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Nonprofiteer
← ALZHEIMERS DISEASE DATA INITIATIVE INC

Form 990 for tax year 2023

Filed by ALZHEIMERS DISEASE DATA INITIATIVE INC.

Totals

Total revenue
$12,963,288
Total expenses
$11,257,774
Contributions and grants received
$12,920,879
Grants paid
$3,438,180
Program service revenue
$0
Investment income
$42,409
Other revenue
$0
Total assets, end of year
$5,319,702
Total liabilities, end of year
$430,464
Net assets or fund balances, end of year
$4,889,238
Program services expenses (Part IX)
$10,465,020
Management and general expenses
$792,754
Fundraising expenses
$0
Program service expenses (Part III)
$10,465,020

Program services were 93.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $12,920,879

  • 1g · Noncash contributions included above

    $6,380,210

  • 2f · All other program service revenue

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 3 · Investment income

    total $149,231 · excluded $149,231

  • 6c · Rental income or loss

    real property $0 · personal property $0

  • 7a · Gross sales of assets other than inventory

    securities $6,271,138

  • 7b · Less cost or other basis and sales expenses

    securities $6,377,960

  • 7c · Gain or loss

    securities -$106,822 · other assets $0

  • 7d · Net gain or loss

    total -$106,822 · excluded -$106,822

  • 11d · All other revenue

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 11e · Other revenue, total

    $0

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $1,107,269 · program services $1,107,269

  • 3 · Grants to foreign organizations and individuals

    total $2,330,911 · program services $2,330,911

  • 11a · Fees: management

    total $424,876 · program services $0 · management and general $424,876

  • 11b · Fees: legal

    total $212,808 · program services $28,228 · management and general $184,580

  • 11c · Fees: accounting

    total $151,691 · management and general $151,691

  • 11g · Fees: other

    total $921,477 · program services $920,970 · management and general $507 · fundraising $0

  • 12 · Advertising and promotion

    total $861,171 · program services $861,171 · management and general $0

  • 13 · Office expenses

    total $10,688 · program services $0 · management and general $10,688

  • 14 · Information technology

    total $5,216,471 · program services $5,216,471 · management and general $0

  • 17 · Travel

    total $20,412 · program services $0 · management and general $20,412

  • 24e · All other expenses

    total $0 · program services $0 · management and general $0 · fundraising $0

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,222,956 · end of year $1,749,999

  • 2 · Savings and temporary cash investments

    beginning of year $369,090 · end of year $3,518,066

  • 4 · Accounts receivable

    beginning of year $1,650,000

  • 5 · Loans and receivables from officers and key people

    beginning of year $0 · end of year $0

  • 6 · Loans and receivables from disqualified persons

    beginning of year $0 · end of year $0

  • 9 · Prepaid expenses and deferred charges

    beginning of year $51,459 · end of year $51,637

  • 10a · Land, buildings and equipment: cost or other basis

    $0

  • 10b · Land, buildings and equipment: accumulated depreciation

    $0

  • 10c · Land, buildings and equipment, net

    beginning of year $0 · end of year $0

  • 12 · Investments: other securities

    beginning of year $0

  • 13 · Investments: program-related

    beginning of year $0

  • 15 · Other assets

    beginning of year $0 · end of year $0

  • 17 · Accounts payable and accrued expenses

    beginning of year $604,778 · end of year $430,464

  • 22 · Loans and payables to officers and key people

    beginning of year $0 · end of year $0

  • 25 · Other liabilities

    beginning of year $0 · end of year $0

  • 27 · Net assets without donor restrictions

    beginning of year $2,688,727 · end of year $4,889,238

Mission and programs · 2023

Mission

THE ORGANIZATION IS DEDICATED TO ADVANCING SCIENTIFIC BREAKTHROUGHS IN THE DIAGNOSIS, PREVENTION & TREATMENT OF ALZHEIMERS DISEASE AND RELATED DEMENTIAS

  • DEVELOPMENT AND TESTING OF THE AD WORKBENCH, WHICH WILL SYSTEMATIZE AND CLASSIFY THE BODY OF SCIENTIFIC KNOWLEDGE RELATED TO ALZHEIMER'S DISEASE AND RELATED DEMENTIAS IN ORDER TO PRESENT IT IN A USEFUL FORM. THE AD WORKBENCH HAS PERMISSIONED ACCESS TO 64 DATASETS; IT WILL ALLOW RESEARCHERS TO MORE EASILY UTILIZE THIS DATA AND PROVIDE RESOURCES AND TOOLS AT NO COST TO THE RESEARCHERS.

    Expenses $7,375,328 · Grants $2,186,442

  • USE OF THE AD WORKBENCH AND RELATED ACTIVITY TO CONDUCT AD RESEARCH AND SUPPORT OTHERS' RESEARCH BY PROVIDING A DATA SHARING TOOLS AND RESOURCES. APPOXIMATELY 4,438 ALZHEIMER'S AND RELATED DEMENTIA RESEARCHERS FROM 114 COUNTRIES HAVE REGISTERED FOR AN ACCOUNT TO USE THE AD WORKBENCH TO DISCOVER, ACCESS, AND ANALYZE ALZHEIMER'S DISEASE AND RELATED DEMENTIAS DATASETS. APPROXIMATELY 1,362 WORKSPACES HAVE BEEN COMMISSIONED, AND 534 REQUESTS MADE TO ACCESS DATASETS ON THE AD WORKBENCH.

    Expenses $1,758,971 · Grants $756,741

  • COMMUNICATIONS AND EXTERNAL ENGAGEMENT REGARDING THE IMPORTANCE OF AD RESEARCH AND THE DATA SOURCES, RESOURCES AND METHODOLOGIES.

    Expenses $1,330,721

As filed on the 2023 return.

Listed in Part VII

  • Niranjan Bose

    DIRECTOR

    Total calculated
    $0
    Hours/week
    5

  • Paul Ramsey

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Hillary Bounds

    SECRETARY

    Total calculated
    $0
    Hours/week
    10

  • Tetsuyuki Maruyama

    EXECUTIVE DIRECTOR

    Total calculated
    $0
    Hours/week
    40

  • Tony Pound

    TREASURER

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

  • Boston University

    $365,766

    To support data analysis and other research conducted as well as the Framingham Heart Study project (for accelerating discovery for AD treatment and prevention through a novel data accessibility strategy)

  • BANNER ALZHEIMERs INSTITUTE

    $295,500

    To support activities to make the anonymized API Generation datasets available to the scientific community via the Laboratory of Neuroimaging (LONI)

  • Answer ALS

    $150,000

    To support the Answer ALS/ADDI Interoperability Project

  • University of Washington Foundation

    $91,253

    To support the Computational Ophthalmology Research Fund in research being conducted in computational ophthalmology

  • Vivli Inc

    $54,750

    To support the Maintain Vivli ADDI Platform Connection Project

  • Alleo Labs Corporation

    $50,000

    To support fellow research through the William H. Gates Sr. Fellowship program

  • State of Maryland University of Maryland Baltimore

    $50,000

    To support fellow research through the William H. Gates Sr. Fellowship program

  • Washington University in St Louis

    $50,000

    To support fellow research through the William H. Gates Sr. Fellowship program

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Taxable family on this return

Schedule R Parts I, III and IV, as filed. These record ownership and control, not shared board members or money moved.

Related corporations and trusts

Part IV: related organizations taxable as a corporation or trust.

  • BREAKTHROUGH ENERGY CATALYST EUROPE SARL

    C Corporation · OTHER FINANCIAL VEHICLES · LU

    Directly controlled by NA

Provenance

Return type
form_990
Tax year
2023
Filed
15 November 2024
IRS schema version
2023v5.1
Source object
202443209349302569

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