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ANSWER ALS

EIN 47-1643994 NEW ORLEANS, LA

Revenue 2024
$2,817,907
Expenses 2024
$3,245,884

Program services were 96.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G50
Classification
1280
Street
930 ROBERT E LEE BLVD

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • BEVERLY GOULET

    BOARD CHAIR

    Total calculated
    $0
    Hours/week
    1
  • CLARE DURRETT

    MANAGING DIRECTOR

    Total calculated
    $0
    Hours/week
    20
  • PAUL VARISCO

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • STEVE GLEASON

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • WILLIAM J QUINLAN JR

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • STEVE FINKBEINER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • PAT QUINN

    BOARD MEMBER EMERITUS

    Total calculated
    $0
    Hours/week
    1
  • S MICHELLE FARR

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • ELIZABETH BRUCE

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • JOHN COSTELLO

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • COLLEEN STEPHENS

    CHIEF OF STAFF

    Total calculated
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $2,817,907
    Expenses
    $3,245,884
    Contributions
    $2,666,669
    Grants paid
    $2,621,161
  • 2023
    Revenue
    $3,651,316
    Expenses
    $2,890,451
    Contributions
    $3,485,831
    Grants paid
    $2,036,876
  • 2022
    Revenue
    -$12,049
    Expenses
    $1,225,402
    Contributions
    $957,217
    Grants paid
    $700,000

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Grants made

  • JOHN HOPKINS UNIVERSITY SCHOOL OF MEDICINE

    $1,029,803

    2024 GRANT TO FUND ALS RESEARCH.

  • CEDARS SINAI HOSPITAL

    $946,512

    2023 GRANT TO FUND ALS RESEARCH.

  • JOHN HOPKINS UNIVERSITY SCHOOL OF MEDICINE

    $724,850

    2023 GRANT TO FUND ALS RESEARCH.

  • CEDARS SINAI HOSPITAL

    $523,889

    2024 GRANT TO FUND ALS RESEARCH.

  • JOHN HOPKINS UNIVERSITY SCHOOL OF MEDICINE

    $500,000

    2022 GRANT TO FUND ALS RESEARCH.

  • ON POINT SCIENTIFIC

    $487,346

    2024 GRANT TO FUND ALS RESEARCH.

  • DIAGENODE LLC

    $229,531

    2024 GRANT TO FUND ALS RESEARCH.

  • DIAGENODE LLC

    $227,400

    2023 GRANT TO FUND ALS RESEARCH.

  • MASSACHUSETTS INSTITUTE OF TECHNOLOGY- MCGOVERN INSTITUTE

    $200,000

    2022 DONATION TO ALS RESEARCH.

  • MICROSOFT

    $174,099

    2024 GRANT TO FUND ALS RESEARCH.

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations

From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.

Declared on its 2024 return

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 10 September 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.