Form 990-EZ for tax year 2022

Totals

Total revenue

$121,519

Total expenses

$44,114

Contributions and grants received

$83,306

Grants paid

$97

Program service revenue

$0

Membership dues (line 3)

$0

Investment income (line 4)

$0

Gain or loss on sale of assets (line 5c)

$0

Gaming and fundraising events, net (line 6d)

$37,859

Gross profit on inventory sales (line 7c)

$354

Other revenue (line 8)

$0

Total assets, end of year

$144,390

Total liabilities, end of year

$0

Net assets or fund balances, end of year

$144,390

Program service expenses (Part III)

$43,712

Program services were 99.1% of total expenses calculated — Part III's total program service expenses over total expenses, both as filed.

Mission and programs · 2022

• The MOG Project maintains a website providing patients, caregivers and healthcare professionals in the MOGAD community educational materials vetted by expert medical professionals, access to research studies by medical institutions and The MOG Project itself, clinical trial information, support group information and registration, as well as community outreach information. In order to provide patients with the latest in the continually changing research in MOGAD, we use the website to provide quick access to podcasts from our YouTube channel and links to information from our collaborative partners. The website also supports an online store, providing awareness merchandise for purchase. In addition, the website provides blog space for patient stories, podcast summaries, news, announcements and events. With MOGAD being a rare neuroimmune condition, patients are unlikely to meet another patient in their area. This website is their portal to finding others with the disease for support and learning about the medical professionals who treat the disease aas well as gaining an education on the disorder. We are commited to these patients and plan on maintaining the website for years to come. We benefit over 5000 people who have found our website worldwide, mostly in the US. In 2022, one of our major expenses was to increase the SEO for our website to extend our reach through searchability on google. Our goal was to allow those who search the web to find us through relavant search terms in order to better serve the population with connections to MOGAD.

  Expenses $1,832

• We currently have 3 zoom-based support groups often visited by expert medical professionals in MOGAD. Our support group leaders volunteer their time to help patients connect to the care they need bring MOGAD patients and caregivers together to share advice based on their personal experience with the disease. We do not offer medical advice during these sessions, but patients can learn how to self-advocate to receive the best care possible from their own medical team, including what questions to ask their doctor and about the latest news The MOG Project has to offer concerning research and new findings in the MOGAD Community of researchers. 300 people are regularly signed up for our yearly sessions. Our expert visitations by MOGAD clinicians are on a volunteer basis and occur quarterly throughout the year for all 3 support groups.

  Expenses $270

• The MOG Project also provides research grants to centers of excellence in MOGAD research that work on understanding of this rare neuroimmune disorder.

  Expenses $97

• The MOG Project affects research by offering clinicians and researchers patient survey data from MOGAD patient volunteers around the world. These surveys target key areas that ignite ideas and propel research forward. We use an IRB approved survey tool and incur some expenses in creating data for researchers.

  Expenses $108

• The website also offers MOGAD gear which helps bring our patient community together, raises funds for some of our administrative costs, and brings awareness to the disease.We offer a variety of MOG-related merchandise and ship to customers who order from our website. There is some cost in creative fees for the design of the merchandise as well as all that goes into selling the gear.

  Expenses $968

• The MOG Project is a 100% volunteer organization but as a 501(3)c organization, it incurs operating costs including trademark fees, insurance, yearly compliance fees related to non-profit state registration fees as well as PO Box costs, accounting platform fees and banking fees.

  Expenses $3,667

• We attend various conferences to learn about MOGAD, get researchers interested in MOGAD research and to teach patients about the disease. There are travel-related costs and booth fees associated with these activities.

  Expenses $7,634

• We provided a special program in 2022 to organize a medical gathering in Boston at Harvard University where we created a patient educational resource as a Q&A and series of FAQ videos answering the most important topics in the disease. These were answered by some of the most prominent experts in the disease. They were in Boston for a meeting already, so we traveled there, held a meeting with them and video recorded the session. The video was edited and produced, then website work was done to support the disemmination of that resource by implementing it on the website and improving the SEO for better reach to a wider audience.

  Expenses $29,136

As filed on the 2022 return.

Listed in Part IV

Compensation is as filed in Part IV of the Form 990-EZ: compensation, contributions to benefit plans, expense account, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type

form_990_ez

Tax year

2022

Filed

28 October 2023

IRS schema version

2022v5.0

Source object

202303029349200550

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