 · program services $0 · management and general $0 · fundraising $0
-
11a · Fees: management
total $0 · program services $0 · management and general $0 · fundraising $0
-
11b · Fees: legal
total $0 · program services $0 · management and general $0 · fundraising $0
-
11c · Fees: accounting
total $0 · program services $0 · management and general $0 · fundraising $0
-
11d · Fees: lobbying
total $0 · program services $0 · management and general $0 · fundraising $0
-
11e · Fees: professional fundraising services
total $0 · fundraising $0
-
11f · Fees: investment management
total $0 · program services $0 · management and general $0 · fundraising $0
-
11g · Fees: other
total $0 · program services $0 · management and general $0 · fundraising $0
-
12 · Advertising and promotion
total $0 · program services $0 · management and general $0 · fundraising $0
-
13 · Office expenses
total $0 · program services $0 · management and general $0 · fundraising $0
-
14 · Information technology
total $617 · program services $0 · management and general $617 · fundraising $0
-
15 · Royalties
total $0 · program services $0 · management and general $0 · fundraising $0
-
16 · Occupancy
total $0 · program services $0 · management and general $0 · fundraising $0
-
17 · Travel
total $0 · program services $0 · management and general $0 · fundraising $0
-
18 · Travel or entertainment for public officials
total $0 · program services $0 · management and general $0 · fundraising $0
-
19 · Conferences, conventions and meetings
total $0 · program services $0 · management and general $0 · fundraising $0
-
20 · Interest
total $0 · program services $0 · management and general $0 · fundraising $0
-
21 · Payments to affiliates
total $0 · program services $0 · management and general $0 · fundraising $0
-
22 · Depreciation, depletion and amortization
total $0 · program services $0 · management and general $0 · fundraising $0
-
23 · Insurance
total $0 · program services $0 · management and general $0 · fundraising $0
-
24a · Other expenses: State and federal tax services and filing fees
total $336 · program services $0 · management and general $336 · fundraising $0
-
24b · Other expenses: Office Supplies and Shipping Fees
total $53 · program services $0 · management and general $53 · fundraising $0
-
24c · Other expenses
total $0 · program services $0 · management and general $0 · fundraising $0
-
24d · Other expenses
total $0 · program services $0 · management and general $0 · fundraising $0
-
24e · All other expenses
total $0 · program services $0 · management and general $0 · fundraising $0
-
26 · Joint costs (an allocation of the lines above)
total $0 · program services $0 · management and general $0 · fundraising $0
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $405,853 · end of year $557,893
-
2 · Savings and temporary cash investments
beginning of year $0 · end of year $0
-
3 · Pledges and grants receivable
beginning of year $0 · end of year $0
-
4 · Accounts receivable
beginning of year $0 · end of year $0
-
5 · Loans and receivables from officers and key people
beginning of year $0 · end of year $0
-
6 · Loans and receivables from disqualified persons
beginning of year $0 · end of year $0
-
7 · Other notes and loans receivable
beginning of year $0 · end of year $0
-
8 · Inventories for sale or use
beginning of year $0 · end of year $0
-
9 · Prepaid expenses and deferred charges
beginning of year $0 · end of year $0
-
10a · Land, buildings and equipment: cost or other basis
$0
-
10b · Land, buildings and equipment: accumulated depreciation
$0
-
10c · Land, buildings and equipment, net
beginning of year $0 · end of year $0
-
11 · Investments: publicly traded securities
beginning of year $0 · end of year $0
-
12 · Investments: other securities
beginning of year $0 · end of year $0
-
13 · Investments: program-related
beginning of year $0 · end of year $0
-
14 · Intangible assets
beginning of year $0 · end of year $0
-
15 · Other assets
beginning of year $0 · end of year $0
-
17 · Accounts payable and accrued expenses
beginning of year $0 · end of year $0
-
18 · Grants payable
beginning of year $0 · end of year $0
-
19 · Deferred revenue
beginning of year $0 · end of year $0
-
20 · Tax-exempt bond liabilities
beginning of year $0 · end of year $0
-
21 · Escrow or custodial account liability
beginning of year $0 · end of year $0
-
22 · Loans and payables to officers and key people
beginning of year $0 · end of year $0
-
23 · Secured mortgages and notes payable
beginning of year $0 · end of year $0
-
24 · Unsecured notes and loans payable
beginning of year $0 · end of year $0
-
25 · Other liabilities
beginning of year $0 · end of year $0
-
29 · Capital stock, trust principal or current funds
beginning of year $0 · end of year $0
-
30 · Paid-in or capital surplus, or land, building or equipment fund
beginning of year $0 · end of year $0
-
31 · Retained earnings, endowment or other funds
beginning of year $405,853 · end of year $557,893
Mission and programs · 2024
Mission
Support and fund the development of life-saving treatment for patients with pyruvate dehydrogenase complex deficiency and related genetic diseases The activities of the foundation include providing grant funding to hospitals and medical research facilities which are conducting medical research for understanding and treatment of this condition The foundation also provides funding to individuals that assist with early patient identification through newborn screening for this condition.
Activities or mission (Part I)
Support and fund the development of life-saving treatment for patients with pyruvate dehydrogenase complex deficiency and related genetic diseases.
-
The foundation makes annual grants to tax exempt medical research facilities which conduct research in a variety of fields related to PDCD which will further the foundations mission of expanding the understanding and treatment of this condition This was a payment for University of Texas Southwestern UTSW Medical Facility as part of OTD Contract SRA202302-0021 to conduct gene therapy research for PDHA1 genetic mutations causing Pyruvate Dehydrogenase Complex Deficiency including but not limited to synthesis of vector design and development of a mouse colony and AAV vector manufacture
Expenses $172,385 · Grants $172,385
-
Childrens Hospital of Philadelphia Activity Assay focuses on optimizing the detection of acetyl-CoA which is crucial for PDCD within the mass spectrometry instruments sensitivity range. The study compares media versus cells with reduced interference. Various PDCD lines mild vs. severe will be examined and contrasted. Additionally PDCD will be compared with other tricarboxylic cycle deficiencies and ETC defects to ensure distinguishability.
Expenses $5,000 · Grants $5,000
As filed on the 2024 return.
Listed in Part VII
-
Frances Pimentel
Chief Executive Officer
- Total calculated
- $0
- Hours/week
- 10
-
Jon Pimentel
Chief Financial Officer
- Total calculated
- $0
- Hours/week
- 5
-
Kimberlee Muenzer
Secretary
- Total calculated
- $0
- Hours/week
- 1
-
Kim Higbee
Director
- Total calculated
- $0
- Hours/week
- 1
-
Katy Cairo
Director
- Total calculated
- $0
- Hours/week
- 1
-
Patricia Medlen
Director
- Total calculated
- $0
- Hours/week
- 1
-
Carly Tasiopoulos
Director
- Total calculated
- $0
- Hours/week
- 1
-
Chris Tasiopoulos
Director
- Total calculated
- $0
- Hours/week
- 1
-
Nikki Kulovitz
Director
- Total calculated
- $0
- Hours/week
- 1
-
Molly Naccarato
Director
- Total calculated
- $0
- Hours/week
- 1
-
Brandy Jackson
Director
- Total calculated
- $0
- Hours/week
- 1
-
Layna O'Connor
Director
- Total calculated
- $0
- Hours/week
- 1
-
Natasha Baril
Director
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
UT Southwestern Medical Center
$172,385
This was for PDCD gene therapy research
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 10 May 2025
- IRS schema version
- 2024v5.1
- Source object
- 202521309349300702
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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