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Nonprofiteer
← CHOROIDEREMIA RESEARCH FOUNDATION INC

Form 990 for tax year 2022

Filed by CHOROIDEREMIA RESEARCH FOUNDATION INC.

Totals

Total revenue
$560,892
Total expenses
$745,500
Contributions and grants received
$536,725
Grants paid
$359,320
Program service revenue
$0
Investment income
$24,167
Other revenue
$0
Total assets, end of year
$801,239
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$801,239
Program services expenses (Part IX)
$597,995
Management and general expenses
$56,516
Fundraising expenses
$90,989
Program service expenses (Part III)
$597,995

Program services were 80.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $536,725

  • 3 · Investment income

    total $24,167

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $359,320 · program services $359,320

  • 2 · Grants to domestic individuals

    total $0

  • 3 · Grants to foreign organizations and individuals

    total $0

  • 4 · Benefits paid to or for members

    total $0

  • 5 · Compensation of officers, directors and key employees

    total $93,474 · program services $56,393 · management and general $19,134 · fundraising $17,947

  • 6 · Compensation of disqualified persons

    total $0

  • 7 · Other salaries and wages

    total $75,786 · program services $45,729 · management and general $15,508 · fundraising $14,549

  • 8 · Pension plan contributions

    total $0

  • 9 · Other employee benefits

    total $0

  • 10 · Payroll taxes

    total $14,949 · program services $9,020 · management and general $3,059 · fundraising $2,870

  • 11a · Fees: management

    total $0

  • 11b · Fees: legal

    total $125 · management and general $125

  • 11c · Fees: accounting

    total $8,524 · management and general $8,524

  • 11d · Fees: lobbying

    total $0

  • 11f · Fees: investment management

    total $0

  • 11g · Fees: other

    total $77 · program services $17 · fundraising $60

  • 12 · Advertising and promotion

    total $0

  • 13 · Office expenses

    total $15,516 · program services $2,426 · management and general $2,705 · fundraising $10,385

  • 14 · Information technology

    total $16,156 · program services $6,947 · management and general $4,663 · fundraising $4,546

  • 15 · Royalties

    total $0

  • 16 · Occupancy

    total $0

  • 17 · Travel

    total $0

  • 18 · Travel or entertainment for public officials

    total $0

  • 19 · Conferences, conventions and meetings

    total $105,730 · program services $105,730

  • 20 · Interest

    total $0

  • 21 · Payments to affiliates

    total $0

  • 22 · Depreciation, depletion and amortization

    total $5,613 · program services $3,387 · management and general $1,148 · fundraising $1,078

  • 23 · Insurance

    total $2,681 · program services $1,617 · management and general $549 · fundraising $515

  • 24a · Other expenses: Special Events

    total $6,574 · program services $2,110 · fundraising $4,464

  • 24b · Other expenses: Fundraising Expense

    total $20,985 · fundraising $20,985

  • 24c · Other expenses: Bank Fees

    total $12,047 · management and general $295 · fundraising $11,752

  • 24d · Other expenses: Memberships

    total $3,928 · program services $3,928

  • 24e · All other expenses

    total $4,015 · program services $1,371 · management and general $806 · fundraising $1,838

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $158,944 · end of year $82,361

  • 10a · Land, buildings and equipment: cost or other basis

    $2,195

  • 10b · Land, buildings and equipment: accumulated depreciation

    $2,195

  • 13 · Investments: program-related

    beginning of year $821,349 · end of year $718,878

  • 14 · Intangible assets

    beginning of year $5,613

  • 27 · Net assets without donor restrictions

    beginning of year $658,464 · end of year $440,101

  • 28 · Net assets with donor restrictions

    beginning of year $327,442 · end of year $361,138

Mission and programs · 2022

Mission

To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness to educate people affected by the disease and the public.

  • TO PROVIDE GRANTS FOR CHOROIDEREMIA RESEARCH AND PATIENT AND FAMILY EDUCATION AND ADVOCACY PROGRAMS

    Expenses $597,995

As filed on the 2022 return.

Listed in Part VII

  • Kathi Wagner

    EXECUTIVE DIRECTOR

    Total calculated
    $93,474
    From this org
    $93,474
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • Michael Laengsfeld

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Jason McKinney

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • John Oster

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Tracey Pretorius

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Dr John Ross Rizzo

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Craig Rowley

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Jonathan Salois

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Robert Hillier

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Dr Stephanie Vetere Sims

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Brian Counter

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Aurelie Harp

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Yamil Rosete Rodriguez

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Neal Bench

    PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • John Trott

    1ST VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Michael Mullen

    2ND VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Tara Cassidy-Driscoll

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Brian Mayer

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • Kayla Schiller

    TREASURER

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

  • RENOVATE BIOSCIENCES INC

    $50,000

  • UNIVERSITY OF PHILADELPHIA

    $30,000

  • UNIVERSITY OF ROCHESTER

    $7,391

Provenance

Return type
form_990
Tax year
2022
Filed
1 December 2023
IRS schema version
2022v5.0
Source object
202440629349300709

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