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CHOROIDEREMIA RESEARCH FOUNDATION INC

EIN 04-3511754 SPRINGFIELD, MA

Browse the largest nonprofits in Massachusetts

Revenue 2024
$964,837
Expenses 2024
$819,056

Program services were 80.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
U05
Classification
1000
Street
23 E BRUNDRETH ST

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease and the public.

  • To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease and the public.

    Expenses $656,983

As filed on the 2024 return.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Kathi Wagner

    EXECUTIVE DIRECTOR

    Total calculated
    $107,780
    From this org
    $107,780
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • Neal Bench

    President

    Total calculated
    $0
    Hours/week
    1

  • John Trott

    Vice President

    Total calculated
    $0
    Hours/week
    1

  • Michael Mullen

    Vice President

    Total calculated
    $0
    Hours/week
    1

  • Tara Cassidy-Driscoll

    Director

    Total calculated
    $0
    Hours/week
    1

  • Brian Mayer

    Secretary

    Total calculated
    $0
    Hours/week
    1

  • Michael Laengsfeld

    Director

    Total calculated
    $0
    Hours/week
    1

  • Jason McKinney

    Director

    Total calculated
    $0
    Hours/week
    1

  • Dr John-Ross Rizzo

    Director

    Total calculated
    $0
    Hours/week
    1

  • Liza Zumsteg

    Treasurer

    Total calculated
    $0
    Hours/week
    1

  • Jon Salois

    Director

    Total calculated
    $0
    Hours/week
    1

  • Kayla Schiller

    Treasurer

    Total calculated
    $0
    Hours/week
    1

  • Bob Hillier

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Brian Counter

    Director

    Total calculated
    $0
    Hours/week
    1

  • Aurelie Harp

    Director

    Total calculated
    $0
    Hours/week
    1

  • Yamil Rosete-Rodriguez

    Director

    Total calculated
    $0
    Hours/week
    1

  • Sarah Thompson

    Director

    Total calculated
    $0
    Hours/week
    1

  • Mary Porter

    Director

    Total calculated
    $0
    Hours/week
    1

  • Rachel Oster

    Director

    Total calculated
    $0
    Hours/week
    1

  • Naama Goldman-Einhorn

    Director

    Total calculated
    $0
    Hours/week
    1

  • Thomas Driscoll

    Director

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $964,837
    Expenses
    $819,056
    Contributions
    $932,115
    Grants paid
    $418,922
  • 2023
    Revenue
    $699,069
    Expenses
    $689,478
    Contributions
    $660,391
    Grants paid
    $363,127
  • 2022
    Revenue
    $560,892
    Expenses
    $745,500
    Contributions
    $536,725
    Grants paid
    $359,320

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $664,881
    Expenses
    $584,677
    Assets (EOY)
    $985,906

  • 2020 · 990

    Revenue
    $672,399
    Expenses
    $574,049
    Assets (EOY)
    $905,807

  • 2019 · 990

    Revenue
    $597,064
    Expenses
    $640,929
    Assets (EOY)
    $807,483

  • 2018 · 990

    Revenue
    $416,063
    Expenses
    $399,240
    Assets (EOY)
    $894,174

  • 2017 · 990

    Revenue
    $531,038
    Expenses
    $435,765
    Assets (EOY)
    $833,614

  • 2016 · 990

    Revenue
    $443,909
    Expenses
    $326,629
    Assets (EOY)
    $700,829

  • 2015 · 990

    Revenue
    $567,427
    Expenses
    $1,295,961
    Assets (EOY)
    $574,293

  • 2014 · 990

    Revenue
    $660,465
    Expenses
    $273,805
    Assets (EOY)
    $1,352,717

  • 2013 · 990

    Revenue
    $380,133
    Expenses
    $336,800
    Assets (EOY)
    $884,946

  • 2012 · 990

    Revenue
    not reported
    Expenses
    $286,399
    Assets (EOY)
    $841,613

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 11 November 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.