- Revenue 2024
- $330,431
- Expenses 2024
- $178,391
Program services were 99.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- H20
- Classification
- 1000
- Street
- 1106 BUCKBRUSH DR
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2024
Mission
Support and fund the development of life-saving treatment for patients with pyruvate dehydrogenase complex deficiency and related genetic diseases The activities of the foundation include providing grant funding to hospitals and medical research facilities which are conducting medical research for understanding and treatment of this condition The foundation also provides funding to individuals that assist with early patient identification through newborn screening for this condition.
Activities or mission (Part I)
Support and fund the development of life-saving treatment for patients with pyruvate dehydrogenase complex deficiency and related genetic diseases.
-
The foundation makes annual grants to tax exempt medical research facilities which conduct research in a variety of fields related to PDCD which will further the foundations mission of expanding the understanding and treatment of this condition This was a payment for University of Texas Southwestern UTSW Medical Facility as part of OTD Contract SRA202302-0021 to conduct gene therapy research for PDHA1 genetic mutations causing Pyruvate Dehydrogenase Complex Deficiency including but not limited to synthesis of vector design and development of a mouse colony and AAV vector manufacture
Expenses $172,385 · Grants $172,385
-
Childrens Hospital of Philadelphia Activity Assay focuses on optimizing the detection of acetyl-CoA which is crucial for PDCD within the mass spectrometry instruments sensitivity range. The study compares media versus cells with reduced interference. Various PDCD lines mild vs. severe will be examined and contrasted. Additionally PDCD will be compared with other tricarboxylic cycle deficiencies and ETC defects to ensure distinguishability.
Expenses $5,000 · Grants $5,000
As filed on the 2024 return.
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Frances Pimentel
Chief Executive Officer
- Total calculated
- $0
- Hours/week
- 10
-
Jon Pimentel
Chief Financial Officer
- Total calculated
- $0
- Hours/week
- 5
-
Kimberlee Muenzer
Secretary
- Total calculated
- $0
- Hours/week
- 1
-
Kim Higbee
Director
- Total calculated
- $0
- Hours/week
- 1
-
Katy Cairo
Director
- Total calculated
- $0
- Hours/week
- 1
-
Patricia Medlen
Director
- Total calculated
- $0
- Hours/week
- 1
-
Carly Tasiopoulos
Director
- Total calculated
- $0
- Hours/week
- 1
-
Chris Tasiopoulos
Director
- Total calculated
- $0
- Hours/week
- 1
-
Nikki Kulovitz
Director
- Total calculated
- $0
- Hours/week
- 1
-
Molly Naccarato
Director
- Total calculated
- $0
- Hours/week
- 1
-
Brandy Jackson
Director
- Total calculated
- $0
- Hours/week
- 1
-
Layna O'Connor
Director
- Total calculated
- $0
- Hours/week
- 1
-
Natasha Baril
Director
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $330,431
- Expenses
- $178,391
- Contributions
- $329,977
- Grants paid
- $177,385
-
2023
- Revenue
- $426,280
- Expenses
- $175,725
- Contributions
- $426,808
- Grants paid
- $174,884
-
2022
- Revenue
- $208,000
- Expenses
- $52,702
- Contributions
- $208,000
- Grants paid
- $50,000
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Grants made
-
UT Southwestern Medical Center
$172,385
2024 This was for PDCD gene therapy research
-
UT Southwestern Medical Center
$172,385
2023 This was for PDCD research
-
UT SOUTHWESTERN MEDICAL CENTER
$50,000
2022 THIS WAS FOR PDCD RESEARCH
Grants received
-
$52,715
2024 GENERAL SUPPORT
-
2022 GENERAL SUPPORT
-
2023 GENERAL SUPPORT
-
$35,694
2023 UNRESTRICTED
-
2024 GENERAL SUPPORT
-
DONOR ADVISED CHARITABLE GIVING
$27,000
2023 HEALTH
-
2023 Support for Charitable Mission
-
2025 GENERAL SUPPORT
-
JACKSONVILLE FRATERNAL ORDER OF POLICE FOUNDATION INC
no cash amount reported
2024 Support for Charitable Mission
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 13 October 2026 and read 1 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.