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Nonprofiteer
← ANSWER ALS

Form 990 for tax year 2022

Filed by ANSWER ALS.

Totals

Total revenue
-$12,049
Total expenses
$1,225,402
Contributions and grants received
$957,217
Grants paid
$700,000
Program service revenue
$0
Investment income
$518
Other revenue
-$969,784
Total assets, end of year
$6,354,337
Total liabilities, end of year
$31,220
Net assets or fund balances, end of year
$6,323,117
Program services expenses (Part IX)
$1,042,733
Management and general expenses
$88,498
Fundraising expenses
$94,171
Program service expenses (Part III)
$1,042,733

Program services were 85.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $711,667

  • 1f · All other contributions, gifts and grants

    $245,550

  • 3 · Investment income

    total $518 · excluded $518

  • 8a · Fundraising events: gross income

    $1,028,113

  • 8a · Fundraising events: contributions included on line 1c

    $711,667

  • 8b · Fundraising events: direct expenses

    $2,017,153

  • 8c · Net income from fundraising events

    total -$989,040 · excluded -$989,040

  • 11a · Other revenue: INVESTMENT GAIN

    total $19,256 · related or exempt $19,256

  • 11e · Other revenue, total

    $19,256

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $700,000 · program services $700,000

  • 7 · Other salaries and wages

    total $59,527 · program services $59,527

  • 10 · Payroll taxes

    total $5,163 · program services $5,163

  • 11c · Fees: accounting

    total $14,568 · management and general $14,568

  • 11g · Fees: other

    total $69,000 · program services $69,000

  • 12 · Advertising and promotion

    total $2,026 · program services $2,026

  • 13 · Office expenses

    total $5,577 · program services $228 · management and general $5,250 · fundraising $99

  • 14 · Information technology

    total $13,110 · program services $6,822 · management and general $2,900 · fundraising $3,388

  • 17 · Travel

    total $4,482 · program services $2,634 · management and general $1,848

  • 22 · Depreciation, depletion and amortization

    total $167,539 · program services $117,277 · fundraising $50,262

  • 23 · Insurance

    total $11,185 · management and general $11,185

  • 24a · Other expenses: DONATIONS

    total $73,088 · program services $73,088

  • 24b · Other expenses: BAD DEBT

    total $36,524 · management and general $36,524

  • 24c · Other expenses: OTHER FUNDRAISING EXPEN

    total $31,239 · fundraising $31,239

  • 24d · Other expenses: LEASE EXPENSE

    total $12,226 · management and general $12,226

  • 24e · All other expenses

    total $20,148 · program services $6,968 · management and general $3,997 · fundraising $9,183

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $3,851,520 · end of year $5,903,332

  • 3 · Pledges and grants receivable

    beginning of year $1,024,024 · end of year $252,500

  • 4 · Accounts receivable

    beginning of year $2,832 · end of year $5,971

  • 9 · Prepaid expenses and deferred charges

    beginning of year $44,989 · end of year $1,836

  • 10a · Land, buildings and equipment: cost or other basis

    $555,329

  • 10b · Land, buildings and equipment: accumulated depreciation

    $387,182

  • 10c · Land, buildings and equipment, net

    beginning of year $335,686 · end of year $168,147

  • 12 · Investments: other securities

    beginning of year $2,497,211

  • 15 · Other assets

    beginning of year $996 · end of year $22,551

  • 17 · Accounts payable and accrued expenses

    beginning of year $16,415 · end of year $9,174

  • 25 · Other liabilities

    beginning of year $115,000 · end of year $22,046

  • 27 · Net assets without donor restrictions

    beginning of year $6,601,819 · end of year $6,070,617

  • 28 · Net assets with donor restrictions

    beginning of year $1,024,024 · end of year $252,500

Mission and programs · 2022

Mission

TO FIND SOLUTIONS FOR PEOPLE LIVING WITH ALS NOW AND FOR THE FUTURE BY UTILIZING KNOWLEDGE OF PATIENTS, LEADING RESEARCHERS AND TECHNOLOGY TO SEEK IMMEDIATE SOLUTIONS TO IMPROVE THE LIVES OF THOSE LIVING WITH ALS UNTIL A TREATMENT OR CURE IS FOUND; DISCOVER WHAT CAUSES ALS; DEVELOP MODELS TO UNDERSTAND ALS AND SCREEN FOR DRUG AND CELLULAR THERAPY; DISCOVER THERAPIES THAT COULD SUBSTANTIALLY SLOW OR HALT THE PROGRESS OF ALS AND ULTIMATELY CURE THE DISEASE; PROVIDE ALL GATHERED INFORMATION FREE FOR WORLDWIDE USE BY CLINICIANS, SCIENTISTS AND PHARMA TO RAPIDLY ADVANCE THERAPEUTICS.

  • CREATING THE LARGEST AND MOST COMPREHENSIVE FOUNDATION OF ALS DATA EVER AMASSED, ENCOMPANSING CLINICAL, CHEMICAL, GENETIC, PROTEIN, HISTORICAL AND BIOLOGICAL DATA FROM AN ENORMOUS SAMPLING OF ALS PATIENTS IN THE UNITED STATES. IN COLLABORATION WITH MACHINE LEARNING AND BIG DATA TECHNOLOGY, THE DATA WILL BE MINED TO UNCOVER ALS CAUSES, SUBTYPES, PATHWAYS GONE AWRY AND DRUG TARGETS. THIS WILL ESTABLISH A LARGE AND CRITICAL FOUNDATION FOR NEW CLINICAL TRIALS, DEVELOP NEW WAYS TO CATEGORIZE PATIENTS TO IDENTIFY SPECIFIC DRUGGABLE PATHWAYS AND SUBTYPE BIOMARKERS AND DISEASE PATHOPHYSIOLOGY TO AID NOT ONLY IN EARLY DIAGNOSIS OF THE DISEASE, BUT ALSO TO MONITOR THE EFFICACY OF NEWLY DEVELOPED TREATMENTS.

    Expenses $1,042,733 · Grants $700,000

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Beverly Goulet

    CHAIRMAN

    Total calculated
    $0
    Hours/week
    1

  • Clare Durrett

    CO-DIRECTOR/MANAGING COORD

    Total calculated
    $0
    Hours/week
    20

  • Paul Varisco

    DIRECTOR

    Total calculated
    $0
    Hours/week
    5

  • Steve Gleason

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • William J Quinlan Jr

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Steve Finkbeiner

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Pat Quinn

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Michelle Farr

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Elizabeth Bruce

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • John Costello

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

  • JOHN HOPKINS UNIVERSITY SCHOOL OF MEDICINE

    $500,000

    GRANT TO FUND ALS RESEARCH.

  • MASSACHUSETTS INSTITUTE OF TECHNOLOGY- MCGOVERN INSTITUTE

    $200,000

    DONATION TO ALS RESEARCH.

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Provenance

Return type
form_990
Tax year
2022
Filed
18 November 2023
IRS schema version
2022v5.0
Source object
202333249349301113

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