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← NATIONAL LEIOMYOSARCOMA FOUNDATION

Form 990 for tax year 2025

Filed by NATIONAL LEIOMYOSARCOMA FOUNDATION.

Totals

Total revenue
$198,343
Total expenses
$239,309
Contributions and grants received
$198,343
Grants paid
$212,800
Program service revenue
$0
Investment income
$0
Other revenue
$0
Total assets, end of year
$411,800
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$411,800
Program services expenses (Part IX)
$235,492
Management and general expenses
$3,313
Fundraising expenses
$0
Program service expenses (Part III)
$227,159

Program services were 98.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $198,343

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $212,800 · program services $212,800

  • 11c · Fees: accounting

    total $475 · management and general $475

  • 11g · Fees: other

    total $4,430 · program services $4,430

  • 12 · Advertising and promotion

    total $675 · program services $675

  • 13 · Office expenses

    total $1,308 · management and general $1,308

  • 14 · Information technology

    total $1,532 · program services $1,028

  • 19 · Conferences, conventions and meetings

    total $299 · program services $299

  • 23 · Insurance

    total $1,530 · management and general $1,530

  • 24a · Other expenses: PATIENT ED

    total $10,504 · program services $10,504

  • 24b · Other expenses: LMS ROUNDTABLE

    total $3,556 · program services $3,556

  • 24c · Other expenses: LMS ROUNDTABLE WEBSITE

    total $2,200 · program services $2,200

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $452,766 · end of year $411,800

  • 27 · Net assets without donor restrictions

    beginning of year $452,766 · end of year $411,800

  • 28 · Net assets with donor restrictions

    beginning of year $0 · end of year $0

  • 29 · Capital stock, trust principal or current funds

    beginning of year $0 · end of year $0

  • 30 · Paid-in or capital surplus, or land, building or equipment fund

    beginning of year $0 · end of year $0

  • 31 · Retained earnings, endowment or other funds

    beginning of year $0 · end of year $0

Mission and programs · 2025

Mission

A QUEST FOR THE CURE OF THE LMS DISEASE.

Activities or mission (Part I)

PROVIDE EDUCATION, ADVOCACY, RESEARCH AND SUPPORT FOR THE LMS COMMUNITY IN A QUEST FOR A CURE.

  • RESEARCH GRANTS TO VARIOUS MEDICAL RESEARCH PARTNERS - SEE SCHEDULE I

    Expenses $212,800 · Grants $212,800

  • PATIENT EDUCATION PROGRAMMING

    Expenses $10,504

  • LMS INTERNATIONAL CONFERENCE

    Expenses $3,855

As filed on the 2025 return.

Listed in Part VII

  • Annie Achee

    PRESIDENT

    Total calculated
    $0
    Hours/week
    5

  • Lynn Forges

    TREASURER

    Total calculated
    $0
    Hours/week
    5

  • Mitchell Achee MD

    ASSISTANT TREASURER

    Total calculated
    $0
    Hours/week
    20

  • Jim Matthews

    COMMUNITY AWARENESS

    Total calculated
    $0
    Hours/week
    5

  • Chris Hancock

    WEB IT SUPPORT

    Total calculated
    $0
    Hours/week
    1

  • Jacqueline Sebany

    MARKETING

    Total calculated
    $0
    Hours/week
    1

  • Alex Aguilera

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Gregg Lee

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • David Bolles

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Chandalyn Williams

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Dale Ayscue

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

  • FREDERIC AMANT MD PHD

    $50,000

    RESEARCH GRANT TO FREDERIC AMANT MD PHD

  • MASS GENERAL BRIGHAM INC

    $50,000

    RESEARCH GRANT TO MARISA NUCCI MD

  • UNIVERSITY OF CA-DAVIS

    $50,000

    RESEARCH GRANT FOR RICHARD CANTER MD

  • SARC CATALYST PROGRAM

    $25,000

    RESEARCH GRANT AWARDED TO EVERETT MODING MD PHD AND TO MAGGIE ZHOU MD STANDFORD UNIVERSITY

  • LMS SPORE

    $25,000

    RESEARCH GRANT FOR LMS SPORE SCOTT SCHEUTZE MD PHD

  • SARC

    $10,000

    GRANT SUPPORT STRATEGIC ADVANCES IN SARCOMA SCIENCE

Provenance

Return type
form_990
Tax year
2025
Filed
30 June 2026
IRS schema version
2025v4.0
Source object
202641959349300809

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