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Nonprofiteer
← NATIONAL ALOPECIA AREATA FOUNDATION

Form 990 for tax year 2022

Filed by NATIONAL ALOPECIA AREATA FOUNDATION.

Totals

Total revenue
$2,397,922
Total expenses
$2,381,788
Contributions and grants received
$2,083,177
Grants paid
$191,429
Program service revenue
$112,939
Investment income
-$79,331
Other revenue
$281,137
Total assets, end of year
$2,724,730
Total liabilities, end of year
$473,861
Net assets or fund balances, end of year
$2,250,869
Program services expenses (Part IX)
$1,868,319
Management and general expenses
$164,169
Fundraising expenses
$349,300
Program service expenses (Part III)
$1,868,319

Program services were 78.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $46,622

  • 1f · All other contributions, gifts and grants

    $2,036,555

  • 2a · Program service revenue: TDP Services

    total $18,033 · unrelated business $0 · excluded $0

  • 2b · Program service revenue: Conference Registration Fees

    total $86,688 · unrelated business $0 · excluded $0

  • 2c · Program service revenue: Publications and Community Services

    total $8,218 · unrelated business $0 · excluded $0

  • 3 · Investment income

    total -$79,331 · unrelated business $0 · excluded -$79,331

  • 8a · Fundraising events: gross income

    $327,759

  • 8a · Fundraising events: contributions included on line 1c

    $46,622

  • 8b · Fundraising events: direct expenses

    $46,622

  • 8c · Net income from fundraising events

    total $281,137 · unrelated business $0 · excluded $281,137

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $186,429 · program services $186,429

  • 2 · Grants to domestic individuals

    total $5,000 · program services $5,000

  • 5 · Compensation of officers, directors and key employees

    total $473,337 · program services $362,860 · management and general $34,649 · fundraising $75,828

  • 7 · Other salaries and wages

    total $676,007 · program services $565,064 · management and general $34,794 · fundraising $76,149

  • 8 · Pension plan contributions

    total $74,343 · program services $56,991 · management and general $5,442 · fundraising $11,910

  • 9 · Other employee benefits

    total $111,940 · program services $85,814 · management and general $8,193 · fundraising $17,933

  • 10 · Payroll taxes

    total $70,735 · program services $54,226 · management and general $5,177 · fundraising $11,332

  • 11b · Fees: legal

    total $13,421 · program services $0 · management and general $13,421 · fundraising $0

  • 11c · Fees: accounting

    total $26,661 · program services $0 · management and general $26,661 · fundraising $0

  • 11g · Fees: other

    total $159,601 · program services $130,401 · management and general $6,678 · fundraising $22,522

  • 16 · Occupancy

    total $87,015 · program services $68,798 · management and general $6,471 · fundraising $11,746

  • 17 · Travel

    total $83,163 · program services $68,218 · management and general $3,298 · fundraising $11,647

  • 19 · Conferences, conventions and meetings

    total $141,681 · program services $70,841 · management and general $0 · fundraising $70,840

  • 23 · Insurance

    total $11,483 · program services $9,416 · management and general $459 · fundraising $1,608

  • 24a · Other expenses: Research Program

    total $43,422 · program services $43,422 · management and general $0 · fundraising $0

  • 24b · Other expenses: Scholarships

    total $16,304 · program services $16,304 · management and general $0 · fundraising $0

  • 24c · Other expenses: Supplies and Equipment

    total $11,378 · program services $9,331 · management and general $454 · fundraising $1,593

  • 24d · Other expenses: Telephone and Internet

    total $13,428 · program services $11,010 · management and general $538 · fundraising $1,880

  • 24e · All other expenses

    total $176,440 · program services $124,194 · management and general $17,934 · fundraising $34,312

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $507,684 · end of year $471,291

  • 2 · Savings and temporary cash investments

    beginning of year $1,108,755 · end of year $1,499,296

  • 3 · Pledges and grants receivable

    beginning of year $11,100

  • 9 · Prepaid expenses and deferred charges

    beginning of year $46,147 · end of year $51,679

  • 10a · Land, buildings and equipment: cost or other basis

    $12,671

  • 10b · Land, buildings and equipment: accumulated depreciation

    $12,671

  • 10c · Land, buildings and equipment, net

    end of year $0

  • 11 · Investments: publicly traded securities

    beginning of year $640,214 · end of year $546,543

  • 15 · Other assets

    end of year $155,921

  • 17 · Accounts payable and accrued expenses

    beginning of year $70,165 · end of year $139,824

  • 19 · Deferred revenue

    beginning of year $9,000 · end of year $175,000

  • 25 · Other liabilities

    end of year $159,037

  • 27 · Net assets without donor restrictions

    beginning of year $2,020,956 · end of year $1,862,966

  • 28 · Net assets with donor restrictions

    beginning of year $213,779 · end of year $387,903

Mission and programs · 2022

Mission

Provide education & support for persons afflicated with Alopecia Areata; fund research regarding causes and treatment of Alopecia Areata.

  • Awareness and support - provided emotional support and medical updates for persons suffering from Alopecia Areata. Services provided include newsletters, video & audio tapes, workshops and brochures. Sponsored annual patient conference which featured support sessions and which was attended by persons from the US and other countries. Ascot fund program provided hair pieces for those who cannot afford one. Fulfilled information requests from more than 10,000 people held awareness events at major and minor league ball parks to raise awareness of Alopecia Areata. Funded medical research regarding causes and treatment of Alopecia Areata. Continued development of Alopecia Areata Treatment Development Program.

    Expenses $1,868,319 · Grants $191,429 · Revenue $112,939

As filed on the 2022 return.

Listed in Part VII

  • Ann Hollins

    Chair

    Total calculated
    $0
    Hours/week
    4

  • Bonnie Chong

    Vice Chair

    Total calculated
    $0
    Hours/week
    4

  • Salman Hussain

    Director

    Total calculated
    $0
    Hours/week
    2

  • Jonelle Massey

    Director

    Total calculated
    $0
    Hours/week
    2

  • Wendy Yu

    Director

    Total calculated
    $0
    Hours/week
    2

  • Jim OConnell

    Chief Financial Officer

    Total calculated
    $0
    Hours/week
    4

  • Ann S Hedges

    Director

    Total calculated
    $0
    Hours/week
    2

  • Deirdre Nero

    Director

    Total calculated
    $0
    Hours/week
    2

  • Tyrone Folliard-Olson

    Director

    Total calculated
    $0
    Hours/week
    2

  • Simon Rubenstein

    Secretary

    Total calculated
    $0
    Hours/week
    4

  • Amanda Wagner

    Director

    Total calculated
    $0
    Hours/week
    2

  • Maureen McGettigan

    Director

    Total calculated
    $0
    Hours/week
    2

  • Ron Saca

    Director

    Total calculated
    $0
    Hours/week
    2

  • Nicole Friedland

    President & CEO

    Total calculated
    $215,000
    From this org
    $215,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $215,000
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $15,178
    Filer's total
    $230,178

  • Laura Maciag

    Chief Operating Officer

    Total calculated
    $120,937
    From this org
    $120,937
    From related orgs
    $0
    Other
    $0
    Hours/week
    35

  • Jeanne Rappoport

    Chief Administrative Officer

    Total calculated
    $137,400
    From this org
    $137,400
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 2 · Substantiation required before reimbursing expenses

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2022
Filed
13 March 2023
IRS schema version
2022v5.0
Source object
202321029349301112

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