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NATIONAL LEIOMYOSARCOMA FOUNDATION

EIN 14-1834266 DENVER, CO

Revenue 2025
$198,343
Expenses 2025
$239,309

Program services were 98.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
H123
Classification
1200
Street
1685 S COLORADO BLVD

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Other organizations at this address

2 other organizations in the IRS Business Master File list the same street address. matched by us

We match the street line and ZIP code as the IRS gives them, ignoring case and outer spaces and nothing else, so "AVE" and "AVENUE" count as different streets and this list can miss some. A shared address can mean related organizations or a shared office, but it can also be a registered agent, a mail drop or a service provider holding mail for unrelated clients. It is not, by itself, evidence that two organizations are connected.

Mission and programs · 2025

Mission

A QUEST FOR THE CURE OF THE LMS DISEASE.

Activities or mission (Part I)

PROVIDE EDUCATION, ADVOCACY, RESEARCH AND SUPPORT FOR THE LMS COMMUNITY IN A QUEST FOR A CURE.

  • RESEARCH GRANTS TO VARIOUS MEDICAL RESEARCH PARTNERS - SEE SCHEDULE I

    Expenses $212,800 · Grants $212,800

  • PATIENT EDUCATION PROGRAMMING

    Expenses $10,504

  • LMS INTERNATIONAL CONFERENCE

    Expenses $3,855

As filed on the 2025 return.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Annie Achee

    PRESIDENT

    Total calculated
    $0
    Hours/week
    5

  • Lynn Forges

    TREASURER

    Total calculated
    $0
    Hours/week
    5

  • Mitchell Achee MD

    ASSISTANT TREASURER

    Total calculated
    $0
    Hours/week
    20

  • Jim Matthews

    COMMUNITY AWARENESS

    Total calculated
    $0
    Hours/week
    5

  • Chris Hancock

    WEB IT SUPPORT

    Total calculated
    $0
    Hours/week
    1

  • Jacqueline Sebany

    MARKETING

    Total calculated
    $0
    Hours/week
    1

  • Alex Aguilera

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Gregg Lee

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • David Bolles

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Chandalyn Williams

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Dale Ayscue

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $198,343
    Expenses
    $239,309
    Contributions
    $198,343
    Grants paid
    $212,800
  • 2024
    Revenue
    $181,152
    Expenses
    $192,162
    Contributions
    $180,769
    Grants paid
    $161,400
  • 2023
    Revenue
    $257,583
    Expenses
    $259,406
    Contributions
    $257,583
    Grants paid
    $235,000
  • 2022
    Revenue
    $264,822
    Expenses
    $134,575
    Contributions
    $264,770
    Grants paid
    $107,272

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $180,436
    Expenses
    $90,478
    Assets (EOY)
    $335,041

  • 2020 · 990

    Revenue
    $129,087
    Expenses
    $122,051
    Assets (EOY)
    $245,143

  • 2019 · 990

    Revenue
    $126,852
    Expenses
    $105,568
    Assets (EOY)
    $238,088

  • 2018 · 990

    Revenue
    $157,886
    Expenses
    $97,773
    Assets (EOY)
    $215,707

  • 2017 · 990

    Revenue
    $98,340
    Expenses
    $97,253
    Assets (EOY)
    $110,593

  • 2017 · 990

    Revenue
    $88,341
    Expenses
    $52,095
    Assets (EOY)
    $145,825

  • 2016 · 990

    Revenue
    $88,310
    Expenses
    $163,907
    Assets (EOY)
    $113,529

  • 2016 · 990

    Revenue
    $88,310
    Expenses
    $163,907
    Assets (EOY)
    $113,529

  • 2015 · 990

    Revenue
    $34,853
    Expenses
    $46,878
    Assets (EOY)
    $189,126

  • 2014 · 990

    Revenue
    $65,605
    Expenses
    $32,844
    Assets (EOY)
    $201,151

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 29 October 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.