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ANSWER ALS

EIN 47-1643994 NEW ORLEANS, LA

Revenue 2024
$2,817,907
Expenses 2024
$3,245,884

Program services were 96.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G50
Classification
1280
Street
930 ROBERT E LEE BLVD

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

TO FIND SOLUTIONS FOR PEOPLE LIVING WITH ALS NOW AND FOR THE FUTURE BY UTILIZING KNOWLEDGE OF PATIENTS, LEADING RESEARCHERS AND TECHNOLOGY TO SEEK IMMEDIATE SOLUTIONS TO IMPROVE THE LIVES OF THOSE LIVING WITH ALS UNTIL A TREATMENT OR CURE IS FOUND; DISCOVER WHAT CAUSES ALS; DEVELOP MODELS TO UNDERSTAND ALS AND SCREEN FOR DRUG AND CELLULAR THERAPY; DISCOVER THERAPIES THAT COULD SUBSTANTIALLY SLOW OR HALT THE PROGRESS OF ALS AND ULTIMATELY CURE THE DISEASE; PROVIDE ALL GATHERED INFORMATION FREE FOR WORLDWIDE USE BY CLINICIANS, SCIENTISTS AND PHARMA TO RAPIDLY ADVANCE THERAPEUTICS.

  • CREATING THE LARGEST AND MOST COMPREHENSIVE FOUNDATION OF ALS DATA EVER AMASSED, ENCOMPANSING CLINICAL, CHEMICAL, GENETIC, PROTEIN, HISTORICAL AND BIOLOGICAL DATA FROM AN ENORMOUS SAMPLING OF ALS PATIENTS IN THE UNITED STATES. IN COLLABORATION WITH MACHINE LEARNING AND BIG DATA TECHNOLOGY, THE DATA WILL BE MINED TO UNCOVER ALS CAUSES, SUBTYPES, PATHWAYS GONE AWRY AND DRUG TARGETS. THIS WILL ESTABLISH A LARGE AND CRITICAL FOUNDATION FOR NEW CLINICAL TRIALS, DEVELOP NEW WAYS TO CATEGORIZE PATIENTS TO IDENTIFY SPECIFIC DRUGGABLE PATHWAYS AND SUBTYPE BIOMARKERS AND DISEASE PATHOPHYSIOLOGY TO AID NOT ONLY IN EARLY DIAGNOSIS OF THE DISEASE, BUT ALSO TO MONITOR THE EFFICACY OF NEWLY DEVELOPED TREATMENTS.

    Expenses $3,140,619 · Grants $2,621,161

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • BEVERLY GOULET

    BOARD CHAIR

    Total calculated
    $0
    Hours/week
    1

  • CLARE DURRETT

    MANAGING DIRECTOR

    Total calculated
    $0
    Hours/week
    20

  • PAUL VARISCO

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • STEVE GLEASON

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • WILLIAM J QUINLAN JR

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • STEVE FINKBEINER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • PAT QUINN

    BOARD MEMBER EMERITUS

    Total calculated
    $0
    Hours/week
    1

  • S MICHELLE FARR

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • ELIZABETH BRUCE

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • JOHN COSTELLO

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • COLLEEN STEPHENS

    CHIEF OF STAFF

    Total calculated
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $2,817,907
    Expenses
    $3,245,884
    Contributions
    $2,666,669
    Grants paid
    $2,621,161
  • 2023
    Revenue
    $3,651,316
    Expenses
    $2,890,451
    Contributions
    $3,485,831
    Grants paid
    $2,036,876
  • 2022
    Revenue
    -$12,049
    Expenses
    $1,225,402
    Contributions
    $957,217
    Grants paid
    $700,000

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $1,800,662
    Expenses
    $2,468,582
    Assets (EOY)
    $7,757,258

  • 2020 · 990

    Revenue
    $2,276,502
    Expenses
    $1,747,379
    Assets (EOY)
    $8,316,048

  • 2019 · 990

    Revenue
    $1,360,589
    Expenses
    $2,336,639
    Assets (EOY)
    $8,202,383

  • 2018 · 990

    Revenue
    $8,405,871
    Expenses
    $1,656,771
    Assets (EOY)
    $9,195,404

  • 2017 · 990

    Revenue
    $2,166,797
    Expenses
    $1,826,704
    Assets (EOY)
    $2,069,660

  • 2016 · 990

    Revenue
    $1,142,342
    Expenses
    $271,323
    Assets (EOY)
    $1,151,283

  • 2015 · 990

    Revenue
    $438,943
    Expenses
    $158,679
    Assets (EOY)
    $280,264

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Form 990-N e-Postcard, tax year 2014

Tax period
1 January 2014 to 31 December 2014
Principal officer
PAUL VARISCO
Mailing address
ONE GALLERIA BLVDMETAIRIE LA 70001

As filed, from the IRS e-Postcard file of 19 October 2026. The IRS publishes only each organization's most recent postcard, so earlier years are not shown. A 990-N carries no financial detail. The postcard also gives the principal officer's address, which is not shown here.

Grants made

  • JOHN HOPKINS UNIVERSITY SCHOOL OF MEDICINE

    $1,029,803

    2024 GRANT TO FUND ALS RESEARCH.

  • CEDARS SINAI HOSPITAL

    $946,512

    2023 GRANT TO FUND ALS RESEARCH.

  • JOHN HOPKINS UNIVERSITY SCHOOL OF MEDICINE

    $724,850

    2023 GRANT TO FUND ALS RESEARCH.

  • CEDARS SINAI HOSPITAL

    $523,889

    2024 GRANT TO FUND ALS RESEARCH.

  • JOHN HOPKINS UNIVERSITY SCHOOL OF MEDICINE

    $500,000

    2022 GRANT TO FUND ALS RESEARCH.

  • ON POINT SCIENTIFIC

    $487,346

    2024 GRANT TO FUND ALS RESEARCH.

  • DIAGENODE LLC

    $229,531

    2024 GRANT TO FUND ALS RESEARCH.

  • DIAGENODE LLC

    $227,400

    2023 GRANT TO FUND ALS RESEARCH.

  • MASSACHUSETTS INSTITUTE OF TECHNOLOGY- MCGOVERN INSTITUTE

    $200,000

    2022 DONATION TO ALS RESEARCH.

  • MICROSOFT

    $174,099

    2024 GRANT TO FUND ALS RESEARCH.

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations

From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.

Declared on its 2024 return

Taxable family

From Schedule R Parts I, III and IV: entities that legally are the filer, and taxable partnerships, corporations and trusts it is related to. These record ownership and control, not shared board members or money.

Listed by

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 26 October 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.