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← MOG PROJECT INC

Form 990 for tax year 2023

Filed by MOG PROJECT INC.

Totals

Total revenue
$242,019
Total expenses
$223,939
Contributions and grants received
$237,314
Grants paid
$50,017
Program service revenue
$0
Investment income
$4,257
Other revenue
$448
Total assets, end of year
$162,470
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$162,470
Program services expenses (Part IX)
$205,659
Management and general expenses
$14,917
Fundraising expenses
$3,363
Program service expenses (Part III)
$205,659

Program services were 91.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $0

  • 1b · Membership dues

    $0

  • 1c · Fundraising events

    $0

  • 1d · Related organizations

    $0

  • 1e · Government grants (contributions)

    $0

  • 1f · All other contributions, gifts and grants

    $237,314

  • 1g · Noncash contributions included above

    $0

  • 3 · Investment income

    total $4,257 · related or exempt $0 · unrelated business $0 · excluded $4,257

  • 4 · Income from investment of tax-exempt bond proceeds

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 5 · Royalties

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 6a · Gross rents

    real property $0 · personal property $0

  • 6b · Less rental expenses

    real property $0 · personal property $0

  • 6c · Rental income or loss

    real property $0 · personal property $0

  • 6d · Net rental income or loss

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 7a · Gross sales of assets other than inventory

    securities $0 · other assets $0

  • 7b · Less cost or other basis and sales expenses

    securities $0 · other assets $0

  • 7c · Gain or loss

    securities $0 · other assets $0

  • 7d · Net gain or loss

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 8a · Fundraising events: gross income

    $0

  • 8a · Fundraising events: contributions included on line 1c

    $0

  • 8b · Fundraising events: direct expenses

    $0

  • 8c · Net income from fundraising events

    total $0 · unrelated business $0 · excluded $0

  • 9a · Gaming: gross income

    $0

  • 9b · Gaming: direct expenses

    $0

  • 9c · Net income from gaming

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 10a · Gross sales of inventory

    $1,094

  • 10b · Cost of goods sold

    $646

  • 10c · Net income from sales of inventory

    total $448 · related or exempt $448 · unrelated business $0 · excluded $0

  • 11d · All other revenue

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 11e · Other revenue, total

    $0

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $25,000 · program services $25,000

  • 2 · Grants to domestic individuals

    total $0 · program services $0

  • 3 · Grants to foreign organizations and individuals

    total $25,017 · program services $25,017

  • 4 · Benefits paid to or for members

    total $0 · program services $0

  • 5 · Compensation of officers, directors and key employees

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 6 · Compensation of disqualified persons

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 7 · Other salaries and wages

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 8 · Pension plan contributions

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 9 · Other employee benefits

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 10 · Payroll taxes

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11a · Fees: management

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11b · Fees: legal

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11c · Fees: accounting

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11d · Fees: lobbying

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11e · Fees: professional fundraising services

    total $0 · fundraising $0

  • 11f · Fees: investment management

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11g · Fees: other

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 12 · Advertising and promotion

    total $3,860 · program services $497 · management and general $0 · fundraising $3,363

  • 13 · Office expenses

    total $586 · program services $0 · management and general $586 · fundraising $0

  • 14 · Information technology

    total $8,979 · program services $8,904 · management and general $75

  • 15 · Royalties

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 16 · Occupancy

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 17 · Travel

    total $15,555 · program services $3,131 · management and general $12,424 · fundraising $0

  • 18 · Travel or entertainment for public officials

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 19 · Conferences, conventions and meetings

    total $2,769 · program services $2,769 · management and general $0 · fundraising $0

  • 20 · Interest

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 21 · Payments to affiliates

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 22 · Depreciation, depletion and amortization

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 23 · Insurance

    total $1,310 · program services $0 · management and general $1,310 · fundraising $0

  • 24a · Other expenses: 990 Filing and State Filing

    total $318 · program services $0 · management and general $318 · fundraising $0

  • 24b · Other expenses: Bank Fees and Service Charges

    total $404 · program services $200 · management and general $204 · fundraising $0

  • 24e · All other expenses

    total $140,141 · program services $140,141 · management and general $0 · fundraising $0

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $144,390 · end of year $81,889

  • 2 · Savings and temporary cash investments

    beginning of year $0 · end of year $80,581

  • 3 · Pledges and grants receivable

    beginning of year $0 · end of year $0

  • 4 · Accounts receivable

    beginning of year $0 · end of year $0

  • 5 · Loans and receivables from officers and key people

    beginning of year $0 · end of year $0

  • 6 · Loans and receivables from disqualified persons

    beginning of year $0 · end of year $0

  • 7 · Other notes and loans receivable

    beginning of year $0 · end of year $0

  • 8 · Inventories for sale or use

    beginning of year $0 · end of year $0

  • 9 · Prepaid expenses and deferred charges

    beginning of year $0 · end of year $0

  • 10c · Land, buildings and equipment, net

    beginning of year $0

  • 11 · Investments: publicly traded securities

    beginning of year $0 · end of year $0

  • 12 · Investments: other securities

    beginning of year $0 · end of year $0

  • 13 · Investments: program-related

    beginning of year $0 · end of year $0

  • 14 · Intangible assets

    beginning of year $0 · end of year $0

  • 15 · Other assets

    beginning of year $0 · end of year $0

  • 17 · Accounts payable and accrued expenses

    beginning of year $0 · end of year $0

  • 18 · Grants payable

    beginning of year $0 · end of year $0

  • 19 · Deferred revenue

    beginning of year $0 · end of year $0

  • 20 · Tax-exempt bond liabilities

    beginning of year $0 · end of year $0

  • 21 · Escrow or custodial account liability

    beginning of year $0 · end of year $0

  • 22 · Loans and payables to officers and key people

    beginning of year $0 · end of year $0

  • 23 · Secured mortgages and notes payable

    beginning of year $0 · end of year $0

  • 24 · Unsecured notes and loans payable

    beginning of year $0 · end of year $0

  • 25 · Other liabilities

    beginning of year $0

  • 27 · Net assets without donor restrictions

    beginning of year $144,390 · end of year $162,470

  • 28 · Net assets with donor restrictions

    beginning of year $0 · end of year $0

Mission and programs · 2023

Mission

To raise awareness, educate doctors, patients and caregivers, advance research through expert collaboration and fundraising, and provide support and advocacy for the MOGAD community.

  • Education for MOGAD patients/caregivers and medical professionals is one of the pillars of our strategic plan. Not only do we create these resources, but The MOG Project maintains a website providing patients, caregivers and healthcare professionals in the MOGAD community these educational materials vetted by expert medical professionals, access to research studies by medical institutions and The MOG Project itself, clinical trial information, support group information and registration, as well as community outreach information. In order to provide patients with the latest in the continually changing research in MOGAD, we use the website to provide quick access to podcasts from our YouTube channel and links to information from our collaborative partners. The website also supports an online store, providing awareness merchandise for purchase. In addition, the website provides blog space for patient stories, podcast summaries, news, announcements and events. With MOGAD being a rare neuroimmune condition, patients are unlikely to meet another patient in their area. This website is their portal to finding others with the disease for support and learning about the medical professionals who treat the disease aas well as gaining an education on the disorder. We are commited to these patients and plan on maintaining the website for years to come. We benefit over 5000 people who have found our website worldwide, mostly in the US. In 2023, we added a video-based FAQ page and more professional presentations to educate patients. We also did more work on accessibility and website SEO improvements using a professional web developer.

    Expenses $13,368

  • We were the major financial sponsor for the 2023 MOGAD Summit in Boston, MA for the Neuroimmunology Clinic and Research Laboratory at Massachusetts General Hospital. This was a medical education and research sharing meeting designed to bring together the MOGAD research community to share and learn about recent findings from each other. This involved, travel, venue, meals and other expenses related to the summit.

    Expenses $138,444

  • The MOG Project provides research grants to centers of excellence in MOGAD research that work on understanding of this rare neuroimmune disorder. The organization does this through the Research for Rare program which consists of two types of grant offerings: The Apollo grant and the Accelerator Grant. The Apollo Grant provides funding to develop hypotheses and gather seed/pilot data to support and strengthen the submission of a future same subject proposal allowing investigators to better secure greater funding from larger organizations. Our grants are intended to support the advancement of medical knowledge and understanding of this rare disease leading to better diagnosis, targeted treatments, and eventually a cure. The Accelerator Grant provides for architecture, infrastructure, and technology funding to be used in support of any future MOGAD research projects. These grants are awarded as part of a vigorous RFA process similar to that done in reputable institutions such as NIH.

    Expenses $50,067

  • We attend various conferences to learn about MOGAD, get researchers interested in MOGAD research and to teach patients about the disease. There are travel-related costs, conference registration and booth fees associated with these activities.

    Expenses $2,769

  • We provide awareness gear, printed patient information (brochures and flyers) to MOGAD patients upon request and at all external venues visited. The website also offers MOGAD gear which helps bring our patient community together, raises funds for some of our administrative costs, and brings awareness to the disease. We offer a variety of MOG-related merchandise and ship to customers who order from our website. There is some cost in creative fees for the design of the merchandise as well as all that goes into selling the gear.

    Expenses $497

  • We currently have 3 zoom-based support groups often visited by expert medical professionals in MOGAD. Our support group leaders volunteer their time to help patients connect to the care they need bring MOGAD patients and caregivers together to share advice based on their personal experience with the disease. We do not offer medical advice during these sessions, but patients can learn how to self-advocate to receive the best care possible from their own medical team, including what questions to ask their doctor and about the latest news The MOG Project has to offer concerning research and new findings in the MOGAD Community of researchers. 300 people are regularly signed up for our yearly sessions. Our expert visitations by MOGAD clinicians are on a volunteer basis and occur quarterly throughout the year for all 4 support groups.

    Expenses $514

  • The MOG Project affects research by offering clinicians and researchers patient survey data from MOGAD patient volunteers around the world. These surveys target key areas that ignite ideas and propel research forward. We use an IRB approved survey tool and incur some expenses in creating data for researchers.

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Amy Ednie

    President

    Total calculated
    $0
    Hours/week
    2

  • Julia Lefelar

    Executive Director

    Total calculated
    $0
    Hours/week
    8

  • Peter Fontanez

    Director/Treasurer

    Total calculated
    $0
    Hours/week
    2

  • Andrea Mitchell

    Director

    Total calculated
    $0
    Hours/week
    2

  • Jen Gould

    Director

    Total calculated
    $0
    Hours/week
    2

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

  • Northwestern University

    $25,000

    Steven Miller, PhD and team were awarded a grant to do a study to: (1) determine the effects of preventative tolerance induced by the PLG nanoparticles encapsulating the rhMOG protein versus the immunodominant MOG35-55 peptide on clinical rhMOG-EAE and on the resulting MOG-specific autoimmune responses. (2) To determine the effects of therapeutic tolerance induced by PLG nanoparticles encapsulating rhMOG protein versus the immunodominant MOG35-55 peptide on clinical rhMOG-EAE and accompanying MOG-specific immune responses. Future Objective: It is anticipated that the results will propel future human clinical testing of their novel PLG nanoparticle immune tolerance-inducing platform for treatment on MOGAD and other autoimmune disease.

Provenance

Return type
form_990
Tax year
2023
Filed
4 November 2024
IRS schema version
2023v5.0
Source object
202413099349301971

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