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ALZHEIMERS DISEASE DATA INITIATIVE INC

EIN 85-3776266 KIRKLAND, WA

Revenue 2024
$12,475,933
Expenses 2024
$17,043,595

Program services were 94.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G83
Classification
1200
Street
4110 CARILLON PT

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

Alzheimer's Disease Data Initiative is a coalition of leading academic, advocacy, government, industry, and philanthropy organizations that recognizes the need for dementia researchers to find easier ways to share data, analytical tools, and scientific findings. These partners are working together to accelerate progress towards new diagnostics, treatments, and cures for Alzheimer's disease and related dementias. Learn more atwww.alzheimersdata.org.

Activities or mission (Part I)

THE ORGANIZATION IS DEDICATED TO ADVANCING SCIENTIFIC BREAKTHROUGHS IN THE DIAGNOSIS, PREVENTION & TREATMENT OF ALZHEIMERS DISEASE AND RELATED DEMENTIAS

  • AD Workbench - a free, secure, cloud-based data sharing and analytics environment - is the interoperability layer of the AD Data Initiative technical suite and its flagship product offering. AD Workbench empowers researchers around the world to share, access, and analyze data across platforms. It provides data hosting, offers collaborative workspaces, and supports federated and distributed data sharing via FDSA.There are currently 8,400+ registered AD Workbench users from across 120 countries with access to over 800K participant records. Through AD Workbench, researchers and institutions can accelerate progress towards new and better treatments and diagnostic tools for Alzheimer's disease and related dementias.

    Expenses $5,168,435

  • Global Research Platforms - GRIP is a secure, cloud-based, and open-access platform designed to help researchers integrate, analyze, and share complex biomedical data with ease. It is a multi-site, multi-modal collaboration platform with co-developed, modular tools, workflows, and workspaces that enable secure data sharing, analysis, and collaboration.

    Expenses $5,091,974 · Grants $50,000

  • The AD Data Initiative product suite consists of data sharing and analytic products along with enabling technical resources to empower researchers around the world to share, access and analyze data across multiple platforms. AD Workbench is the interoperability layer of the AD Data Initiative technical suite and its flagship product offering. There are currently more than 120 datasets accessible via AD Workbench - including clinical tabular data, imaging, omics and biosamples. The AD Data Initiative works closely with data contributors and data platform partners to ensure interoperability with AD data-sharing platforms and data accessibility across the global Alzheimer's data ecosystem.

    Expenses $2,932,616 · Grants $2,414,488

  • Core to the AD Data Initiative's mission is the belief that data sharing and global collaboration will accelerate progress, seed innovation and lead to breakthroughs faster. AD Data Initiative is advancing a scientific strategy and investing in strategic initiatives to foster global collaboration, empower researchers and advance scientific discovery. These initiatives include: the William H. Gates Sr. Fellowship Program, Global Data Challenges, Scientific Driver Projects and Global Research Collaborations and Consortia. This scientific strategy and the AD Data Initiative's programmatic efforts are guided by an evolving list of priority research questions that have been shaped by insights from Advisory Board members, input from the AD research community and engagement with thought leaders in Alzheimer's and related dementias research.

    Expenses $2,270,057 · Grants $550,000

  • The AD Data Initiative amplifies its mission through communications and engagement: website, social media, conferences and events, partnership campaigns/communications and special projects. These efforts expand access to important datasets, broaden the use of data platforms and tools, and foster global collaboration to accelerate discovery.

    Expenses $661,862

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Niranjan Bose

    DIRECTOR

    Total calculated
    $0
    Hours/week
    5

  • PAUL RAMSEY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • HILLARY BOUNDS

    SECRETARY

    Total calculated
    $0
    Hours/week
    10

  • TONY POUND

    TREASURER

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $12,475,933
    Expenses
    $17,043,595
    Contributions
    $12,339,343
    Grants paid
    $3,014,488
  • 2023
    Revenue
    $12,963,288
    Expenses
    $11,257,774
    Contributions
    $12,920,879
    Grants paid
    $3,438,180
  • 2022
    Revenue
    $1,655,356
    Expenses
    $11,164,241
    Contributions
    $1,651,341
    Grants paid
    $3,486,940

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $21,365,464
    Expenses
    $9,167,852
    Assets (EOY)
    $13,154,573

  • 2020 · 990-EZ

    Revenue
    $0
    Expenses
    $0
    Assets (EOY)
    $0

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

  • Davos Alzheimers Collaborative Inc

    $560,000

    2022 Global cohort development project

  • Boston University

    $365,766

    2023 To support data analysis and other research conducted as well as the Framingham Heart Study project (for accelerating discovery for AD treatment and prevention through a novel data accessibility strategy)

  • Banner Health

    $295,500

    2022 Support of USC LONI activities for the Generation Program

  • BANNER ALZHEIMERs INSTITUTE

    $295,500

    2023 To support activities to make the anonymized API Generation datasets available to the scientific community via the Laboratory of Neuroimaging (LONI)

  • Davos Alzheimer's Collaborative (DAC)

    $225,000

    2024 Connecting with and supporting the sharing of data from multiple sites in low-middle income countries to more accurately represent the global population

  • Georgia State University Research Foundation (GSU)

    $200,000

    2024 Understanding the specific and unique challenges that investigators in other countries face when trying to make their data shareable with the larger community of researchers

  • Sage Bionetworks

    $195,000

    2024 Data platform interoperability

  • Answer ALS

    $150,000

    2023 To support the Answer ALS/ADDI Interoperability Project

  • Answer ALS

    $150,000

    2024 Data platform interoperability

  • American Heart Association (AHA)

    $125,289

    2024 Data platform interoperability

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

Related organizations

From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.

Declared on its 2024 return

Declared as related by

Taxable family

From Schedule R Parts I, III and IV: entities that legally are the filer, and taxable partnerships, corporations and trusts it is related to. These record ownership and control, not shared board members or money.

Disregarded entities on its 2024 return

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 26 October 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.