Form 990 for tax year 2022
Filed by NATIONAL LEIOMYOSARCOMA FOUNDATION.
Totals
- Total revenue
- $264,822
- Total expenses
- $134,575
- Contributions and grants received
- $264,770
- Grants paid
- $107,272
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $52
- Total assets, end of year
- $465,287
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $465,287
- Program services expenses (Part IX)
- $131,052
- Management and general expenses
- $3,523
- Fundraising expenses
- $0
- Program service expenses (Part III)
- $107,272
Program services were 97.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$595
-
1f · All other contributions, gifts and grants
$264,175
-
10a · Gross sales of inventory
$94
-
10b · Cost of goods sold
$42
-
10c · Net income from sales of inventory
total $52
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $107,272 · program services $107,272
-
11b · Fees: legal
total $10 · management and general $10
-
11c · Fees: accounting
total $300 · management and general $300
-
12 · Advertising and promotion
total $4,756 · program services $4,756
-
13 · Office expenses
total $1,586 · program services $750 · management and general $836
-
14 · Information technology
total $985 · management and general $985
-
23 · Insurance
total $1,392 · management and general $1,392
-
24a · Other expenses: PATIENT EDUCATION
total $4,100 · program services $4,100
-
24b · Other expenses: LMS ROUND TABLE
total $10,770 · program services $10,770
-
24c · Other expenses: BANK & CREDIT CARDS
total $3,404 · program services $3,404
-
24e · All other expenses
total $0
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $334,541 · end of year $465,287
-
27 · Net assets without donor restrictions
beginning of year $334,541 · end of year $465,287
-
28 · Net assets with donor restrictions
beginning of year $0 · end of year $0
-
29 · Capital stock, trust principal or current funds
beginning of year $0 · end of year $0
-
30 · Paid-in or capital surplus, or land, building or equipment fund
beginning of year $0 · end of year $0
-
31 · Retained earnings, endowment or other funds
beginning of year $0 · end of year $0
Mission and programs · 2022
Mission
OUR NBSP;MISSION NBSP;IS NBSP;TO NBSP;ADVANCE NBSP;RESEARCH NBSP;IN NBSP;ORDER NBSP;TO NBSP;ACCELERATE NBSP;TREATMENT NBSP;OPTIONS NBSP;AND NBSP;OFFER NBSP;SUPPORTIVE NBSP;RESOURCE NBSP;ASSISTANCE NBSP;TO NBSP;PATIENTS NBSP;AND NBSP;CAREGIVERS NBSP;THROUGHOUT NBSP;THE NBSP;DIAGNOSIS NBSP;AND NBSP;TREATMENT NBSP;JOURNEY
Activities or mission (Part I)
PROVIDING EDUCATION, ADVOCACY, SUPPORT AND RESEARCH FOR THE LMS COMMUNITY AS WE MOVE FORWARD IN THE QUEST FOR THE CURE. THE NLMSF STRIVES TO GATHER CRITICAL MASS OF PATIENTS, SCIENTIST, PATIENT ADVOCATES AND PHYSICIANS TO LEAN MORE ABOUT THIS RARE DISEASE. WITHIN THE NLMSF, THE LMS ROUNDTABLE ORGANIZES CUTTING EDGE RESEARCH IN THIS AREA AND INNOVATES THE WAYS THAT THIS DISEASE IS TREATED.
-
RESEARCH GRANT ASSISTANCE
Expenses $7,272 · Grants $7,272
-
GRANT FOR RESEARCH ASSISTANCE
Expenses $100,000 · Grants $100,000
As filed on the 2022 return.
Listed in Part VII
-
Annie AcheeANNIE ACHEE
PRESIDENT
- Total calculated
- $0
- Hours/week
- 20
-
Lynne ForgesLYNNE FORGES
TREASURER
- Total calculated
- $0
- Hours/week
- 5
-
Mitchell Achee MDMITCHELL ACHEE MD
ASSISTANT TREASURER
- Total calculated
- $0
- Hours/week
- 20
-
Jim MatthewsJIM MATTHEWS
COMMUNITY AWARENESS COORDINATOR
- Total calculated
- $0
- Hours/week
- 5
-
Christopher HancockCHRISTOPHER HANCOCK
WEB IT SUPPORT
- Total calculated
- $0
- Hours/week
- 1
-
Jacqueline SebanyJACQUELINE SEBANY
MARKETING
- Total calculated
- $0
- Hours/week
- 1
-
Cynthia HayesCYNTHIA HAYES
MEMBER AT LARGE
- Total calculated
- $0
- Hours/week
- 1
-
Bruce KobritzBRUCE KOBRITZ
COMMUNITY OUTREACH
- Total calculated
- $0
- Hours/week
- 1
-
Greg LeeGREG LEE
COMMUNITY OUTREACH
- Total calculated
- $0
- Hours/week
- 1
-
Denny NohDENNY NOH
COMMUNITY OUTREACH
- Total calculated
- $0
- Hours/week
- 1
-
Marlana StoddardMARLANA STODDARD
COMMUNITY OUTREACH
- Total calculated
- $0
- Hours/week
- 1
-
Ed VigdenED VIGDEN
COMMUNITY OUTREACH
- Total calculated
- $0
- Hours/week
- 1
-
Bobby WhitfieldBOBBY WHITFIELD
COMMUNITY OUTREACH
- Total calculated
- $0
- Hours/week
- 1
-
Chanadalyn WilliamsCHANADALYN WILLIAMS
COMMUNITY OUTREACH
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
DANA-FIBER CANCER INSTITUTE INC
$100,000
GRANT RESEARCH AND ASSISTANCE TO DR MATTHEW HEMMING
-
TUMOR AND CELL LINE RNA SEQUENCING
$7,272
SEQUENCING RESEARCH AND SUPPORT
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 15 May 2023
- IRS schema version
- 2022v5.0
- Source object
- 202311319349304871
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