MOG PROJECT INC

As filed

Subsection

03

NTEE code

G80

Classification

1200

Street

19414 HAVEN WHITE CT

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2025

• EDUCATIONAL EVENTS & PROGRAMS: WE HAVE AN INTERNATIONAL MOGAD PATIENT SUMMIT AND A US MOGAD PATIENT SUMMIT PROGRAM THAT PROVIDES EDUCATION FOR MOGAD PATIENTS WORLDWIDE AND IN THE US. PATIENTS CAN ATTEND IN PERSON OR SEE THE EVENT LIVESTREAMED. THEY CAN ALSO PARTICIPATE IN THE EVENT BY ASKING QUESTIONS TO THE PRESENTERS. PRESENTERS INCLUDE TOP EXPERTS IN THE DISEASE WORLDWIDE. THESE PROGRAMS ARE CURRENTLY BASED IN THE US AND STREAMED LIVE GLOBALLY. WE ALSO PROVIDE A WEBSITE AND YOUTUBE CHANNEL FILLED WITH WRITTEN MATERIALS, INFOGRAPHICS AND VIDEOS AIMED AT EDUCATING PATIENTS, CAREGIVERS AND MEDICAL PROFESSIONALS. IN ADDITION, WE HOLD A BLOG SPACE FOR ARTICLES WRITTEN TO EDUCATE PATIENTS ON RESEARCH ARTICLES AND PATIENT EXPERIENCE SO THAT THEY CAN KNOW WHAT OTHERS HAVE GONE THROUGH, INFORMING THEM BETTER ON WHAT TO EXPECT WITH DISEASE MANAGEMENT. WE ALSO PROVIDE A GREAT DEAL OF PRINTED MATERIALS FOR PATIENTS THAT WE DISTRIBUTE AT EVENTS AND SEND TO CLINICS TREATING MOGAD ALL OVER THE WORLD.

  Expenses $231,261

• RESEARCH PROGRAMS: WE WORK TO AFFECT RESEARCH IN MOGAD THROUGH PATIENT PARTICIPATION IN SURVEYS IN COLLABORATION WITH REPUTABLE RESEARCHERS/INDUSTRY PARTNERS TO HELP GUIDE RESEARCH TO BETTER UNDERSTAND THE PATIENT EXPERIENCE GIVEN THAT THIS IS A NEWLY DISCOVERED DISEASE THAT REQUIRES BETTER UNDERSTANDING OF WHAT SYMPTOMS PATIENTS EXPERIENCE AND HOW THEIR DISEASE MANIFESTS OVER TIME. WE ALSO USE THESE SURVEYS TO UNDERSTAND WHAT THE PATIENT POPULATION NEEDS IN VARIOUS WORLD AREAS, INCLUDING UNDERSERVED COMMUNITIES. WE ALSO PROVIDE, WHEN AVAILABLE, FUNDS WE RAISED AS GRANTS FOR ADJUDICATED RESEARCH AS PART OF OUR RESEARCH FOR RARE PROGRAM, WHICH COVERS TWO TYPES OF GRANTS: ONE THAT FUNDS RESEARCH IN IMPACTFUL AREAS THAT WILL PROVIDE SEED DATA FOR LARGER GRANTS AVAILABLE AT INSTITUTIONS LIKE NIH, AND ANOTHER THAT FUNDS INFRASTUCTURE, SUCH AS REGISTRIES FOR DATA COLLECTION AND MANAGEMENT.

  Expenses $81,975 · Grants $78,402

• SUPPORT: WE PROVIDE SUPPORT GROUPS THROUGH SOCIAL MEDIA CHANNELS AS WELL AS SUPPORT FOR SMALL GROUPS VIA ZOOM. WE USE THESE GROUPS TO CONNECT PATIENTS TO OTHERS GOING THROUGH THE SAME THING THEY ARE SINCE THEY WILL HAVE DIFFICULTY FORMING LOCAL GROUPS TO DO THIS AS MOGAD IS A RARE DISEASE. WE ALSO PROVIDE SUPPORT EVENTS WHERE MEDICAL EXPERTS GATHER TO DO A Q&A FOR PATIENTS REGULARLY THROUGHOUT THE YEAR, GIVING PATIENTS AN OPPORTUNITY TO GET SUPPORT BACKED BY EXPERT MEDICAL ADVICE IN A GENERAL MANNER. IN ADDITION, WE HAVE A CHILDREN'S AMBASSADOR PROGRAM FOR KIDS LED BY PARENTS TO PROVIDE A SUPPORT NETWORK FOR KIDS UNDER 18. WE ALSO HAVE A PEER-TO-PEER PROGRAM CALLED MOGMENTORS THAT CONNECTS NEW PATIENTS WITH VOLUNTEERS WHO HAVE GONE THROUGH A GOOD AMOUNT OF TIME LIVING WITH THE DISEASE AND CAN HELP OTHERS UNFAMILIAR.

  Expenses $20,855

• PROGRAM SERVICE EXPENSES: 0, GRANTS AND ALLOCATIONS: 0, REVENUE: 0 POLICY PROGRAMS: OUR POLICY PROGRAMS ARE AIMED AT AFFECTING POLICY AND BRINGING AWARENESS TO MOGAD WORLDWIDE. EXAMPLES OF THIS INCLUDE OUR WORK TO ADVOCATE FOR INCREASED FUNDING AT NINDS/NIH AND THE CREATION OF A ICD-10 CODE WITH THE CDC AND AND ICD-11 CODE WITH THE WHO. OTHER EFFORTS INCLUDE WORK TO ENCOURAGE LAWMAKERS TO RECOGNIZE MOGAD AS A DISEASE SO THAT PATIENTS WITH THE INVISIBLE DISABILITY CAUSED BY THE DISEASE WHO CANNOT WORK CAN GET THEIR DISABILITY APPROVED THOUGH FEDERAL/STATE SOCIAL SECURITY MECHANISMS.

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

• 2025

  Revenue

  $595,048

  Expenses

  $480,745

  Contributions

  $588,110

  Grants paid

  $78,402

• 2024

  Revenue

  $223,260

  Expenses

  $223,436

  Contributions

  $217,401

  Grants paid

  $70,000

• 2023

  Revenue

  $242,019

  Expenses

  $223,939

  Contributions

  $237,314

  Grants paid

  $50,017

• 2022

  Revenue

  $121,519

  Expenses

  $44,114

  Contributions

  $83,306

  Grants paid

  $97

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

• 2021 · 990-EZ

  Revenue

  $73,190

  Expenses

  $9,149

  Assets (EOY)

  $66,985

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Form 990-N e-Postcard, tax year 2020

Tax period

1 January 2020 to 31 December 2020

Principal officer

Amy Ednie

Mailing address

19414 Haven White CtGaithersburg MD 20879

Website

mogproject.org

As filed, from the IRS e-Postcard file of 2 November 2026. The IRS publishes only each organization's most recent postcard, so earlier years are not shown. A 990-N carries no financial detail. The postcard also gives the principal officer's address, which is not shown here.

Grants made

• Massachusetts General Hospital

  $40,000

  2024 · Medical Research

• Northwestern University

  $25,000

  2023 · Steven Miller, PhD and team were awarded a grant to do a study to: (1) determine the effects of preventative tolerance induced by the PLG nanoparticles encapsulating the rhMOG protein versus the immunodominant MOG35-55 peptide on clinical rhMOG-EAE and on the resulting MOG-specific autoimmune responses. (2) To determine the effects of therapeutic tolerance induced by PLG nanoparticles encapsulating rhMOG protein versus the immunodominant MOG35-55 peptide on clinical rhMOG-EAE and accompanying MOG-specific immune responses. Future Objective: It is anticipated that the results will propel future human clinical testing of their novel PLG nanoparticle immune tolerance-inducing platform for treatment on MOGAD and other autoimmune disease.

• Brigham & Women's Hospital

  $25,000

  2024 · Educational Award

• MASSACHUSETTS GENERAL BUSINESS OFFICE

  $24,605

  2025 · RESEARCH STUDY

• YALE UNIVERSITY

  $17,767

  2025 · RESEARCH STUDY

• Siegel Rare Neuroimmune Assoc

  $5,000

  2024 · Medical Research

Where these grants went next →

Grants received

• PAYPAL CHARITABLE GIVING FUND

  $5,538

  2024 · GENERAL SUPPORT

Other IRS files